The Wednesday HodgePodge (October 19, 2022)

Posted on by Astrid

Hi all. I’m joining the Wednesday HodgePodge again. This week’s questions are truly random or at least I cannot see a common theme to them. I don’t mind though. Here goes.

1. What’s something you wish you’d figured out sooner?
That I am the beloved of God and that it really doesn’t matter what my family or anyone else thinks of me in the end, God will ultimately judge my heart.

2. Something from childhood you still enjoy today?
Swimming, playground equipment (when it’s strong enough to carry adult me, such as here at the institution), children’s books.

3. Are you a fidgeter? What’s the first thing that comes to mind when you hear the word fidget?
I am a definite fidgeter! The first thing that comes to mind is hair twirling. I’ve done it since adolescence. When I was 21, my autism diagnosing psychologist in fact told me I really had to unlearn it because it was a “serious social handicap”. Thankfully, the only people who agreed were my immediate family, who had more or less abandoned me by this time anyway.

4. Your favorite fall vegetable? How do you like it prepared?
Broccoli! In fact, about a month ago, I was discussing with a former staff what vegetable I’d choose if I could eat only one for the rest of my life and I picked broccoli. It is such a versatile vegetable. I love it cooked plain or with a creamy sauce, stir-fried or even raw in a salad. Next up are carrots. I eat them raw as a side to my lunch almost everyday.

5. What’s something you find mildly annoying, but not annoying enough to actually do anything about? Might you now?
My headphones (the cheap Chinese brand ones I bought six months ago as a replacement for the Bose QuietComfort 45 ones that broke within three weeks of me having bought them) being basically useless as wireless headphones due to the battery draining very quickly. I have been intending to replace them for a few weeks, but can’t decide for sure on a new model. For now, I’m using my AirPods with my iPhone, but this is indeed slightly annoying.

6. Insert your own random thought here.
I’ve been in the main institution care home for two weeks today and it’s going pretty well. We had some issues early on, among other things with my medication, but all has been sorted now.

TGIF: October

Posted on by Astrid

Hi all. It’s the last day of September (duh!) and I haven’t written enough posts this month. That is, if I want to aim for 300 posts in 2022, I’ll need to have written 225 now. I’m not sure that’s entirely true, since both October and December have 31 days and September has only 30, but oh well.

In any case, today’s optional theme for Paula’s TGIF is “October”. Paula asks us what our plans are for the month.

Of course, October’s main theme for me is moving to the main institution care home and settling in there. Today, I packed my first box. I also told all fellow residents I’m close to. The one in my own home at first hardly reacted, but now seems to understand to some degree. The woman in the care home down the road became a little emotional. I gave her a matching necklace and bracelet. The guy in the care home next to mine, the one with the chickens, reacted understandingly when I explained that the people in my new home are of a higher intellectual level. “So more like you and me?” he inquired. Yes, like that. I gave him the polymer clay sun, because he’s usually in a sunny mood. He gave me an egg he’d collected from one of his chickens this morning.

I already have two visits from my family planned in the first week of my stay at the new home. On October 8, my sister and her family will be coming by and my mother-in-law will visit me on October 11.

Besides settling into the new home, October will be a busy blogging month. I am participating in the 31-day writing challenge once again, although I won’t even attempt to do a landing page this time around. I usually just sign up for the prompts and to have some reason to blog everyday, even though I haven’t completed the challenge in years. There is of course also Blogtober, for which there are prompts this year too. I am not sure what I’ll do with those. All this to say, my cares about not having written enough during September, are really not all that important. Besides, no-one is going to come after me if I don’t write 300 posts in 2022.

Joy in September

Posted on by Astrid

Hi everyone. How is it the end of September already? I pretty much forgot the month is almost over, but since it is, it’s time for me to write an update on my word of the year: “JOY”. I am linking up with Lisa’s One Word linky. I am also joining the Word of the Year linky.

September started out with good news, as, on the very first day of the month, I heard that I was first on the waiting list for what I now refer to as the prospective new care home. This gave me some renewed energy, but also stress. I was warned that the wait might still be six months or so. “That’s super quick,” my husband said. Well, those who’ve read my blog over the past couple of weeks, know that it’s gone even quicker: tomorrow, I am to decide whether I want to move to the home and, if I want to (which I do), I’ll move next Wednesday, October 5.

