Another Appointment With My CPN

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Today, I had an appt with my CPN again. I can’t remember all the details, but I did tell her that I had had a breakdown on Sunday. I was completely honest, sharing that I had seen and heard things that aren’t there. It was as if something was truly telling me I’m a monster and everyone will leave me. Then I saw some form of Heavenly light. I can’t describe it really and it wasn’t very vivid even then, but it was more than mere wishful thinking.

My CPN encouraged me to discuss this with the psychiatrist when I see her on the 22nd. I really hope she can help me. My husband later asked me whether it was truly psychosis or a panic attack. I don’t think I was full-on psychotic but my perceptions and thoughts were definitely headed that way. My CPN agreed.

I can’t remember whether I told my CPN, but I had these thoughts and perceptions once before. Well, a few weeks ago I had them too, back when this depressive stuff all started, but then it wasn’t that bad. Back in December of 2009, I think it was even on Christmas, it was. I had run off from the psych ward in the snow. I picked up snowballs and somehow was convinced they contained drug needles. I wasn’t depressed at the time, just batshit crazy. It lasted only for a few hours though, but came back several times within the next few months, only disappearing when I was put on Abilify.

Now I’m pretty pessimistic. After all, I’m already on the highest dose of both Abilify and the antidepressant Celexa. (I mention this because I’m pretty sure I’m depressed, whether clinically or not.) I’m hoping though that the psychiatrist can put me on some PRN medication other than lorazepam, which I can use if I fully break down again. I know I have had experience with Phenergan (promethazine, a low-potency neuroleptic) and that worked great when I was on no other medication but not at all once I was on my current regimen. Maybe the psychiatrist can prescribe me something similar but different.

I also talked to my CPN about the incessant crying. She told me this may be useful. After all, I learned from a young age on to hide all negative emotions except for frustration (because I couldn’t hide that). In fact, I was told that I was “too quick to anger”, but this was used as an excuse to force me to repress every emotion other than a smile. I hadn’t been able to cry unless I was angry first until only a few months ago. As such, my CPN reasoned that I might have a lot of catching up to do.

Fighting the Depression Demon

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I was in yet another crisis yesterday. When the extra staff was about to leave, I crashed and started crying. The staff felt somehow obliged to stay and, when she finally left, another staff tried to comfort me. I cried for like three hours.

Then today it seemed to start all over again. I decided to call my husband, who told me to push the depressive thoughts away. I was going to say I feel like a selfish monster for having even unconsciously made the staff stay yesterday, but my husband said that I need to push away those thoughts too.

My husband kept repeating that I’m not a monster and I need to stop those thoughts now. He said that these thoughts are destructive. I find it hard to understand, but maybe on some level I do. I mean, I feel that I’m wicked and that’s why I’m depressed and that’s why I ask for more and more help and that’s why people leave me and that’s why I’m depressed. I can see now that this is a vicious cycle. I’m not sure it isn’t true, but I remember from the little cognitive behavior therapy I took years ago that really it doesn’t matter. It’s non-functional. Or destructive even. And that’s what matters.

My husband tried to remind me that God loves me. I kept getting stuck on technicalities such as the fact that I wasn’t baptized. At first he told me: “So then get baptized if it helps you.” I can’t see how I could be baptized in this time of social distancing.

Then my husband started to tell me that I am at a crossroads and can take one step towards despair or one step towards hope each second. Maybe even if I don’t get baptized at this point, because well I can’t, I can take a number of baby steps towards hope. Towards God.

Lord, please help me take every second as it comes. Please help me choose each second to take that one step, even if it’s a snail’s step (or crawl, whatever snails do), closer to You.

Lord, thank you for bringing my husband into my life. Thank you for speaking through him and reminding me to live positively. In Jesus’ name, Amen.

Now I’m totally clueless about the supposed format of prayers, so I have no idea whether this was a proper one. I trust God hears me whether my prayer was written properly though.

#IWSG: Seasons of Writing

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IWSG

Today is the first Wednesday of December and that means it’s the last #IWSG day of the year. It’s already late in the evening and I’m not too inspired to write on the topic of writing. I guess I wasn’t too inspired during the month of November at all. I mean, I didn’t have any blog challenges to participate in, so I didn’t write as much as I did in previous months. My private journal and Drafts, an app I use for my random pieces of fiction and poetry, also remained largely empty.

I find myself scrolling past the many writing and poetry Facebook groups I’m in an not even looking at them. It isn’t that I don’t want to write, but it’s probably that I feel my creative juices have more or less dried up and I don’t want to see others’ beautiful work when I’m not able to contribute any myself. Call me selfish for that.

