A Sunny Monday

Posted on by Astrid

Hi all on this beautiful Monday! It’s mid-September but the temperatures rose to 29°C here anyway. Tomorrow we’re supposed to get even hotter weather, with temperatures rising to 34°C in some places in the south of the country.

I went for three walks today. In the morning, my regular day activities staff was in a meeting, so a substitute came. She took me on a long’ish walk. I think we took over half an hour. Then in the afternoon, I took my usual 20-minute walk when the regular staff had returned.

I was originally planning on taking some pictures, but ultimately I didn’t really have the courage. That little voice that says as a blind person I shouldn’t be interested in visual stuff like photographs, was pretty prominent in my mind.

In the evening, I took another longer walk. The staff who took me pointed out that there were some cows real close. I asked her to take a picture with my phone. Both Seeing AI and Envision, my two image description tools on my phone, didn’t get beyond calling it livestock, but my iPhone itself did identify cows in the picture.

Ultimately, I took over 12K steps so far today. This gives me an excuse to take it easy tomorrow, when it’s going to be so hot. I might make a soap then or maybe I’ll try out the matcha green tea in a smoothie. I doubt I’m going to try it as regular tea, as I’ve heard it tastes pretty bitter then.

I may also visit the sensory garden attached to the day center. I went there some weeks ago and loved smelling the herbs. There’s a birdcage there too, although at the time the birds didn’t make a sound.

I may try to take some pictures myself. What do you think? As a blind person, should I be interested in pictures, and if so, is it worth it if I try to take them myself? I mean, would you like to see more pictures on this blog even if they’re not good?

The Ordinary Moments

My Bucket List

Posted on by Astrid

Carol anne over at Therapy Bits did a blog post detailing her bucket list. It reminded me that, in May of 2018, I did one as well on my old blog. It was based on a prompt from an app I have on my iPhone that asked me to list 25 goals I have for the next 25 years. In 25 years, I’ll be 59 and hopefully still alive and well. However, this list is going to detail the things I want to accomplish in life as a whole. After all, my paternal grandma, who died shortly before I wrote that post, taught me by example that a lot can still be accomplished after 60. I’m not aiming for a particular number of items this time.

1. Write my autobiography. This was #2 (after finding suitable day activities) on the original list. I still haven’t gotten down to it, but I really want to.

2. Get published some more. I have been saying for the past five years that the one piece I got published in an anthology in 2015 makes me a writer, but I really want to get published more. Note to self: get to writing that piece for the Chicken Soup book.

3. Travel to the United States. I really want to visit some people who live there, but I also definitely want to enjoy the scenery.

4. Visit Ireland. My husband traveled to Ireland with his Dad when we’d been dating only for a short while. I’d love to see the country, eat at the high-quality vegan restaurant in Dublin my husband ate at and meet carol anne, who lives in Ireland.

5. Visit Poland. Emilia from My Inner MishMash lives there, so it’d be cool to meet her. However, it’s also cool to visit because my husband knows some Polish.

6. Stay at an all-inclusive resort. I don’t care for tropical destinations. All I want is to swim and eat as much as I want, even if it’s in my own country.

7. Get a guide dog. Okay, this is unlikely if I’m going to stay in the care facility, but one can dream, right?

8. Take some more distance learning college classes. I would still like to enroll at the Open University again. I’d also like to do some education courses, which would be through a commercial college as the OU doesn’t offer that program.

9. Take some in-person college classes. This is going to take some years, as those under 50 certainly can’t attend individual college classes without a prior college degree. I’m not sure the higher education for older people program still exists even.

10. Take a writing course. I have been looking at Writer’s Digest and other writing schools, but so far they’re way too expensive for me.

11. Do some volunteering. I’d love to someday do some volunteer work in social services or social care. For example, maybe I can be a language buddy to someone learning Dutch as a second language, or work as a volunteer helping people fill out forms for social services etc.

