Gratitude: Big Things I Am Grateful For Right Now #AtoZChallenge

Posted on by Astrid

Hi everyone and welcome to my letter G post in the #AtoZChallenge. Today, I want to share what I’m grateful for. Specifically, I want to share the bigger, more important things in life I’m grateful for right now. Here goes.

First is my relative health. I am at a healthy weight, am able to walk about 5km at a time on good days and generally sleep about eight hours a night. I haven’t felt truly well physically in, well, forever, but I do feel okay.

Next up is food. I don’t have to go hungry. In fact, even though the meal delivery service meals are yucky most of the time, my breakfasts and lunches are good. And the meal delivery service meals are okay in terms of nutritional requirements. Moreover, when I really can’t stand the food we get here, I can afford to buy myself something else.

Finances are up next. When answering some questions for a parody voting guide back in the fall, one of them was whether you have a good income. Even though I’m on benefits, I answered “Yes”. I don’t have to worry about money generally.

Next is the fact that I have a roof over my head. Two, in fact, if counting my and my spouse’s house in Lobith.

Then, of course, I need to mention my spouse. Our relationship has survived many hurdles, so I’m pretty sure we’ll always be soulmates.

With my spouse come my in-laws. I am so lucky to have them! My mother-in-law is my informal representative and my family contact for the care home.

These are just a few of the things I’m grateful for. I could go on to mention the fact that I have a nice bed to sleep in, technology that allows me to communicate with the world and spend my leisure time, and so on and so forth. But instead, I’ll leave you with just this: right now, I’m grateful to be alive.

The Wednesday HodgePodge (July 12, 2023)

Posted on by Astrid

Hi everyone. It’s time for the Wednesday HodgePodge once again. Here goes.

1. Is your life simple? Elaborate.
My life is both boringly simple and insanely chaotic at the same time and like you might’ve guessed, neither is in a good way. It is simple in part because it’s so chaotic. I mean, if I get a new-to-me staff member each day, I don’t get to try exciting activities with them that require me to explain a lot, such as crafting, because I cannot be sure I’ll ever see them again.

2. What simple pleasure are you currently enjoying?
I’ve been enjoying listening to calming music on my music pillow a lot.

3. Travel by plane or go on a cruise? walk or ride a bike? swim or ski? ocean or mountains?
I’ve never been on a cruise and don’t think it appeals to me, so I’ll choose traveling by plane. Walk for sure. Swim! Not that I’ve ever been skiing but I hate snow and the cold. Oh, that last one is hard, but I’ll pick the mountains.

4. What’s the last thing you bought online that you really loved?
I haven’t done a ton of online shopping lately, honestly, because package delivery to the institution is quite complicated and staff at my home have a policy of opening packages before they get to me to check for stuff they deem inappropriate. I solve the problem by getting my online orders delivered to my in-laws, but this means I can get my stuff here at most once a week when my spouse visits me.

Anyway, to answer the question, I think my AirPods Pro 2. I’ve had them for about six weeks now and they replaced the original AirPods Pro that I’d had for two years but that had started to develop an annoying high-pitched beep.

5. What’s your “back in my day we__________” story?
Even though I’m only 37, I am an oldie compared to most of my staff, who are in their early to mid twenties. As a result, most of my “back in my day” stories probably revolve around relatively small changes to technology. For example, my spouse and I met on a message board and most staff never used those.

Compared to the other residents though, I’m young, as all others are in their mid fifties to early sixties. I find I’m often confused when other residents talk about what life was like “back then”.

6. Insert your own random thought here.
I am still struggling. In fact, last Monday, I hit another low point. My mother-in-law E-mailed the behavior specialist once again, but she’s on vacation until the 31st. I’m pretty hopeless right now.

Technology and Its Usefulness for People With Intellectual and Developmental Disabilities #AtoZChallenge

Posted on by Astrid

Hi everyone. I am back with my letter T post in the #AtoZChallenge. Today, I want to talk about technological advances and their usefulness (or lack thereof) for people with intellectual or developmental disabilities.