November is a hard month for me. Perhaps the hardest of the year. November 2 marks the anniversary of my major mental health crisis (which happened in 2007). That, combined with some form of winter blues, often has me depressed during November. I often feel less inspired when I’m depressed.

This year, my November was okay writing-wise. In 2018 and 2019, I published significantly fewer blog posts in November than this year. Then again, I’m doing pretty well writing regularly this year overall.

I am not sure whether, with the exception of blog challenges such as the #AtoZChallenge in April, there are any months I consistently blog more or less than others. With respect to my fiction and poetry writing, this tends to go in spurts and then stands still for a long while. This is the case for all of my passions other than blogging.

How I Spent My November

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It’s already almost 9PM and I haven’t written anything today, but really want to. One of the end-of-November prompts I received in my mailbox from the International Association of Journal Writers (IAJW) Museletter was to make a list of all the things you spent time on in November and to reflect on what you’d like to change. Here goes.

1. Worrying. And acting out. Particularly early in the month, I was very much overwhelmed. I landed in crisis within the first week of November. I could’ve attributed this to it being the anniversary of my major crisis in 2007, but I know it wasn’t. Finally though, this crisis helped me realize I need more support and actually request it.

2. Walking. I broke my step record three weeks in a row this month. Today I feel almost disappointed for only having gone for short walks in the evening, because it was raining.

3. Faith. I had a true leap of faith this month, which I’m so grateful for. I’m pretty sure that, without God, I wouldn’t be where I’m now. I mean, I truly feel blessed to have come to realize I am beloved. It’s still pretty hard for some of my parts to believe, but we’re getting there.

4. Relaxing. I truly feel blessed to be able to have quiet dinners in my room for now and also to be able to relax more in my bed. Early in the month, I was so worked up that I couldn’t relax. My nights were regularly disturbed by nightmares and, though they still are, my days are calmer.

5. Writing. I’d really like to do more of that in December, but I still managed okay.

6. Talking to my staff, husband and others. I really feel this helped me open up more about my innermost struggles. I sometimes throughout this month have felt a compulsion to perseverate on the same topic over and over again. This is an autistic thing of mine that plays up particularly when I’m experiencing strong emotions, be they positive or negative. I’m glad my staff and husband are okay with it though.

7. Eating. I totally planned to go on a diet in late October, but by early November, this had more or less gone out the window. I do try not to snack too much, but I’m really not in the mood for dieting right now. Hopefully I won’t fully slip back in December.

How did you spend your November?

Gratitude List (November 21, 2020) #TToT

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It’s been forever since I last did a gratitude list. I just checked and it’s been five weeks. These weeks have been incredibly hard. I am really struggling to stay positive. I am going to try to come up with some gratefuls anyway. As usual, I’m joining in with #TToT. I’m typing this post on my iPhone, which I hardly ever do nowadays, so sorry for any typing glitches.

1. My husband! Even with our not living together and only talking on the phone most days, he tells me many times a day that he loves me. I am struggling to feel such a powerful emotion due to my current state of depression, but I’m trying to love him back.

2. My faith. My husband, who I always thought was a strong atheist since leaving theology school, has taken a renewed interest in Christianity and this has encouraged me. Today, he recommended a book called You Are Beloved. I am a very progressive believer, but I’ll definitely give this book a try.

3. My staff. They have been so kind to me despite my challenging behavior.

4. My community psychiatric nurse. She has been very helpful.

5. Pizza. Okay, on to the superficial stuff. My husband and I ordered a delicious pizza today. No, not from Domino’s and I must say this one is better!

6. Cheesecake. Two of my fellow clients had their birthdays this past week and another client got to help the staff make cheesecake.

7. Homemade noodles. That same client made those for us on Monday. He used minced meat instead of chicken, but still it was so delicious.

8. Lots of walking. So far this week, I nearly surpassed my step record from last week. I didn’t get in as many minutes in active heartrate zones, but that’s okay.

9. The ability to write and blog. I am not writing as much as I’d like, but at least I’m still writing.

10. A good night’s sleep last night. And yay for no nightmares that I can remember!

What have you been grateful for?

Grief

Posted on by Astrid

Today’s Five Minute Friday prompt is Grief. When I first saw it, I knew I just had to write on it, but I didn’t know what to write. In a way, I still don’t know. But let me write anyway.

I have been close to clinically depressed over the past few weeks. I don’t know whether this is grief for something I have lost. Perhaps my old, functional self.

Then again, that functional self was a façade. A mask. Layers upon layers of masks formed within those early years of my life, when I still functioned. On the surface, that is.