12. Sit on the client council for my care facility.

13. Join a gym, yoga studio or other out-of-the-house exercise place. I intended on doing this before COVID-19 hit and until there’s a vaccine, it’s likely not an option due to the assistance I need.

14. Keep up with technological advancements. I am pretty proud of myself for having learned to use the iPhone at age 31, but still I’d like to keep up-to-date with new technology for as long as I possibly can.

That’s it really. Other items I had on my list back in 2018 included getting more active, which I already manage, buying a house, which I’ve done too, and staying as healthy as possible. These are not necessarily items for on a bucket list though.

What’s on your bucket list?

Lovin’ Lately (September 11, 2020)

Posted on by Astrid

Hi everyone on this beautiful Friday! How are you all? I’m doing pretty well. I thought I’d share another edition of Lovin’ Lately. As usual, I’m linking up with Friday Favorites.

1. Cold tea. Last Saturday, a staff brought a bag of so-called cold tea. This is a new product from Pickwick (I believe). It’s herbal tea that you add to cold water instead of hot water. The staff brought me the pineapple and lime flavored one.

2. Fragrance oils. I decided for the first time to check out a webshop specializing in fragrance oils for candle and soap making or oil diffusers. I’d heard of this shop before, but never bought anything off it. This time, I ordered two fragrance oils: one pineapple and the other juicy yellow lemon. I got another fragrance oil as a gift. That one isn’t suited for soap or skin or hair care products, but I’ll try if I can diffuse it in my oil diffuser.

3. MyNoise. Emilia over at My Inner MishMash recommended this app (well, she didn’t name it until I asked). Like she says, it’s an app that lets you listen to various soundscapes and you can set the volume for each individual sound within the soundscape. I pretty soon decided to purchase the full version, which has like 150 different sounds. You can also somehow calibrate your own soundscapes or something, but I’m not sure how that works. I’ve so far been listening to a lot of nature-based soundscapes.

4. Soap making recipes. On Monday, I decided to check out YouWish, a Dutch soaping supplies store with a great blog. I really want to get into the soap making craft again. I haven’t yet tried out any of the recipes yet, but will next week. Some use micas, which are powdered colorants. I bought two at the fragrance oil store too.

5. Matcha green tea powder. When searching for more melt and pour soap making recipes, I saw a recipe that uses green tea powder as a colorant and additive. I immediately decided to order some matcha green tea powder. The site said that it’d arrive within a day, but it didn’t. It finally arrived today. I saw on the packaging that besides tea, you can also use this in smoothies. That sounds pretty cool!

What have you been lovin’ lately?

Weird Dreams

Posted on by Astrid

It’s already Thursday here, so I’m technically a day late to join in on Fandango’s Provocative Question. I’ve never joined in on this meme before, but I really liked this week’s question. It is to share the strangest, weirdest dream you can remember.

I already shared about the dream that got me to quit putting sugar in my coffee some months ago. That wasn’t as weird a dream, considering that refined sugar is by some people considered pure poison indeed.

Another weird dream that had an impact on my later life is one I had when I was about seven-years-old. I dreamt that there was a big soccer match between Ajax and Feijenoord, the two main rivaling clubs in the Netherlands and the only ones I’d heard of at the time. I apparently was an Ajax fan and they won. So far, nothing weird, except that I knew nothing about soccer and certainly wasn’t a fan of any club. The weird bit comes now: someone gave me some pills that made me cry, so that everyone would think I was sad and hence supported the “right” club.

As a side note, I lived in Rotterdam at the time, so indeed Feijenoord would’ve been the club to support. I became a wannabe Ajax fan as soon as I learned anything about soccer at all, as my friends at the school for the blind were Ajax fans. This was probably after our move to Apeldoorn though.

Like I said, the dream had an impact on my later life. Indeed, when I went to the school for the blind at age nine, I got a phys ed teacher who looked a lot like the man who’d given me those pills in my dream. I took an instant dislike to him and even though I knew why, I couldn’t help it. He was a pretty strict teacher, so I may’ve disliked him anyway.

