No Unwholesome Talk

Posted on by Astrid

“Do not let any unwholesome talk come out of your mouths, but only what is helpful for building others up according to their needs, that it may benefit those who listen.” (Ephesians 4:29 NIV)

I had a very bad anger outburst this afternoon. For a very minor reason, I yelled at and insulted a staff member quite majorly. I told her to leave, which she did, but not just because I told her to. In fact, I’d caused her to get a little teary.

Obviously, I regret my outburst, though initially I didn’t fully see that it was all my responsibility. I mean, I did feel as though this staff member had triggered me. I see now that my anger was extreme and way out of proportion to the situation.

Then, in a collection of journaling prompts, I was pointed to this Bible verse. I didn’t know what it said, so went and looked it up because I find that Paul’s letter to the Ephesians usually appeals to me. There it was. Do not let any unwholesome talk come out of your mouths. Wow!

This does not refer just to no swear words. If it had, I could’ve said I don’t use those. Instead, looking at the second part of the verse, we’re supposed to only use words that build others up. In other words, calling someone names is the exact opposite of what Paul asks us to do here.

I did eventually apologize. Initially, this was a kind of half-hearted apology. Not because I had meant my insult, but because I struggle to prevent this happening again and because, at the time, I didn’t fully see that I alone was responsible for my behavior. I see now. I am praying that, with God’s help, I will learn better anger management strategies.

God, I want to confess that I am a very sinful person. You know this already, but I need to realize that my behavior is wrong. I had a horrible anger outburst and I didn’t even fully acknowledge that it was my fault. Please help me take responsibility for my anger. Please also help me come to You in future situations where I get triggered rather than react in anger. I pray for forgiveness and hope that You will still accept me even though I am not living up to even human expectations, let alone Yours. In Jesus’ name, Amen.

#WeekendCoffeeShare (April 2, 2022)

Posted on by Astrid

Hi everyone on this cold Saturday evening. I am joining #WeekendCoffeeShare today. I’m afraid I just have water or maybe the staff has put some soft drinks in the fridge by now. My favorite soft drink, Dubbelfrisss, wasn’t cold when I had my evening drink about an hour ago. Anyway, let’s have a chat.

If we were having coffee, I’d tell you that I finally have been crafting again today after a week of just watching crafty videos and doing nothing creative at all. That is, I’ve been blogging, which counts too, of course, but I haven’t touched my polymer clay or jewelry-making supplies or macrame cords or anything.

Today, I finally did a couple of pieces for the mobile for the baby my sister is expecting. I also finished the polymer clay hedgehog I’d started on about a month ago. At first, I was disappointed, because I’d used up all of a particular color for its body and now it was nowhere to be found, so I couldn’t do the ears in the same color. Turns out real hedgehogs also have slightly differently colored ears than their bodies. Besides, I never really meant to be doing a fully realistic sculpture anyway (I can’t).

If we were having coffee, I’d share that the rest of the week was quite meh. I’ve been having tons of plans in my head, but no ability to actually put them into action. Today, I also experienced a ton of flashbacks and internal chaos. Seriously, the discrepancy between my intellectual ability and my emotional immaturity is really getting at me. I find that I can intellectually think of a lot of things that emotionally I cannot handle at all. I’m not sure if this makes sense.

If we were having coffee, I’d tell you that I may want to research an autism support method by Colette de Bruin. My assigned home support staff pointed it out to me and said she’s pretty much using the method on me already, but I may benefit from learning about it myself.

If we were having coffee, I’d share that I am very happy with the latest iOS update. I finally was able to do some reading again on my iPhone yesterday, since the update fixed a bug that caused my Braille display to become pretty unresponsive. I usually read with just my Braille display, as I don’t like VoiceOver’s synthetic speech for that.

If we were having coffee, lastly I’d tell you that I have a quiet weekend, because my husband isn’t coming over and I have no other plans. Next week though is going to be busy, especially the weekend. I am going to the nationwide cerebral palsy day with my mother-in-law. I will be attending a workshop on aging with CP in the morning, which I am really looking forward to. In the afternoon, I’ll be attending a yoga class. I may not be able to write a coffee share post then, especially since I’m also supposed to stay up-to-date with the #AtoZChallenge. I’ll be certain to write about it though.

How have you been?

Bath and Body Care Product Making #AtoZChallenge

Posted on by Astrid

Hi everyone and welcome to day two in the #AtoZChallenge. Today, I want to go into one of the creative pursuits I’ve been keeping the longest, even though I no longer really do it much anymore: bath and body care product making.