Considering this, the whole month of September flew by in a bit of a haze, in which I was both hyper with excitement and overwhelmed with worry. I am still both as I type this post, in fact. Consequently, I hardly found any clear moments of joy that were just that. After all, things I did feel delight or joy over, were also laden with some level of anxiety or anticipation. For example, at my husband’s and my visit to Ikea, I was thinking about what to buy for the new home.

The month of September, of course, was also the month my iPhone and Apple Watch got their updates and I got really used to my Apple Watch. For the first few weeks of the month, I was compulsively moving to get far beyond my activity goals. This past Friday, my dietitian did caution me against it. The next day, with some emotional struggle, I let a day go by when I didn’t fill all my rings. That seems to have broken the cycle, as I’m now able to be a bit easier on myself. For example, yesterday I was sick to my stomach all day, so really didn’t feel like exercising. I am relieved I am able to permit myself these days now too.

For the month of October, I am of course looking forward to enjoying real food, as the staff at the new home cook homemade meals everyday there. I am also hoping to enjoy visits from family, as I have a few planned already for the first week at my new home. Other than that, I am expecting to have a lot of getting used to at the new home, so I’m just hoping to enjoy some everyday pleasures.

How I Was Disciplined As a Child

Posted on by Astrid

Hi everyone. Today’s topic for Throwback Thursday is “rules and discipline”. I am going to try to keep this post as non-triggering as possible, but if you endured childhood abuse, you might want to skip this post. Then again, maybe what I endured wasn’t abuse at all? Well, in that case actual survivors might want to skip it because it might come across as invalidating.

My parents rarely set clear rules when I was a child or teen. I can’t remember having curfews and, even at ten-years-old, I was allowed to stay awake in my room for as long as I wanted provided I didn’t wake anybody else.

In this sense, none of the provided questions in Maggie’s original post made much sense. I mean, I was often sent to my room as punishment, but I cannot remember what for. I also was never told how long to stay in my room, so I usually stayed for about an hour then slowly re-emerged.

My parents, both of them, also used corporal punishment. However, I get a feeling that they hit me more out of a sense of powerlessness than out of a righteous wish to set me straight. Unfortunately, corporal punishment didn’t stop when I got older. In fact, the last time I was hit, was when my parents more or less kicked me out of the house when I was nineteen. And then I don’t include the time my mother tried to slap away my hand from my hair to prevent me twirling it when I was 23 but I slapped her hand away.

My parents, like I said, didn’t have clear-cut rules, but they did have expectations about socially appropriate behavior. They had their own words for ridiculing me when I “misbehaved”.

The positive side of there not being many clear rules, was that my parents encouraged me to do things most other teens, and certainly disabled teens, would not have been allowed to. I was allowed on a four-week-long summer camp to Russia at age fourteen, being the youngest of the Dutch participants and the only one with a disability (the program officially catered towards the visually impaired). Then again, when I struggled socially in Russia and for this reason wasn’t allowed back the next year, my parents, especially my father, completely guilt-tripped me rather than showing me support.

I was mostly a rule-follower, insofar as there were rules at all. However, as a teen, I became secretive. I actually had my father drive me to a meeting of people with mental illness when I was seventeen, while I’d led him to believe it was a disability meeting (because one of the people there was in a wheelchair). I’m pretty sure he knew, but he never confronted me.

I don’t have children of my own, so I cannot say whether my upbringing influenced the way I discipline them. However, I did find I got easily triggered when I got the impression my sister and brother-in-law used corporal punishment on my older niece (this was before the younger one was born). Thankfully, they were able to reassure me that they didn’t.

The Wednesday HodgePodge (August 3, 2022)

Posted on by Astrid

Hello all! It’s Wednesday again and I thought I’d join in with the Wednesday HodgePodge. Here goes.

1. Do you have a sister? Tell us something about her. If you don’t have a sister, tell us about a friend who has been like a sister. Or tell us about a sister-in-law if you have one who is extra special.
I have one sister. She is two years younger than me, although when we were kids, people always thought we were either twins or she was the older one. She always envied me because I got more attention from our parents than she got (though it was mostly negative attention). In terms of the roles often described in dysfunctional families, she was the lost child, while I was a strange mix of scapegoat and golden child.

Currently, she lives in the far northwest of the country, close by the sea, with her husband and two girls. She will be starting training to become a childcare worker soon.

2. Resister, assister, insister, persister…choose one and explain how it relates to you and your life lately.
All of them relate to me in some way. Well, maybe except for “assister”, in that I don’t really assist anyone myself, but rather am on the receiving end of assistance. As for “resister” and “persister”, they usually go hand in hand, in a kind of paradoxical way.