What was one of the weirdest dreams you can remember?

Home Sweet Home

Posted on by Astrid

This week, Eugi’s weekly prompt is “Home sweet home”. I’ve never participated in this prompt before, but I thought I’d now.

Two weeks from now, I’ll be living in the care facility one year. It feels closer to home than any of the homes and facilities I’ve lived in before did. That feels weird. My parents’ house felt like home, but that’s just because I knew nothing else. My parents felt as safe as possible, but again that was because I knew nothing else.

Then I went into the training home. That was temporary, as you were supposed to live there for at most two years while training for independent living. That’s what I did eighteen months later. I cried my eyes out the first day, in front of my mother, who got angry with me.

It felt horrible to know that this was it forever. I mean, for at least the duration of my university studies, so four years, I’d live there. Then I’d live in a rented house on my own. It completely overwhelmed me.

As regular readers know, it didn’t last. Three months in, I landed in a mental crisis and was hospitalized. Though I stayed in the psych hospital for 9 1/2 years total and for over four years on one ward, it never felt like home. I knew it was temporary, after all.

And then I got kicked out. I lived with my husband in our rented house in the tiny village for 2 1/2 years. Even though I got by okay, it never felt good.

And now I’m here. I got that overwhelming feeling that this is it forever in the first weeks too, but this time, it was good.

I struggle to believe that this is not yet another temporary living arrangement or one in which I cannot cope. I act in and out a lot, probably to somehow “prove” that I’m not suited to this home. That I’m not suited to any home in the world. That there is no home sweet home for me.

Yet my staff so far say that I can stay here for the rest of my life. That, too, feels kind of overwhelming, but like I said, in a good way.

I also of course have my and my husband’s home in Lobith. That one still feels a bit odd to me. I never really lived in it, since we bought it two days after I moved into the care facility. In fact, I struggle to consider it my house too. When I write about it, I often write that it’s my husband’s house, then correct myself and add “and my”. I want to keep a connection to that house too, but it doesn’t feel like home.

Monday’s Music Moves Me (September 7, 2020): Truck Driver Songs

Posted on by Astrid

Hi everyone on this mixed Monday, Labor Day in the United States. It isn’t here, as Labor Day in Europe is May 1. I’m really uninspired to write, but still want to get something onto the blog. For this reason, I’m for the first time in forever participating in Monday’s Music Moves Me. The theme is a freebie, but I’m uninspired for a topic too, so thought I’d choose Labor Day anyway. Since my husband is a truck driver, I then thought to share some songs celebrating the labor of trucking. Here goes.

This would absolutely never happen to my husband. He is an excellent truck driver. That is, sometimes the transport planners send him down an impossible route. He had that happen today. Thankfully, he flat out refused to go there.

This doesn’t happen to my husband either, as nowadays truck drivers don’t have to change the tires on their trucks. I love this song though. My husband introduced me to Tom Astor before he was a truck driver himself. I enjoy his songs more now than does my husband.

Okay, it gets boring. This doesn’t happen to my husband either, as he’s a national driver, which in the Netherlands means he gets home at night. Dave Dudley was introduced to me through Truck Stop, a German country band whose members admire him. I even reckon Dave Dudley is more popular, relatively speaking, in Hamburg than in the United States.

That’s it for now. I’m off to bed soon. Have a great evening or night.

#WeekendCoffeeShare (September 6, 2020)

Posted on by Astrid

Welcome to another Sunday and another edition of my #WeekendCoffeeShare. It’s past 8PM here, so I’ve had all my coffee for today. Still, if you’d like a virtual cuppa, that’s fine with me. We also have two flavors of Crystal Clear soft drink, neither of which I like, in the fridge, as well as my favorite Dubbelfrisss: apple and peach. Let’s have a drink and let’s catch up.