I started bath and body care product making in 2016 when in the psychiatric hospital. At first, I made all kinds of products, including body lotions. That, I wasn’t too good at, since it requires using both water and oil and specific techniques, including heating the water and keeping it at a certain temperature (70°C if I’m correct) for a while before adding the water to the oil tiny bits at a time. It also requires the use of an emulsifier, since water and oil won’t combine together without one.

Later, I decided to make just body butters, which include just oils, butters and possibly beeswax or another wax if you want to create a vegan alternative.

I created a few body scrubs using sugar or ground coffee, but didn’t like those. Other exfoliants, like jojoba pellets, are extremely expensive. Of course, most store-bought body scrubs use nano beads, but these are bad for the environment. Not that I’ve ever found them sold anywhere anyway.

Since moving to the care facility in 2019, where we have a bathtub, I have also occasionally made bath bombs. A bath bomb is made with two parts sodium bicarbonate (baking soda) and one part citric acid (this is what makes the bath bomb fizz). Some people add cornstarch, but I’ve learned this will get moldy easily and I don’t personally see the advantage. Since both baking soda and citric acid are dry ingredients, you’ll need a spray bottle of demineralized water to help the ingredients stick together. Then you will of course need to add a colorant, fragrance oil and possibly other additives such as Epsom salt, almond oil, etc. The hardest part I’ve found was molding the bath bomb neatly. Of course, I chose a heart-shaped mold, not just a simple ball or egg.

Eventually, I discovered that the main aspect I like about bath and body care product making, is the fact that you can add essential oils or essential oil blends to your products for a nice smell and possibly therapeutic effects (if that’s what you believe in). In 2021, I did my entire #AtoZChallenge on essential oils and aromatherapy, so check back there for information on specific oils.

Gratitude List (April 1, 2022) #TToT

Posted on by Astrid

Hi everyone. I really want to write another blog post tonight. Specifically, I want to write a gratitude post. As usual, I’m joining Ten Things of Thankful. Let me share those things I’ve been grateful for in the past week.

1. A good appt with the behavior specialist. Behavior specialists, actually, as the one I used to see was a temp and she was introducing me to the new one. We had a good talk.

2. The best Asian food ever gone even better. Read: spicier. Like I said last week, a staff was leaving, the same staff who got me the best Asian food ever a few weeks ago. As a goodbye present to me, she promised me another serving of the food. This time though, she got a “mildly spicy” version. Well, according to the Indonesian cooks, at least. It was amazing, but I did get a slight stomachache from it afterwards.

3. Inspiration to write again. I’m now on a six-day streak on my blog and have picked up writing in my diary app, Day One, too.

4. Great blog stats and engagement. Okay, I feel as though the majority of the page views I got on the day I got nearly 300 this past week, were probably bots, but oh well. I am also getting lots of engagement, which is awesome.

5. Paracetamol. I have been having some back pain lately, but thankfully, it responds well to paracetamol.

6. The new iOS version. It actually finally solved the major Braille-related bug that had been in existence for literally months.

7. My new headphones. I finally decided to order new noise canceling headphones and decided to go for the Bose QuietComfort 45 ones. At first, I was a little disappointed, because the manual said they could be used with an audio cable while on (so that I can use noise canceling). Apparently not. However, other than that and the fact that its spoken announcements are in English only, it’s quite good.

8. The fact that I’m still overweight rather than obese despite a lot of “cheat” meals and treats over the past week. In fact, I only gained 0.1kg.

9. The fact that it wasn’t raining or snowing when I went to the day center this afternoon (it had been snowing and raining a lot during the rest of the day). Plus the fact that, even though the daytime temperature didn’t get above 4°C today, it didn’t even feel all that cold thanks to my winter coat.

10. The fact that a fellow client made me laugh with his April Fools joke this evening. The staff did check whether I was okay with a little prank and I said I was. In the end, I didn’t really understand the prank, but we both laughed at the verbal joke about April Fools that went along with it.

What are you grateful for?

Artistic Self-Discovery: Am I Even an Artist? #AtoZChallenge

Posted on by Astrid

Hi and welcome to day one in the #AtoZChallenge. I have been uncertain as to what topic to choose for my first post. Last year, I chose to use my letter A post as an opportunity to introduce my topic. Today, I’m doing something similar. My topic this year is creative self-discovery and self-expression. A question that’s always been on my mind though, is: “Am I even an artist?”