3. Share a favorite song, book, movie, or television program that features sisters.
A book that’s been turned into a movie comes to mind: My Sister’s Keeper by jodi Picoult. It was the first Picoult novel I read, before I knew killing off her characters was her way of writing (oh, sorry if that’s a spoiler, but the book and movie have both been out forever). In this book though, it made sense. In others, not so much.

4. August 3rd is national watermelon day…are you a fan? Do you like watermelon flavored candy? Besides eating the melon as is, do you have a good recipe made with watermelon?
I do like watermelon, but it’s not like I’m a huge fan. I’ve never had watermelon-flavored candy, so no opinions on that. I don’t really know a recipe with watermelon, but I still need to try it in my fruit infusion bottle. I did try a few pieces of a galia melon in it, but that didn’t taste good.

5. ‘Tis August…what are three things you’re looking forward to this month?
Crafting quite a bit. Several fellow clients at the care facility I know well have their birthdays this month and I want to create them a present. Seeing my husband’s new-to-him car, that he will be getting on Saturday. Maybe driving to some nearby town or city we haven’t been to yet with my husband.

6. Insert your own random thought here.
I am so glad that my crafty mojo seems to be returning in time for these fellow residents’ birthdays. Also, if you all have any idea what I could create for my husband’s and my wedding anniversary on September 19, I’d love to know. I bought a heart-shaped canvas that I can decorate with paint, polymer clay and/or other media, but I am truly out of ideas as to what exactly to do.

Gratitude List (July 31, 2022) #TToT

Posted on by Astrid

Hi all on this last day of July! Today I’m joining Ten Things of Thankful (#TToT) for a gratitude list. I’m rather late to the party, but better late than never, huh? Here goes.

1. I am grateful for some good phone talks with the care facility’s behavior specialist this week. She gave me some useful advice on how to handle my frustration with respect to my recent care review with her and my nurse practitioner from mental health.

2. I am grateful my nurse practitioner gave the get-go for me to lower my antipsychotic again. Next week, I’ll be starting with the slightly decreased dose.

3. I am grateful for a nice visit from my sister and her family. I am so grateful Janneke, my oldest niece, was really friendly with me. I tried to show her how to make a play-doh unicorn, but she may still be a bit young for that and/or I wasn’t engaging enough.

4. I am grateful I got to hold Wolke, my youngest niece, who is just two-months-old.

5. I am grateful for the belated birthday gifts my sister and her family brought me. I got four sets of cutters and a set of texture sheets to use with my polymer clay.

6. I am grateful for a delicious salami pizza with added olives and red peppers. Yum! We ordered pizza (and fries for Janneke) last Monday when my sister and her family were here.

7. I am grateful for a good visit from my mother-in-law on Friday too. We went out to have lunch, which was delicious.

8. I am grateful for no mosquitoes last night or the night before. This hopefully means my anti-mosquito device, that I’d bought last Friday when in town with my mother-in-law, is working. Either that or none had been in my room at all. I don’t really care which, as long as the critters aren’t bothering me.

9. I am grateful my pasta machine isn’t broken after all. I had experienced it’d crumble several colors of polymer clay. Even after a deep clean session, it still did this, so I thought it must be broken. Thankfully, one of the most knowledgeable people in the Dutch polymer clay Facebook group took a look at a picture I’d taken and said it wasn’t broken. Apparently it’s the clay.

10. I am grateful the new pasta machine I impulsively ordered online when thinking the current one was broken, can be returned. I will probably ask my staff to drive me to the PostNL pick-up point tomorrow. When I have my refund, I’m going to order supplies I really do need from that same store I now ordered the pasta machine from.

What are you grateful for?

Joy in July

Posted on by Astrid

Hi everyone. It’s nearly the end of the month and this means it’s time for me to update you all on my word of the year. As usual, I’m joining the #WOTY linky, as well as Lisa’s One Word linky. My word of the year, as I’ve said before, is “JOY”.

Early in the month, I had a horrible setback, as I got the news that my now former assigned staff would be quitting her job at my care facility. This caused some major sadness and emotional turmoil in me, but after a while, I was able to channel it into something good by creating something for her – a polymer clay hedgehog. I enjoyed the creative process and the smile I brought to her face when I gave her the gift.