There exist a myriad of technological devices to presumably help people with intellectual or developmental disabilities. Some include alternative and augmentative communication (AAC) devices. While these are not for everyone, some people definitely benefit from them. Some of these technologies require a special device, but there is an increasing number of AAC apps available for conventional smartphones and tablets.

Other technologies are used to help people with more severe intellectual or developmental disabilities have different sensory experiences. For example, there’s a thing called the CRDL (pronounced “cradle”), which can be used by a disabled person along with their caregiver. When the device is touched in various ways, it produces different sounds and if I’m correct even vibrations.

Other pieces of technology merely help a person to relax, such as the InmuRelax, a sort of pillow which produces a soundscape when held in order to calm people during the night. Having used the Inmu a few times, I can say I prefer my music pillow, which is far cheaper.

Then there are of course interactive “pets”. These are not stuffed animals and should not be treated like toys, so people with severe or profound intellectual disabilities are probably not suited to handle them. Rather, they are electronics with some fur around them to make them look like real-life cats or (small) dogs, which people can then stroke or cuddle with gently. These interactive animals are mostly intended for people suffering from early to mid-stage dementia rather than for the intellectually disabled, although I’ve seen them being well handled by more capable intellectually disabled people who realize these are like pets, not toys.

Lastly, there currently is a research project going on with “social robots” in long-term care for people with intellectual disabilities. These robots could be programmed to, for instance, remind clients to take their meds, do certain tasks, or they could even ask them questions. It is kind of intended that the robots would become a “buddy” to the intellectually disabled person. I honestly cringe at the idea. Not the reminders or even if the robot woke me up with a cheery “Good morning, Astrid, what would you like for breakfast?”. I am reminded of a time my psychologist, back in like 2013, asked me whether I was okay with a robot doing my morning routine. When I said “Hell, no!”, she saw this as a sign of dependence. I currently start my day on my own anyway, so whether it’s my vibrating, beeping Apple Watch waking me up or a robot, I don’t care. And as for the reminders, I’ve actually thought about asking my staff to help me learn to use a day scheduling app. However, the cringe-worthy thing for me is the “buddy” part. Yes, I know long-term care needs to be cut, but a robot isn’t going to replace human interaction if you ask me.

First Week With My Apple Watch

Posted on by Astrid

Hi everyone. I’m not sure whether this post is going to be a tech post or a health post or both, as I want to write about my first impressions of using my Apple Watch. I’m putting it under the “Tech” category, but sharing some of my health stats just so it doesn’t get boring. Oh wait, maybe my health stats are boring too. Oh well.

I got my Apple Watch series 7 on Monday last week, but didn’t get to actually use it until Tuesday evening, because then I got its case and screen protector. I know many people don’t use anything to protect their Apple Watches, but I’m happy I got a sturdy case and a glass screen protector, because I’ve bumped my watch against a wall, chair or table too many times to count already.

I familiarized myself with the use of the Apple Watch with VoiceOver first by reading Apple’s own support page on the topic as well as listening to the relevant podcasts on AppleVis. It’s sad that the Apple Watch user guides on there are all podcasts and none are in text format, because I process information better through my Braille display. One thing both the Apple support site and AppleVis say, is that you need to swipe with two fingers rather than one in order to scroll. I have found this to be incorrect. Either that or I’m doing something wrong all along, but swiping with two fingers does something really weird for me.

I prefer to change most of my settings in my iPhone’s Watch app rather than on the Apple Watch itself, because I do find the screen of the Apple Watch a little hard to navigate. I have chosen the “California” clock face, which is really cool.

I also read most of my stats in the iPhone’s Health app rather than on the watch itself. The reason is the fact that, firstly, they are all in one place there and, secondly, the Health app is easier to navigate than the apps on my watch. I might need some getting used to with, for instance, the heartrate app on my watch.