When I joined some groups for creatives and artists on Facebook, I initially wasn’t sure whether they would be for just visual artists like those using paint or drawing as their primary medium. I mean, even “mixed-media” art usually includes some aspect of visual art. Thankfully, the members of most groups have been able to reassure me that, as a polymer clay hobbyist, I am more than welcome.

Then comes the question of quality. I mean, does my work have to meet certain standards to be considered art. I am still in many ways a beginner and, in all of the creative pursuits I have made, never got beyond that level, if I even got beyond the level of a 3-year-old.
Then I am reminded of Julia Cameron’s words in The Artist’s Way that you need to be a bad artist before you can be a good artist. In other words, no-one really is naturally good at art. She in fact seems to go as far as to say everyone has the ability to be creative within them.

The thing is, I am both rather impatient and perfectionistic. This combination means I feel easily discouraged by negative feedback on my first attempts at something creative. I really want to skip the “bad artist” phase and, especially when I know other people move on from that stage more quickly than I do, I feel disappointed in myself.

That being said, I realize now there is a reason Julia Cameron says you shouldn’t show your Morning Pages to anyone and shouldn’t even reread them yourself until week eight of the program. Wanting to share your creativity too soon, may lead to negative feedback and this in turn may lead, as it has with me, to discouragement.

I am learning this as I start to explore macrame, first learning the knots quite well before I’ll even think of showing anything online. That way, I am still trying, might still fail, but the chances are less that I’ll make a fool out of myself on Facebook.

To get back to the question that sparked this post: yes, I am am artist, just like I am indeed a writer even though it’s been nearly seven years since that one little piece I got published in an anthology. And even if I had nothing published in print, I’d still be a writer. Similarly, just because I don’t sell my artistic creations, doesn’t mean I’m not an artist.

Report Cards and Progress Reports

Posted on by Astrid

Today’s topic for Throwback Thursday is report cards and progress reports. I am going to write mostly about traditional report cards in school, not the many psychological reports I had written about me during my childhood and adolescence.

Looking back, I was a good student academically, but it didn’t show on my report cards during elementary school. I attended special education and my teachers didn’t really believe I was more than just average intellectually. In fact, when I had a nationally standardized test in the sixth grade, the school’s principal called my parents in utter disbelief to tell them I had gotten a very high score. My father was like, duh, I told you so.

My behavior did get reported on. Though I had severe social and emotional challenges, I always got average ratings on those things that mattered to the teachers. I remember one day feeling disappointed when my rating on “correct behavior” had been lowered from the previous report card even though as far as I knew I hadn’t made mistakes about addressing the teachers formally.

In high school, I did get actual grades. Not letters here in the Netherlands, but numbers between one (worst) and ten (perfect). In my first year at grammar school, I got a lot of tens. These did get my classmates envious, so sometimes I’d argue for a lower grade. For instance, I had a ten on a drawing theory test and I hadn’t done any of the other drawing assignments because, well, I’m blind. Initially, I got a ten on my report card because that was the only grade I had. My classmates protested and my father and I agreed. Then the grade got lowered to an eight, reflecting the fact that I’d gotten a ten on that test and a six (barely passing) on drawing in general just for participating in the class.

Once in my third year, I was rebelling and hardly studying at all, so I did earn a few ones. One time, in my fifth year in high school (eleventh grade), I got a one in French for not doing an assignment because I’d had to do it with a partner and I hadn’t been able to find a partner, because I’d felt too anxious to ask anyone.

I wasn’t really punished harshly for failing grades or rewarded for good grades, but I did know I was expected to excel. Often, my parents made me do extra work, particularly before I was mainstreamed at grammar school.

My best subjects in elementary school were math and geography. In high school, those changed to languages, because high school math requires much more non-verbal intelligence and insight, something I don’t have. My best grade on my final high school exam was in English.

Now, as an adult, I do have an English-language blog, but I don’t think I learned to blog in high school. After all, despite the fact that grammar school is the highest level high school, I really wasn’t all that good at English after graduation. Other than English, I don’t use anything I learned in school really. I mean, during my year in special ed secondary school, textile arts was my worst subject and now I like to do macrame. Go figure.

Five Things I Take for Granted #5Things

Posted on by Astrid

Yesterday, DrTanya’s topic for the #5Things challenge was things you (sometimes) take for granted. I realize I take a lot of things for granted that I really shouldn’t. Here are just five.

1. My intelligence. I don’t take it as much for granted as I used to when in school, but i still feel that I pretty much consider my high IQ a given. Not only that, but I usually find that I’m surprised when others aren’t as intellectually capable as I am. Of course, I don’t mean my fellow clients at the care facility. In fact, they have taught me quite a lesson in humility.