And here I am, in a care facility, waiting for the manager and behavior specialist and the funding authority to figure out if I can get one-on-one support. And now I grieve the loss of that façade. I am intensely sad. I worry that if I am truly myself, if I peel off all the layers and layers of masks, an intensely wicked, horrible monster will remain. I can almost literally picture the monster in my mind’s eye.

Everytime I think I’ve found the real, authentic me, and it’s a good thing, it turns out to be yet another alter. I wonder what remains if they all go. Will the intensely wicked, horrible inside of me seep through to the outside world?

I am not very religious, but I do believe in God. Especially in these hard times, I pray. I pray that God will help me remove the layers and layers of masks I’ve put up over the years. I however also pray that, beneath them all, the monster will turn out to be some kind of prince(ss) from Beauty and the Beast or whatever. At least not as wicked as I see it as.

Okay, this turned out very different than I had imagined. This piece does reflect my innermost thoughts. For those who haven’t read my previous posts, I do not see my inner monster as some kind of universal thing, like original sin. In fact, I am convinced that most people are both good and bad. The wickedness applies only to myself. And yes, I know I’m not some type of criminal, but I still see myself as intensely bad.

#WeekendCoffeeShare (November 15, 2020)

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Hi everyone! How are you doing? Today I’m joining in with #WeekendCoffeeShare. I just had my afternoon coffee, but there’s still plenty left for you all. We also have various flavors of tea and there’s cold water in the fridge I think. Let’s have a drink and let’s catch up.

If we were having coffee, I’d share that this week was a rather rough one. I am already feeling slightly better now though. I’m still struggling to keep busy when I’m alone, but it’s okay.

If we were having coffee, I would tell you that the weather is pretty mild for november. It’s raining some of the time, but it’s also sunny some of the time and it’s pretty warm for this time of the year, roughly 15°C.

If we were having coffee, I would be proud to tell you that I got in over 65K steps this week so far. That’s a record! I’m probably still going for another walk this evening, so I may break my active heartrate zone minutes record of last week according to my Fitbit too.

If we were having coffee, I would tell you that I’m so immensely grateful for the extra supports my staff put in place for me. Like I mentioned earlier in the week, I was extremely depressed earlier and was seeing no way I could manage at this care home or in this world as a whole for that matter. Thankfully, I got some one-on-one support in the evenings, which are the hardest for me.

I did feel some pressure when a staff said she hoped that in a few weeks, I would not need as much support. This caused me some considerable anxiety, as I worried I’d be kicked out of this home if I didn’t improve in a few weeks. The staff didn’t mean it that way though.

If we were having coffee, lastly I would tell you that my husband came by yesterday. We drove for a bit and then went for a short nature walk. My husband had also brought me some apple pie his father had baked for his birthday. I did struggle to eat it properly whilst in the car, which I felt intense shame about. My husband was okay with it though.

Things Can Only Go Up

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Like I mentioned earlier in the week, on Sunday I was in a major crisis. On Monday, the manager came to reassure me that I wouldn’t be kicked out of the care facility. I wasn’t convinced though and got stuck on a comment that seemed to invalidate my need for more support.

On Tuesday and Wednesday, I cried my eyes out. I felt that there’s no place where I truly belong. It didn’t help that my husband said I experience a lot of internal stress so wherever I go, I’ll take that with me. I’m pretty sure he meant it in a more positive way than I took it. However, I took it to mean I’m too wicked and needy and stressed for this world.

On Tuesday, I started envisioning a place I belong and don’t feel pain. Until that point, I had always assumed there must be a better place for me out there within this world. This had led me to check the care agency’s profiles for other homes pretty much on a daily basis. As of last Tuesday though, this “better place” became more like the afterlife. It wasn’t that I wanted to die, but I wanted the intense pain to end.

On Wednesday, I cried for what seemed like forever. I was crying alone in my room and at one point had the sense of clarity to press the call button. There is this extra staff who normally helps out between 6PM and 8PM. She came into my room and said she’d stay with me for the entire two hours. I cried and talked and let all my feelings out.

At one point, this staff asked whether I’d heard of one-on-one support. I had, but asked her to clarify it anyway. She asked me whether that sounded like something I might benefit from. I finally overcame my intense shame and said “Yes”.

Yesterday, I started the day off pretty sad and had some crying fits throughout the day. At about 4:30PM, a staff came to soothe me and said that that evening, I could sign something to get me more help. I wasn’t sure what she meant. Turned out she meant a letter to the manager requesting more support for me.

My assigned staff wrote the letter, with my input, that evening and I signed it. Now of course we still need to wait for the manager’s response. She may also need to request extra funding for me from the authorities. Even though I’ve known about one-on-one support for almost as long as I’ve been at this facility and have secretly wished I could get it many times, I don’t know that much about the technicalities. That’s not my responsibility though.