Most people who have an Apple Watch or know about it, are probably familiar with the activity rings. I did know they exist prior to buying my watch, but didn’t know what they represent. Your Movement ring shows your calories burned during movement relative to your goal. My goal is set to 300, which is slightly higher than the Apple Watch suggested for me (based on the activity my iPhone had recorded, I guess) but still low. The Exercise ring shows your minutes doing exercise, which is any movement equivalent to or more intense than a brisk walk. My goal is set to 20 minutes. Your Standing ring shows the hours you’ve been standing upright and in some motion for at least one minute. My goal is set to 12. The Apple Watch can count steps, but does not display them on the screen unless you install a third-party app for that. It does send your step count to the iPhone’s Health app.

Each week, I believe, you get a report on how you did compared to your goal and a suggested new movement goal for the week. Yesterday, my suggested goal was the same as the one I’d set.

On Apple Watch series 7 (and some older models too, I believe), you can measure your cardio fitness level. This is done using an estimate of the maximum amount of oxygen your body can process during movement (VO2Max). This is estimated during each brisk walk or run outdoors. On Friday, I had my first estimated cardio fitness level result and my VO2max was 22.9. This is “low” or so the watch said and it doesn’t get lower than “low”. As it turned out, at 24, I’d cross the border to “below average”. I managed this once.

I do want to add here that I got in nearly three times as many exercise minutes compared to my goal three times this week. I also reached 200% of my movement goal yesterday, burning 600 active calories. I actually burned off over 2200 calories that day and I hadn’t even been on the elliptical. Yay me.

Technophobia

Posted on by Astrid

Today’s topic for Sadje’s Sunday Poser is tech-phobia. Sadje describes having been encouraged to learn Linux for a while and having had a Macbook sitting around for several months now too, but both intimidate her. She asks us, and specifies that her question may be more relevant to those of us who didn’t grow up with modern tech, whether we’re tech-phobic.

I grew up with computers and got an Internet connection when I was fifteen. That’s relatively late for someone my age, but I attribute that to the fact that I’m blind. After all, my parents did have access to the Internet already, but my first private computer, or rather the Braille display that came with it, didn’t support Internet Explorer.

When I was fifteen, I acquainted myself with the Internet quite quickly, but still stuck to old-fashioned methods and platforms far too long. I mean, I had a DiaryLand diary until 2007, when I finally moved to WordPress. Currently, the fact that for this post, I’m still using the classic editor, is probably proof of the same. I think I’m quite old-fashioned when it comes to technology. I am rarely the type to try out new functions when they first come out, or even when they’ve been out for a while.

With respect to Sadje’s question of being overwhelmed by new technologies, such as smartphones, I can only answer in the affirmative. Of course, again, this is complicated by the fact that I’m blind. I mean, a regular touch screen can’t be worked by a blind person, so it was no wonder I felt hugely incompetent when my husband tried to guide me hands-on to send a text message on his phone when I was about 29.

I was nearly 31 when I decided I wanted to learn to use a smartphone after all. Thankfully, a blind person who was also a qualified computer trainer for the visually impaired lived in my town. He came by the psych hospital to introduce me to the iPhone. He allowed me to use his iPhone to practise on during our introductory lessons, because of course if I couldn’t learn to use an iPhone there was no point in me buying one myself. Eventually, I not only was found to have the skills necessary to learn, but I mastered the use of the iPhone in half of the amount of course time he’d originally thought I’d need.

Since starting to use an iPhone, I have overcome some of my technophobia, but not all of it. Like I said, I still dread the WordPress block editor.

I’m also somewhat anxious about possibly making the transition from touchID to faceID on a phone. I know, I don’t have to, as Apple released the third generation iPhone SE last March, but with the fact that I now have a second generation SE, it just doesn’t quite cut it, honestly. For this reason, I’m really looking forward to the models going to be released this fall. Then again, if I can’t get faceID to work for me, this might be a lot of money gone to waste (unless I find out soon enough and can return the thing).

I’ve also been thinking of buying an Apple watch. That’s less of a risky investment than the faceID iPhone, as firstly they’re less expensive and secondly it’s not as essential (yeah, I consider my phone to be essential now). Both of these pieces of technology though induce my technophobia. But they’re both also really cool.