2. My access to medical care. I don’t take my access to long-term care for granted, because that was a fight, but my basic health insurance coverage, I certainly do take for granted. Of course, it is mandatory here in the Netherlands and even those who don’t pay their premiums can’t be refused insurance for at least six months while the insurance company tries to sort things out with them.

3. A roof over my head. I’ve never been without shelter, although in a sense I’ve often felt “homeless”. In the psychiatric hospital, I knew several ppatients who had no home other than the hospital and who were regularly suspended from the ward into the homeless shelter. In this sense, it is really surprising that I never even considered this would happen to me, since I too for several years had no home other than the hospital. I think this signals how secure I felt, in a sense, at the ward I resided at back then.

4. Electricity. I never had to pay my own electricity bills, at least not directly. I mean, even when my husband and I lived together, my husband paid the electricity bills. As a result, I’m hardly aware of how much energy really costs. My husband did tell me how well we did compared to other households and we were always relatively frugal. Even so, it all seems a bit abstract to me.

5. Access to a computer. I don’t take Internet access for granted, but access to a computer, I certainly do. Even in my early days at the locked psychiatric ward, I had my laptop with me and there was no way anyone could take it from me, regardless of what the rules said about only certain electronics being permitted. Thankfully, my nursing staff did understand.

What things do you take for granted?

I Am Not Alone: Reflections on Being Different As an Enneagram Four

Posted on by Astrid

I have been watching videos about the Enneagram recently. One I watched, talked about the differences between a 5w4 (Enneagram type Five with a strong Four wing) and 4w5. One of the distinctions the YouTuber made was that Fours tend to take pride in their being different, while Fives try to hide their difference. That kind of hit a nerve with me.

I always saw myself as so uniquely different from others that it’s almost impossible to be true. Not just in the “You are unique, just like everybody else” type of sense. In fact, I always thought that I belonged to just a little too many minority groups to be real. I thought that there must not be anyone else in the entire world who could relate to my combination of minority statuses.

At the time, I was about fourteen and just identified as blind and possibly queer. Well, I know quite a lot of blind people who are part of the LGBTQ+ community now.

Then came being autistic, having dissociative identity disorder, my childfree status, etc. My fourteen-year-old self would certainly have believed no-one in the entire world would belong to all of these groups. Well, quite truthfully, I’ve met several people who belong to most if not all of these minority groups. That’s the great thing about the Internet.

About ten years ago, I read something on Tumblr that should’ve struck a chord with me, but didn’t. I read that, if you are white, but belong to a hundred minority groups, you are still white. Of course, the point was to prove that white privilege isn’t negated by other minority statuses. I at the time started writing a list of ways in which I was privileged, but didn’t realize these are also ways in which I am part of the majority. Ways in which I belong to the human mainstream.

Instead, I still focused my attention, aside from that one blog post and acknowledging when I’d reacted out of privilege in safe spaces, on ways in which I’m different from the mainstream. And still I somehow couldn’t believe there were people who genuinely belonged to at least as many minority groups as I did. I still somehow saw myself as the most special person in the world.

Isn’t that a bit grandiose, narcissistic even? In fact, feeling that only a select group of “special” people will understand me, is the only legitimate narcissistic personality disorder trait I have.

The truth is, everyone is special and everyone is unique and everyone has some parts of themselves that ar ordinary at the same time. At the core, no-one is fundamentally different from everyone else. And isn’t that a wonderful thing to realize? After all, it means that, at the core, we all have something in common which connects us to each other. That of course doesn’t mean I need to associate with all seven (eight?) billion people in the world. It just means that there will always be someone out there who can relate to me. Just like there is no-one exactly like me (God created us all individually for a reason, after all), I am not radically different from anyone else (we were all created equal, after all).

Reasons I Think I Want to Stay in My Current Care Home

Posted on by Astrid

Last week, I was discussing my insecurity about living in my current care home with my assigned home staff. I still keep searching for another place to live, even though staff keep reassuring me that I don’t have to leave. Part of the reason for this is probably habit, in that I feel I ought to be looking for another place because that’s always been the case. However, my assigned staff also challenged me to write down a list of reasons I want to stay in my current care home and a list of reasons I may want to leave. Today, I’m going to share my list of reasons I think I want to stay. I’m pretty sure I won’t be sharing my list of reasons I may want to leave, as these are more like things I am hoping to find a solution to within my current care situation. Anyway, here are the reasons I probably want to stay in my current care home.

