#WeekendCoffeeShare (September 6, 2020)

Welcome to another Sunday and another edition of my #WeekendCoffeeShare. It’s past 8PM here, so I’ve had all my coffee for today. Still, if you’d like a virtual cuppa, that’s fine with me. We also have two flavors of Crystal Clear soft drink, neither of which I like, in the fridge, as well as my favorite Dubbelfrisss: apple and peach. Let’s have a drink and let’s catch up.

If we were having coffee, I would tell you that I’m still a bit tired. Like I said on Friday, I was sick on Thursday with diarrhea, nausea and a low-grade fever. Thankfully, the fever was gone by Thursday evening and so far hasn’t returned (yes, I did get it checked). However, I’m still very tired. I wasn’t yesterday. It could be a delayed case of sleep deprivation, as Friday night I got only a few hours of sleep.

If we were having coffee, I would share that yesterday, we had another online meeting of the cerebral palsy charity’s chapter in my province. It wasn’t as eye-opening as the one we had in July, but it definitely was interesting. We discussed whether COVID-19 has a more severe impact on CP folk than on the general population – the consensus was that, unless you have co-occurring breathing issues, it doesn’t. Then we discussed fear of suffocating and the reasons for our CP. Some of the participants were oxygen-deprived at birth. Some were not (like me) and some had no idea. From there, we discussed whether it’s useful to have access to your birth-related medical information, since CP occurs before, during or shortly after birth. Overall, I loved connecting to other people. In October, the CP charity will organize some online activities in place of the CP day that would’ve taken place on October 31 if not for the coronavirus crisis.

If we were having coffee, I would tell you that I miss my husband. Like I said on Friday, he couldn’t take the risk of coming by. I really hope we’ll be able to see each other next week.

If we were having coffee, I would tell you that there were quite a few new staff, student staff and people orienting at becoming staff at my home this past week. It was a little chaotic sometimes, because the staff need to explain a lot to these new people.

If we were having coffee, I would share that I had ice cream for dessert yesterday and today. There was hardly any custard and no flavored yoghurt, so I used that as an excuse. I could’ve eaten plain yoghurt of course, but didn’t. I loved the ice cream!

What’s been going on in your life?

Gratitude List (September 4, 2020) #TToT

Hi all on this fine Friday. How are you doing? I’m a bit tired, but want to write anyway. Today, I’m joining Ten Things of Thankful (#TToT) for a gratitude list. It’s been a while. Here goes.

1. Hamburgers! On Saturday, my husband took me to our house and we had hamburgers for dinner. I loved them, even though they’d come from the freezer.

2. Reading. At the beginning of the week, I did a lot of reading and had a lot of fun with it. I slowed down a bit (or a lot) as the week progressed, but am hoping to get some reading done over the week-end.

3. Steptember. I started the charity physical activity event for cerebral palsy on Tuesday. On both Tuesday and Wednesday, I got my 10K steps in. I also collected more than twice the money I’d hoped for already.

4. Going to the marketplace. On Wednesday, my staff took me to the marketplace. We bought chicken and fish for lunch and I bought a lot of candy. I particularly loved the chicken!

5. Paracetamol and rest. The next day, I was ill with a low-grade fever, nausea and diarrhea. It’s probably because I ate too much stuff on Wednesday. Thankfully, paracetamol helped some and so did resting.

6. Soothing music and blankets. I’ve been loving relaxing in my bed with a calming music playlist on on Spotify. I’ve also been loving being able to have blankets on my bed again without it being too hot.

7. Talking to my husband. He most likely won’t come by this week-end because of my fever, but I loved talking to him nonetheless.

8. Feeling better both physically and mentally. I’m slightly depressed and tired still, but the sickness has gone and I don’t have a fever anymore. That’s good, because otherwise I may’ve needed to be tested for COVID-19.

9. My staff. A staff I can’t really get along with well, is leaving at the end of the month. She’s going for early retirement, so really I should be happy. I wasn’t at first, because I’d gotten it in my head that she was leaving because of me. Thankfully that’s not the reason. I had a meltdown on Wednesday because of it and this staff tried to comfort me.

10. Okay weather. Yesterday, it was raining all day, but I was ill anyway. The rest of the week has been okay: not too cold or windy and mostly dry.

What have you been grateful for lately?

Gratitude List (December 21, 2018)

It’s Friday again, yay! Last week I skipped my gratitude list post. Not because I didn’t have much to be thankful for, but because I wanted to write some other things and was feeling sick with a cold. Today, I’m taking my chance to do the post. I have a lot to be thankful for this past week. Here goes.

1. The wonderful Christmas box I got last week. I already wrote about it last week, but I want to mention it here too. I particularly love Snowflake, the stuffed unicorn. I also loved the fleece blanket I got in my package. I sat covered in it on Saturday when my cold was at its worst.

2. My cold being almost over. I am still a little sniffy, but with how bad my cold felt last Saturday, I”m truly grateful it’s much better.

3. My staff being well again. My support coordinator was off sick for a few weeks, but late last week, she returned to work. She first visited me on Wednesday. My nurse practitioner, who was off sick even longer, returned to work this week too. I had a good appoitnment with him.

4. A Christmas meal at day activities. On Tuesday, we had a delicious lunch. It was a little chaotic, but good too.

5. Horseback riding again. It was rainy yesterday, but thankfully we could still go on an outdoors ride.

6. Eating delicious tuna macaroni with my mother-in-law. She went horseback riding with me and after that, I ate at her house. It was just the two of us, so I could decide what we had.

7. The application for long-term care being mailed. It was sent out yesterday. It was a little hard reading the application, because my staff had to fill out how impaired I am in various areas on a 0-3 rating scale. I got quite a few 3s.

8. My husband being supportive. He showed his support of me even when I disclosed some rather embarrassing aspects of the long-term care application (ie. The fact that I am quite impaired in my personal care). He knows to some extent, of course, but still it’s a little awkward to admit.

9. All the Christmas decorations at day activities and some at home too. I didn’t use to like those. In fact, the first Christmas of my psychiatric institutionalization, I even pulled them all off the wall on my ward. Now I like a little Christmassy cheer.

10. The weighted blanket a staff made for my day activities group. She gave it to us a few weeks ago and I may’ve mentiooned it before, but then I mention it one more time. I love being in the sensory room and lying under it.

11. Painkillers. I had bad shoulder pain last Tuesday and still it’s not completely gone. I also had a headache today. However, ibuprofen and paracetamol worked well respectively.

12. Christmas songs. I can’t get some out of my head, but it’s lovely. This year is the first year I can appreciate Christmas.

This list was a bit random in its order, but I can’t seem to reorder the items on my phone and am too lazy to open my computer. I hope you enjoyed reading it anyway. I looked forward to linking up with #TToT, but saw it had come to a close for 2018 last week. The linky also is no longer open, but I hope some of those who visit me from #TToT regularly, will leave me a comment anyway.