Sunday Ramble: Technology and the Future

Posted on by Astrid

Hi all. I’m feeling kind of off today. I’m not sure it’s all in my head or I’m suffering with the early symptoms of a mild case of COVID. I haven’t had another lateral flow test, as I don’t feel worse than I did yesterday – in fact, I feel slightly better. On Tuesday, I’ll have a PCR test, so unless I develop really telling symptoms, none of which I have so far, I’ll wait and see until then.

Anyway, for my blog post today, I’m answering E.M.’s Sunday Ramble questions. Her topic for this week is technology and the future. Here are her questions.

1. Are there any applications on your mobile device, tablets, etc. that you cannot live without? Feel free to ramble about them! Maybe we will learn new apps that will become important in our own lives.
I am going with the more unusual apps here, as I doubt I’ll be inspiring anyone else to download Facebook or a web browser (I use Edge even on my iPhone, by the way) if they haven’t already. Apps I truly love on my iPhone include the diary app Day One. I previously reviewed Diarium, another diary app, but have since gone back to using Day One mostly because it allows me to have multiple diaries.

Other apps include MyNoise, an app that allows users to select soundscapes, the task management app Microsoft To Do and Seeing AI, an app that describes images. It most recently guessed my age in a photo to be 44 though. 😒 Admittedly, I pulled a rather odd face in a forced attempt to smile. And just so you know, no, I’m not going to post the photo here. 🙂

2. Do you prefer Apple or Android?
Apple for sure! It is far more advanced with respect to accessibility for the blind.

3. Windows OS or MacOS?
Windows. I tried a Mac some years ago, thinking it’d be easy to use with my being an iPhone user already, but I couldn’t get used to it. The only advantage of MacOS is that it comes with a built-in screen reader, like iOS. For Windows, you have to buy (or get insurance to pay for) JAWS.

4. What do you wish that you would have placed in a time capsule 15+ years ago to have access to now?
I answered a similar question already on another blog a few weeks back: I’d bring back the disability-related story-sharing websites we had in the early 2000s, like Tell-Us-Your-Story.com. I also would’ve put Diaryland’s diaryrings into the time capsule, but then I’d have hacked the concept and applied it to today’s blogs. Webrings are cool! I think the concept still exists, but hardly anyone participates nowadays.

5. When you think of the what the world will look like 50 years from now, what does that future look like through your eyes? Go as sci-fi and/or fantasy as you would like and ramble on however you wish to ramble When you think of the what the world will look like 50 years from now, what does that future look like through your eyes? Go as sci-fi and/or fantasy as you would like and ramble on however you wish to ramble.
I have absolutely no idea. I did a post on this topic some six years ago on my old blog, but I mostly focused on what my life would be like when I was in my late seventies. I really hope that image description and the like will be very much improved, so that the blind will be able to “see” this way. There already are glasses, such as the Orcam or Envision Glasses, which will describe things a person is looking at. I haven’t tried those, but if they evolve more, and they likely will, I’d love to try those someday.

What do you wish you could’ve put into a time capsule to take with you from 15+ years ago?

App Review: Diarium for Windows 10 and iOS

Posted on by Astrid

As regular readers of this blog may know, I’m perpetually looking for an offline diary to keep. The problem doesn’t seem to be the lack of apps available, though I find fault with each of them. Rather, it seems to be the lack of commitment to actually keeping a daily journal.

That being said, I’ve tried a lot of apps. Until very recently, the iOS app Day One was by far my favorite. Now, it seems to have gotten a strong competitor in Diarium.

Diarium was originally developed as a Windows 10 app. This was before I had a Windows 10 computer. At some point roughly three years ago, they however launched the iOS app. It was still far from ideal at the time. If I remember correctly, most buttons weren’t labeled and there was no timeline view.

In the current iOS version, the tabs in the bottom right corner allow you to switch between timeline, calendar, search, map and tags. I really love this.

In the top left corner of the screen is the button to add an entry. This will open a calendar with an ability to pick the date. Diarium, though it does seem to support multiple entries per day, does not automatically include the timestamp. Rather, you have to click a button while typing your entry to insert it. You can also add images (not sure if you can add just one image per entry or multiple), audio or files.