Overall, I did find that my joy or lack thereof was more than in the previous months tied to my material success, in the sense that, if I felt I was failing at a crafty endeavor, I didn’t enjoy it either. The same goes for my blog: I was ecstatic when reading all the positive comments to the poem I wrote last week, but didn’t enjoy writing when I had the idea that I wasn’t “successful” in my blogging.

Similarly, my joy is also more tied to material possessions than it used to be. For example, the day my former assigned staff left, I ordered a stuffed dolphin for comfort. While this did help me, maybe at other times I would’ve been able to seek joy without having to spend money. I am not saying spending money on comfort items is necessarily bad, but ultimately, they aren’t material things that will bring me joy.

Joyful experiences included a visit to the trampoline on the last day my now former assigned staff worked my one-on-one shift, eating out with my husband and a visit from my sister and her family. While they involved material things too, in the sense that we spent money on the dinner and my sister gave me some beautiful belated birthday gifts, the experiences themselves were truly great.

In some good news, I did do some Bible reading everyday again this week, while I’d hardly done any over the rest of the month. It is causing me a lot of emotions.

Overall, the month of July was filled with some high peaks but a lot of deep lows too. I must say though that, considering the impact of my staff leaving, I was expecting much worse. I really hope the month of August will be better.

A Courageous Choice

Posted on by Astrid

I was a shy, withdrawn teen who was loyal to my parents even though they didn’t have my best interest in mind. I mean, if they’d had their way, I’d have gone to university and lived on my own straight out of high school in 2005, even though I could barely take care of myself. That had been their attitude towards raising “responsible” children ever since I was a little girl: if I couldn’t – or in their opinion was too strong-willed to – learn a skill as a child, I’d learn it as an adult by myself. Or not. In any case, there was no safety net.

Though I do indeed feel that children benefit from learning by doing themselves, this was not how it worked in my family. I don’t blame my parents for not having the patience to teach me self-care skills, given that I got frustrated very easily, but I do hold them responsible for not having accepted the help they could have gotten. Though it might not have led to me becoming as independent as they’d want me to be, my current situation is about as far from that goal as can be. Then again, my parents hold me responsible for that. And I, in a sense, do too.

I was reminded of this situation when I read a journaling prompt that asked me to reflect on a courageous choice I made as a teen that’s still helping me today. I immediately thought of the choice to go into blindness training rather than straight to university once I’d graduated high school. Though this decision itself did not by far lead to the self-awareness I needed to try to get into long-term care, it was my first step into the care system. And, of course, as my parents predicted, I never fully got out.

Back in June of 2005, when I accepted the blindness training center psychologist’s offer to put me on the waiting list for the basic training program, I still had my head deep in the sand about my lack of independence skills. The psychologist did not. He suggested I go to a training home after finishing the program. He probably knew that, like many young people blind from birth, and especially those from families like mine who value academics over life skills, I wouldn’t be ready to move into independent living after a four-month, basic program. I wasn’t. I never would be. Till this day, I’m not sure whether this is my blindness or my autism or my mild cerebral palsy or what. I believe strongly that, with multiple disabilities, the whole is more than the sum of its parts. Thankfully, the authorities approving my long-term care funding, eventually agreed.

My 2022 Birthday Celebrations

Posted on by Astrid

In one of her Writer’s Workshop writing prompts for this week, Mama Kat asks us to share about something we celebrated recently. Of course, it was my birthday last Monday and I haven’t yet told you all everything about it, so here goes.

The celebrations started on Saturday with me arriving in Lobith by taxi at around noon. My husband gave me my first present after we’d had lunch. According to him, I’d been nagging him about the Cernit matt polymer clay varnish being sold out everywhere. Indeed, I had mentioned this to him (not exactly nagging, in my opinion), to which he’d replied with a challenge for me to find where it’d been allegedly sold out. I found out that a Bol.com (a Dutch site much like Amazon but more expensive) partner still had some in stock. He then asked me whether I wanted it for my birthday. I said yes. So that’s what I got. I got two 30ml pots of it, because according to my husband a Danish vendor had it in stock at half the Bol.com price including shipping.

At around 2:30PM, my parents arrived. They gave me strawberries that they’d bought from a street vendor across the German border. They also gave me German tea, which I ended up giving to my husband, since it was black tea and I only drink green tea and the occasional herbal tea. My main birthday gift was a huge box full of plastic cookie cutters to use with my polymer clay. There are 75 cutters in the box, ranging from animals to vehicles and from a few Christmas-themed and sports-themed ones to dinosaurs. The box also included cutters for all letters and numbers except for I (the box recommended cutting off a piece of the L for that). I also got a huge jar filled with beads that my parents bought at a thrift store. Lastly, I got a kit for making magnetic bracelets.