If we were having coffee, I would tell you that I’m still a bit tired. Like I said on Friday, I was sick on Thursday with diarrhea, nausea and a low-grade fever. Thankfully, the fever was gone by Thursday evening and so far hasn’t returned (yes, I did get it checked). However, I’m still very tired. I wasn’t yesterday. It could be a delayed case of sleep deprivation, as Friday night I got only a few hours of sleep.

If we were having coffee, I would share that yesterday, we had another online meeting of the cerebral palsy charity’s chapter in my province. It wasn’t as eye-opening as the one we had in July, but it definitely was interesting. We discussed whether COVID-19 has a more severe impact on CP folk than on the general population – the consensus was that, unless you have co-occurring breathing issues, it doesn’t. Then we discussed fear of suffocating and the reasons for our CP. Some of the participants were oxygen-deprived at birth. Some were not (like me) and some had no idea. From there, we discussed whether it’s useful to have access to your birth-related medical information, since CP occurs before, during or shortly after birth. Overall, I loved connecting to other people. In October, the CP charity will organize some online activities in place of the CP day that would’ve taken place on October 31 if not for the coronavirus crisis.

If we were having coffee, I would tell you that I miss my husband. Like I said on Friday, he couldn’t take the risk of coming by. I really hope we’ll be able to see each other next week.

If we were having coffee, I would tell you that there were quite a few new staff, student staff and people orienting at becoming staff at my home this past week. It was a little chaotic sometimes, because the staff need to explain a lot to these new people.

If we were having coffee, I would share that I had ice cream for dessert yesterday and today. There was hardly any custard and no flavored yoghurt, so I used that as an excuse. I could’ve eaten plain yoghurt of course, but didn’t. I loved the ice cream!

What’s been going on in your life?

COVID-19 Reality Check: It’s Still Not Over

Posted on by Astrid

So like I said earlier today, I had a low-grade fever yesterday. I didn’t think much of it. I guess the reality that COVID-19 is far from over yet, hasn’t hit home yet. My husband was immediately worried. I may’ve worried him too much by my wording. I mean, there’s a word for a low-grade fever that I should have used, but I said I had a slight fever instead.

I asked my husband whether he could come tomorrow, now that I no longer have a fever. He said no way and got a little annoyed with me for even raising the issue again. He said if I do have COVID-19 and infect him and then his father, my father-in-law could die. Or if I do develop symptoms again when at my husband’s and my house in Lobith, I won’t be allowed to come back to the care facility. I understand, but it’s hard.

At the beginning of the COVID-19 pandemic having hit the Netherlands, I was somewhat optimistic about its progress. I mean, I predicted that, by September 2020, vacations would still be discouraged but the virus would pretty much have left anyway. It hasn’t.

Then in mid-May, life more or less went back to normal within the care facility for me. At the end of June, the restrictions on visitors were practically lifted altogether. I mean, I’m supposed to call the facility after having been in Lobith to make sure I’m still symptom-free and so is the care home, but I don’t.

In early August, my mother-in-law came by and we went to sit outside of a restaurant for a cup of coffee. No-one asked for our contact details or checked that we met the 1.5m distance requirement. I later heard the rules were made stricter again at the end of that week, but I still am not seeing much of a difference.

My care facility went mostly back to normal over the summer. I mean, the home a floor below me got infected with COVID-19 in late March. After that, staff were not allowed to work on multiple units and the night staff were to keep their distance as much as possible. After all other homes stayed clear, staff are now allowed to work on multiple units again, even in the same day. Staff, except for the night staff, never stopped hugging clients or holding their hand. Some staff wear face masks some of the time. Most don’t.

My husband commented earlier this evening on terraces being packed full of people in Elten, Lobith’s neighboring town across the German border. He sarcasttically wondered whether they had the vaccine already. They don’t.

My husband is scared. He may be more cautious than most, or at least than me. That’s a good thing though. He wants to protect himself and his loved ones. I understand.