From now on, I believe the only possible way is up. Even if I don’t get the one-on-one support I need, the staff have a clearer understanding of my needs and will be able to help me more adequately. Also, with my signing of the letter, I sort of also signed for my wish to stay at the current home. I originally intended on breaking my habit of looking for another place today, but still checked. I wasn’t as affected by what I saw though.

Gratitude List (October 2, 2020) #TToT

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I already published a post today, but I want to write more. I originally tried to write this post using the dreaded block editor, because I’ve heard it’s being forced onto WordPress bloggers more and more. I however for the life of me couldn’t properly link back to the Ten Things of Thankful (#TToT) page I’m joining in with. Here is my gratitude list, starting with…

1. The WordPress block editor not being fully forced onto me yet. On both PC and iOS, WP is trying to coerce me into using the block editor in all kinds of ways, but so far, I’ve found a workaround on both. I can only guess how long this is going to last, but I’ll keep using the classic editor at least for posts like this one for as long as possible.

After all, one issue I’ve found is that the block editor won’t let me write lists without converting them to HTML numbered lists, which seems to mean I can’t write multiple-paragraph list items like this one. I also greatly struggle with adding links, like I said. So, anyway, I’m grateful I can still use the classic editor.

2. A fries and snack vendor came by the facility on Sunday. It was a staff’s last shift before retirement, so she wanted to do something special. Another home had asked the snack vendor to visit us, so we decided to tag along. I had tons of fries and two snacks.

3. My mood being pretty good. Except when I was muddling with the block editor, that is. Overall, I feel pretty relaxed lately.

I am also so grateful that depression hasn’t sunk in as of yet. I often start feeling depressed by late September or early October. November is usually the worst. Let’s hope I can skip it this year.

4. Lots of engagement on my blog. I attribute this partly to #Blogtober20, but I’m also more able to interact with other bloggers and they engage with me in return.

5. Interesting journaling prompts. I got a subscription to Journey, a multi-platform diary app. I cannot really use the app, but I love to benefit from the prompts.

6. Relatively good weather. Yesterday was a pretty rainy day, but the rest of the week has been pretty much okay for fall.

7. My creative juices flowing. And my ability to handle failure if what I had in mind doesn’t turn out the way I imagined it. I mean, I’ve been trying to make my own air-dry modeling clay using baking soda, corn starch and water, but I probably used way too much water. I ordered new baking soda and will try again next week. This did give me an excuse to order new essential oils too, as those are sold at the same store.

That’s it for now. What have you been grateful for?

Dancing Through Darkness #WotW

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Okay, I’m supposed to be in bed already, but I can’t sleep. What better thing there is to do than write a blog post, right? I’m joining in with Anne’s Word of the Week for the first time in forever. The idea is to sum up your week in a word or phrase.

This week wasn’t the best mental health-wise. Yesterday, I landed in a full-on crisis. I didn’t express my dark thoughts right then, but I did to my staff this evening. It isn’t the first time I’ve experienced acute suicidality, but the intrusive thoughts and images I get then shock me everytime. Thankfully, I was able to calm down after taking a PRN lorazepam. I will be calling my nurse practitioner at mental health tomorrow, since my community psychiatric nurse is on vacation. I know I’m not clinically depressed (yet), but I do want my treatment team to know about my crisis.

The rest of the week I pretty much saw it coming. On Monday and Tuesday, I was still pretty much in my normal mood. Not euphoric, but not depressed either. In fact, I signed up for the Bout of Books readathon on Tuesday fully intending to spend the better part of the week reading or talking about books. I didn’t. The first day, I got through 23% of Five Feet Apart by Rachael Lippincott. I abandoned the book for the rest of the week though.

Particularly Friday, Saturday and today were hard. I did try to remain active. Like I mentioned several times already this past week, I tried to dance. Today I actually sort of succeeded. I also managed slightly more steps and active minutes as recorded by my Fitbit this week than the week before.

I have been trying to be more mindful of myself this week too. By this I mean I’ve started up meditating again. I use Insight Timer, which has like thousands of free meditations. If meditating becomes a regular habit, and I sure hope it does, I may pay for the premium plan. Honestly, though I was still close to crisis today, the affirmation in one of the meditations I’ve been listening to, helped me.

I also started exploring some ways of getting my eating and ultimately my weight under control. This is where dancing comes in handy again.

To sum it all up, I’m choosing “Dancing Through Darkness” as my phrase for the week. I feel depressed, but I’m also trying to actively do something about it.

How was your week?

Word of the Week linky