After we’d had coffee and apple pie, we chatted some. Then, it was time to leave for the restaurant my husband and I had picked out. The restaurant was called “De Revolutie” (“The Revolution”) and we’d somehow gotten the impression it was a Cuban-style restaurant. That had appealed to my husband and me, because my parents are leftists.

When we arrived, we soon figured out it was indeed hard to comprehend which revolution the restaurant was referring to. We’d hoped for pictures of Che Guevara, but there were none. I had already discovered that, what the restaurant had on the menu, definitely wasn’t Cuban cuisine, as most of its meals include beef and that’s hardly consumed in Cuba (or so Google tells me). I didn’t care though.

I chose shrimp in garlic oil as my appetizer, which was really good. My husband chose nachos and was given a huge bowl of them. I ate some of his. Then I went for a burger for my main course, while my husband chose a stew. His was a relatively small serving, while mine was quite large. I liked my burger, but had hoped for a spicier version.

After we’d finished our meal, my parents left and my husband and I drove back to our house in Lobith. The next day, we drove to my in-laws’ house, where only my mother-in-law was at the time. My mother-in-law gave me a clay extruder as a present, which I love but only figured out how to work today.

On Monday, my actual birthday, I didn’t do much out of the ordinary. I treated myself to a sausage roll for lunch, but that was it. I also tried to find ready-made cookie dough to make cookies from to give as a treat to my fellow residents. It turned out the supermarket was no longer selling this, so I went back on Tuesday to get ice cream after all.

I had decided this year that I don’t want a present from my staff, since technically you (or your family) pay for it yourself anyway. However, yesterday the new student staff brought me some plunger fondant cutters to use with my polymer clay. They weren’t even really intended as presents, but I appreciate them very much.

Mama’s Losin’ It

The Wednesday HodgePodge (June 8, 2022)

Posted on by Astrid

Hi all! Today I’m once again joining the Wednesday HodgePodge. Here goes.

1. “A daughter’s a daughter all her life, but a son’s a son til he takes a wife.” What say you? Elaborate.
In my personal life, the exact opposite is true, in that my parents were very clear that, once I was an adult (ie. once I’d turned eighteen), I had to fend for myself. My contact with them lessened even more once I got married. My husband, on the other hand, sees his parents almost on a weekly basis. I am honestly much closer with my in-laws now than with my own parents, to the point where I’ve appointed my mother-in-law as my informal representative should I become incapacitated.

2. Something you’ve seen recently that was “cuter than a June bug”?
Hmmm, I’m obviously supposed to say little Wolke, my baby niece, but to be honest I don’t really care for babies all that much. I don’t really like children in general, but I’m going with her older sister anyway. She will be three in September and talks up a storm already.

3. “You can’t buy happiness, but you can buy ice cream and that’s pretty much the same thing.” Agree or disagree? Last time you had a serving of happiness ice cream? Dish-cone-milkshake-sundae…which one do you choose?
Disagree with the saying. Though I do like ice cream on occasion, it’s not at all my favorite treat. I don’t actually really have a sweet tooth since recovering from my overeating. Give me chips instead.

As for my favorite ice cream, it’s probably a cone, although I like sundaes and milkshakes too. I can’t remember when I last had ice cream. A milkshake though, yes, I do remember, but it was far from good. We got it with a paper straw, as plastic straws are banned in the EU, and it was too thick to drink with that but too thin to eat with a spoon.

4. What is one way/area in which you’re currently “swimming against the tide”?
I don’t do social media much at all. I mean, I do still have a Facebook, Twitter and Instagram account, but I hardly ever use them.

5. Three things you’re looking forward to this summer?
My birthday at the end of this month. Other than that, I don’t really know. My husband and I originally thought of taking a few days out by train, since Lobith is close by the German border and Germany’s public transportation is nearly free during the summer months. However, he found out that trains are already so packed that the police had to come out to remove some of the people. Not my idea of a holiday.

6. Insert your own random thought here.
I have been obsessing over crafty stuff again. I am really looking forward to doing some polymer clay work again, but can’t decide what to make, honestly. Yesterday, I tried my hand at another pair of earrings, but the slab was a true lint magnet and I was too lazy to get alcohol to remove it. I wasn’t too inspired as to what to make out of the slab anyway. Any ideas?