Also in the top left corner are buttons to sync your diary with OneDrive, iCloud Drive, Google Drive, WebDav or Dropbox. This is a paid feature, but the positive about Diarium’s paid plan as opposed to for example Day One’s, is that it’s €5,99 (if I’m correct) and is a one-time purchase rather than the €37,99 per year for Day One. To Day One’s credit, it does offer more features.

I have Diarium on both my iPhone and Windows 10 PC now. At first, I had no clue how to use the Windows 10 app, because it doesn’t work like Word or Notepad or any of the older Windows programs at all. For example, Alt or Shift+F10 doesn’t work to open a menu at all (there doesn’t seem to be a menu). I’m still figuring things out a little, but it seems most buttons at least are clearly labeled. When I tap the button to add an entry though, I have yet to figure out how to get back to my diary without closing and relaunching the entire app.

Diarium allows integration with several services, including your weather app, Twitter, Facebook and Fitbit. I so far only have integration set up with the iPhone’s weather app and Fitbit. I love how that way, my daily step count is included with each day’s entry. Unlike apps like Momento, Diarium as far as I know doesn’t create separate entries for your integrations, but rather includes them on each day’s main entry. This may be both a drawback and an advantage depending on your perspective.

There are two things I find slightly annoying about Diarium. The first is the fact that each entry is auto-titled something like “Dear diary” and auto-formatted to start with “Today I …”. It does look like you can delete or ignore this though. The other thing is the fact that, despite the fact that I turned it off in settings, my entire entries are still shown in the timeline. This might be a bug, so I’m going to contact the developer about this.

Overall, I really like Diarium. If, like me, you’ve been using Day One and would like to migrate, there’s an easy way to do that by exporting your Day One journal into a .Zip file and importing it into Diarium. Some of the preformatted stuff from Day One looks weird in Diarium, but it’s still readable.

Powerful

Posted on by Astrid

My Braille display, which I use to access my computer and smartphone as I am blind, is giving me problems again. In fact, it’s been acting up ever since only a few days after it got fixed three weeks ago, but I hadn’t wanted to disclose this on my blog. After all, the Braille display costs several thousands of euros and the company had originally claimed that home contents insurance (which I don’t have at this point) should pay for the repair, so I had been wanting to keep this private while investigating my options. Now though, the thing has been acting up so badly that it caused me to spiral into a parasuicidal crisis. This may seem odd, technology being so powerful as to get me to lose my sanity. Thankfully, my husband calmed me down!

This post was written for Six Sentence Story Thursday, for which the prompt today was “Powerful”. It was also inspired by Abbie’s contribution to the blog hop.

A Recent Purchase: Apple AirPods Pro

Posted on by Astrid

One of Mama Kat’s writing prompts for this week is to write about a recent purchase. Like I said last week, I was seriously considering getting Apple AirPods Pro once my vacation allowance landed in my bank account. At the time, I had not yet seen the payment details of it, so I was still unsure I’d get it at all, or how much I’d get.

By Monday, my payment details from the benefits authority arrived in my government inbox. I wouldn’t be getting the money until Friday, but on Wednesday, I was so excited I decided to buy the AirPods anyway.

I ordered them from Bol.com at 1PM Wednesday. They gave me the option of selecting to get the AirPods delivered the same evening, so I was like: “Yes please!” Unfortunately, my screen reader wouldn’t let me toggle the button, so I got a staff to do that for me. My brand new Apple AirPods Pro arrived at 6:30PM that evening.

I struggled a little to get the AirPods connected and the medium-sized earmuffs felt uncomfortably large to me even though the fitting test on my iPhone said they fit. Then I struggled to remove the medium earmuffs and replace them with the small ones, but my staff eventually found out how to do this.

The AirPods came with a wireless charging case. As is the norm with current Apple products, they also came with a lightning to USB-c charging cable but no charger. I have an iPhone SE 2020, which still came with a regular USB charger. For this reason, I wondered whether I could charge the case with my iPhone charger or I needed to buy a USB-c charger. It might be faster with that one, but my iPhone’s charger works at least.