1. My one-on-one support. Of course, this is government-funded and may be transferable to another care facility, but I do like the fact that my current care team really think my care is important, in that staff shortages won’t easily mean my care will be cut.

2. The fact that I have gotten to know most of my staff. Of course, no-one can guarantee they’ll remain part of my team for the foreseeable future, but if I leave, the whole team will be new at least at first.

3. The fact that my staff help me with activities of daily living. This is a bit of an uncertain thing, as I sort of feel I ought to be able to do more of them independently.

4. The fact that I get day activities in the home and am the only one who does for now. Even though it may be possible to get day activities in my room at another care facility, I might not be the only one. I like the peace and quiet during the day as it is now.

5. The fact that fellow clients hardly make an appeal on me. Most leave me alone most of the time. This is a good thing, but I did put in my other list that I wish to interact with other clients somewhat more than I currently do.

6. My own room with my private bathroom, kitchenette and balcony. Thankfully, shared rooms are no longer in existence within disability services as far as I’m aware, but shared bathrooms definitely are.

7. The weighted blanket the care facility paid for me to sleep under. I mean, seriously, if I were to transfer to a different care agency, I’d lose that too.

8. The Internet access. Pretty much unrestricted, mind you. At least, I haven’t run into any sites that are blocked by the care facility’s WiFi. At least social media and games are allowed. I’m not particularly interested in anything adult content, so haven’t checked that. I can also use the Internet whenever I please, including at 3AM should I so desire (which I occasionally do). I am pretty sure some other care homes would be more restrictive about this.

Overall, looking over this list, I think that, while things aren’t perfect, my care home is pretty good. Actually, I am quite sure it’s pretty much the best I can get.

loopyloulaura

A Letter to Myself Five Years Ago

Posted on by Astrid

Today, I stumbled upon a journaling prompt that asked me to write a letter to myself five years ago. I’m pretty sure I’ve done something similar to this at least a couple of times before. In fact, when I searched this blog for letters, I saw that I’d written A letter explaining my life at the time in early 2020, a letter to my younger self in general in October of 2018 and even a letter from my (then) future self in 2019.

Those who know the timeline of my life, of course, will not be surprised that I am going to pick this prompt anyway, as the “five years ago” part of the prompt is particularly significant. After all, it was weeks before I’d be kicked out of the mental hospital. I am not going to bore you with a timeline of the past five years in this letter. Instead, I’m trying to provide some new insights.

Raalte, March 27, 2022

Dear Astrid,

It is tempting to start this letter with a cliché, such as, “How are you?” However, I know how you are. You are struggling greatly with self-doubt and uncertainty. Fear of abandonment and attachment loss. You’d rather avoid taking the next step in your life, leaving the familiar behind to step into unfamiliar territory. Even though you’d rather not admit it, your psychologist is right that you’re scared of needing to become independent.

I want to let you know I understand. Independence is scary. The unfamiliar, leaving the psychiatric institution to go live with your husband, is even scarier. I understand you’d rather stay with unsupportive people you know, ie. in the psych hospital, than live with a supportive person, ie. your husband, under circumstances you don’t know.

And, to be honest, if I had a choice back when I was you, I’d not have chosen to live with my husband. The thing is, you don’t have a choice. Not yet. But you will, at some point.

Please, for my sake, hold on for a bit. Do what your psychologist tells you, but also stand up for your right to proper day activities and community support. It will be hard, living in the community with your husband. But things will get easier.

I am writing from a care facility. In 2019, I was approved for long-term care based on blindness. I also have extra one-on-one support. Please don’t tell your psychologist all of this, as she’s going to time travel right ahead to me and make sure my funding gets taken away. This is just between you and me, so that you know things will improve. I know they will get worse first, but please do hold on.

Looking to you, I do see that you struggle to let go of the familiar, even when it isn’t good for you. I sometimes think I face the opposite issue, chasing perfection rather than being content with what I have now. It’s a true balancing act.

I also want to let you know that, as much as you’d like to make your own choices, being allowed to make those choices also can be a burden. The fact that, now, I am free to stay in the care facility for as long as I want or leave when I want, is quite scary, I must admit. In that sense, your psychologist was probably right about my dependent personality disorder features.

I wish I could tell you that your attachment issues would be over by now. They aren’t. I’m still struggling with them, worse even than I was when I was you. However, I do have a supportive mental health treatment team now,for which I’m forever grateful.

In summary, please do believe in yourself. You have every right to feel that you need more support than your psychologist says you need. You just won’t get it yet. Eventually though, you will.

With love,

Your future self