Meanwhile, I want to go back to normal – the old normal. I saw a writing prompts book on coronavirus today in Apple books and decided to get it, even though in my mind, COVID-19 was in March, not September. Yet it is.

Mama’s Losin’ It

PoCoLo

Gratitude List (September 4, 2020) #TToT

Posted on by Astrid

Hi all on this fine Friday. How are you doing? I’m a bit tired, but want to write anyway. Today, I’m joining Ten Things of Thankful (#TToT) for a gratitude list. It’s been a while. Here goes.

1. Hamburgers! On Saturday, my husband took me to our house and we had hamburgers for dinner. I loved them, even though they’d come from the freezer.

2. Reading. At the beginning of the week, I did a lot of reading and had a lot of fun with it. I slowed down a bit (or a lot) as the week progressed, but am hoping to get some reading done over the week-end.

3. Steptember. I started the charity physical activity event for cerebral palsy on Tuesday. On both Tuesday and Wednesday, I got my 10K steps in. I also collected more than twice the money I’d hoped for already.

4. Going to the marketplace. On Wednesday, my staff took me to the marketplace. We bought chicken and fish for lunch and I bought a lot of candy. I particularly loved the chicken!

5. Paracetamol and rest. The next day, I was ill with a low-grade fever, nausea and diarrhea. It’s probably because I ate too much stuff on Wednesday. Thankfully, paracetamol helped some and so did resting.

6. Soothing music and blankets. I’ve been loving relaxing in my bed with a calming music playlist on on Spotify. I’ve also been loving being able to have blankets on my bed again without it being too hot.

7. Talking to my husband. He most likely won’t come by this week-end because of my fever, but I loved talking to him nonetheless.

8. Feeling better both physically and mentally. I’m slightly depressed and tired still, but the sickness has gone and I don’t have a fever anymore. That’s good, because otherwise I may’ve needed to be tested for COVID-19.

9. My staff. A staff I can’t really get along with well, is leaving at the end of the month. She’s going for early retirement, so really I should be happy. I wasn’t at first, because I’d gotten it in my head that she was leaving because of me. Thankfully that’s not the reason. I had a meltdown on Wednesday because of it and this staff tried to comfort me.

10. Okay weather. Yesterday, it was raining all day, but I was ill anyway. The rest of the week has been okay: not too cold or windy and mostly dry.

What have you been grateful for lately?

#IWSG: Choose One Author

Posted on by Astrid

IWSG

It’s the first Wednesday of the month again. Oh my, can you believe we’re already two-thirds through 2020? I can’t. In any case, the first Wednesday of the month is the #IWSG posting day.

I haven’t been doing as well as I’d hoped in the writing department over the month of August. Yes, I did post to this blog several times a week each week. I remember my husband at one point, when I was in the mental hospital and particularly lethargic, encouraged me to write one blog post each week. It’s been forever since I last struggled with that, but still, I want more.

I saw a few weeks ago that Chicken Soup for the Soul have a book coming out about tough times because of the COVID-19 lockdown. I thought of submitting a story about my husband’s and my forced lack of seeing each other for the first three months of quarantine. Still, I feel pretty insecure and fear rejection. I know, as a writer, rejection is part of the business and if you don’t try, you won’t succeed at all. I however struggle not to take rejection personally. I know that Chicken Soup just won’t notify you if you’ve been rejected, but still. The deadline is October 31, so I still have time.

Now on to the optional question. This month’s question is: if you could choose one author, living or dead, to be your beta partner, who would it be and why? This is a little hard, as I’m not a book writer, so really I’d have to go with someone to critique my blog. I would however still really like to at least write and hopefully (self-)publish my memoir. For this reason, I’m choosing foster care memoirist Cathy Glass. She wouldn’t really be my beta partner – more my writing mentor. Although I must say I’d love to beta read her memoirs too.

In addition to memoirs, she also writes thrillers under the name of Lisa Stone. I’d really love her to teach me how to write fiction.

How about you? Would you like an author to be your writing mentor or beta partner?