It also took me a little figuring out where the force sensor was located and how to use it. Once I figured it out though, it’s really intuitive. It works similar to the home button on my iPhone, really. I wasn’t sure whether I would be able to take incoming calls using just my AirPods, but today I found out I can.

The AirPods Pro have really good noise-canceling, which was one reason I wanted the Pro ones specifically. When I have noise cancellation on, I feel quite well shut off from my surroundings, even when I’m not listening to music. When I do want to hear what’s happening around me, I easily switch to the transparency mode and can hear everything just fine even while still listening to music.

I originally wanted the AirPods so that I can fall asleep while listening to soothing sounds, for example from the myNoise app on my iPhone. That, unfortunately, isn’t working yet, as I haven’t found a way to make the AirPods feel comfortable when I’m trying to sleep. That might be a good thing though, as I have no idea whether the AirPods will really be able to withstand a sleeping me. Overall, however, I really like my new AirPods.

Mama’s Losin’ It

Braille Display #WotW

Posted on by Astrid

Hi all! What a week it’s been! From frustration to complete panic and back to relief, all because of my Braille display. That’s my word of the week for this week. Let me share why.

Like I’ve shared a couple of times before, I’ve had problems with my current Braille display ever since I first got it two years ago. Dots kept getting stuck, leading to errors in my reading. After all, Braille characters are comprised of at most eight (for computer Braille) dots in a rectangular cell. When, say, dot four is stuck, an A reads like a C or vice versa. It’s workable as long as it’s just one or two dots that are stuck out of the forty times eight dots on my forty-cell Braille display. However, at one point several dots in one cell were stuck, meaning that one was essentially useless.

After a technician had come out to repair my Braille display several times, he sent it back to the manufacturer for checking out in June of last year. I got a replacement on loan until it’d been fixed, which never happened.

Fast forward to last Sunday. When not one, but two or three dots were stuck on my Braille display, I decided I’d had enough and wanted it fixed. Either that or I wanted the original one back. I E-mailed the company, also asking what I could do to prevent dots getting stuck again. On Monday, I got a relatively generic response: other than not touching my Braille display with wet or dirty hands, there was nothing I could do. Well, I always make sure my hands are clean and dry before touching my Braille display. On Tuesday, the company’s repair planning called me to schedule an appt to get the thing repaired today.

Then on Wednesday, the company’s business developer called me to inform me that they’d found that my original Braille display – remember, the one that was with them or the manufacturer for a year -, had suffered water damage. All 40 cells needed replacing at a cost of €1500. Health insurance wouldn’t pay for this. Maybe home insurance would or I’d have to pay out-of-pocket.

I decided that, if I had to spend €1500 anyway, I’d be looking at getting another brand of Braille display, since I don’t trust my current one. I mean, I always handle my Braille display with care and not just the original one, but the replacement one too had problems. I actually got a little excited looking at what’s available, but at the same time quite panicked at the prospect of having to spend at least €1500 in one go. I’ve literally never made purchases over €1000.

Yesterday evening, I got an E-mail confirming the appt for repair of the replacement Braille display. I panicked again, since what if they decided I’d somehow ruined this one too or I got a huge bill after it got repaired?

Today, my husband called the business developer. He had seen the photos of the so-called water-damaged original Braille display, which the guy argued proved that I had somehow ruined it. Well, my husband argued that, since they’d had it for at least as long as I had originally had it, there was no way to prove it didn’t get water-damaged or anything while with them. Since I have no recollection of it getting wet at all, there is no way home insurance is going to cover a repair. In fact, they’d too argue that there’s no way the company can prove it isn’t their fault. The bottom line is I can keep the replacement Braille display, it would get repaired and I won’t have to pay. The technician who came out to replace the cells that had damaged dots, confirmed that it hadn’t been anything I had done causing this one to malfunction. Now, at least until/unless more dots get stuck on this one, I’m so relieved and happy! To be honest though, I’m so used to dots being stuck that I keep checking I’m reading my Braille display correctly. That’s okay though. Now let’s think of what I can spend those €1500 on. No, not really.

Word of the Week linky