My 2024 #SoCS

Posted on by Astrid

SoCS Badge 2019-2020

Today’s prompt for Stream of Consciousness Saturday (#SoCS) is “my year”. I don’t usually review my year until December 30 or 31 and, since this post is supposed to be stream-of-consciousness, I cannot do it now either. That being said, I can write down what my year reminds me of.

I am first reminded of the fact that I’ve been tapering my medication since the beginning of the year and am now 10mg down with my antipsychotic and completely off my topiramate. The taper could’ve gone faster had I not landed in crisis just before my first antipsychotic taper and had the behavior specialist not subsequently decided to do the “minute-effing”, by which I would have to compensate for every minute I was in distress during my unsupported time by having less support at my next moment.

The year also reminds me of my continual attempts to get actually reasonably good care, after that system of minute-by-minute compensating was abandoned in late March. I sometimes feel like I could’ve come across like a very hungry caterpillar, but so what? I don’t purposefully experience distress, as the powers-that-be used to think.

I’m also reminded that this is the first full year since 2021 that I didn’t move. Back in 2021, I told my care plan review that I was 95% sure that I wanted to stay in Raalte, but hardly a year after that, I was gone. I resolve for 2025 not to repeat the same mistake.

Overall, 2024 started tough but things have improved ever since. I can’t go into every detail of what I was struggling with in early 2024 and let me just hope and pray that 2025 won’t be the same. That is, improvement is always welcome, of course, but let’s hope and pray that early 2025 won’t bring a setback.

Share Your World (May 13, 2024)

Posted on by Astrid

Hi everyone. Today I’m joining Share Your World. It’s a lovely blog challenge on WordPress where bloggers answer four questions, with an optional gratitude section at the end. Here goes.

1. Have you ever lied about your age?
Not really purposefully lied, but my insiders/alters/parts (I most likely have a dissociative disorder) have different ages from my body age and they’ve sometimes been rather in your face with them, even though we rarely experience full-on amnesia and, as a result, usually know our body’s legal age on some level.

2. Is there any time in your life you would like to relive?
The year 2021 and the first half of 2022. Those were, all things considered, the happiest times of my life. I wish I could go back in time and make one different choice then too, which my regular readers will know: I’d travel back to April of 2022 and undo my decision to ask to move out of the care facility in Raalte.

3. Do you own any antiques?
Not at all.

4. Would you like to know some of the history of places you’ve visited?
Not sure. I did visit the institution museum a few weeks back and that was fun, but I don’t really care for historic buildings or anything.

The Wednesday HodgePodge (June 7, 2023)

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Hi everyone. I’m joining the Wednesday HodgePodge again. It’s been a while. Here goes.

1. Tell me something you remember (or if you’re not there yet, something you look forward to) about being 35.
I turned 35 in June of 2021. Honestly, it was one of the best years of my life so far, even though I didn’t see it at the time. It was the first year I had one-on-one and I started exploring polymer clay that summer, shortly after turning 35. I am pretty sure I made some of my best unicorns that year. At the end of 2021, I remember saying here on the blog that I had the best support I could hope for and now it was time to find the best med combo for me, referring to my wish to taper my antipsychotic. Honestly, looking back, I should’ve stayed in my comfort zone and not made the decision to want to move care homes (also when I was still 35, in April of 2022). Hindsight is 20/20.

2. Last time you “burned the candle at both ends”?
I rarely get up very early. My usual time to wake up is 8AM regardless of the time I went to sleep. That being said, if 8AM is considered early enough to count, I regularly “burn the candle at both ends, as I regularly stay up way past midnight. I remember once going to sleep at past 3AM and getting up before 8AM to get in my stand hours on my Apple Watch. I got 21 stand hours that day.

3. Are you someone with the “gift of gab”? Elaborate (which shouldn’t be a problem if you answered yes teehee).
I had to Google that expression. As for my answer, well, it depends. Sometimes I can talk up a storm, but sometimes I cannot articulate my basic needs.

4. Do you request a special meal on your birthday, and if so tell us what that meal is? Do you want the same kind of cake year after year or will any flavor work? Do you want cake at all? Growing up were birthdays a big deal in your house? Are they a big deal now?
I don’t really get to pick a special meal on my birthday now, although back in the psych hospital we could. Instead, I usually go out for dinner with my spouse and my parents on my birthdays. My spouse and I pick a restaurant. This year, we haven’t chosen one yet even though my birthday is on the 27th.

I don’t care for cake, honestly. My mother’s apple pie is good. So is homemade cheesecake. Other than that, I prefer a large waffle or something like that.

Birthdays were definitely a big deal growing up. That being said, I always managed to ruin mine as well as my sister’s with a meltdown or two. Now, though I like my birthday a little because of the presents, it’s more stress than fun.

5. “Age is just a number.”… agree or disagree? Tell us why.
I completely agree with Joyce’s answer to this question. I can feel all kinds of different ages, but it isn’t like I actually am an eight-year-old.

6. Insert your own random thought here.
I went swimming, yay! One of the student staff has a project on leisure activities for a client and she chose me. During our discussion, we talked about swimming. She initially wanted to go to the nearby lake, but I don’t really like that. It was actually my idea to call the institution pool to ask if there was a possibility for me to go swimming there just once. And there was. It was magical! And the best news is, it’s not just for once. Our home now has a spot to go swimming there each week.

2021: The Year in Review

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Each year at the end of the year, I look back at the past year and do a review. Today, I’m doing one for 2021.

At the beginning of the year, we were all cautiously optimistic about the vaccine being the ticket out of the coronavirus pandemic. It wasn’t. I got my first shot in early February and my second shot a month later. In early December, I had my (first) booster shot. I’m pretty sure more are still to come.

At the end of 2020, I first had my one-on-one support approved. It took some time to figure out how the staff should best fill in the allocated hours. Initially, the manager wanted my husband to be clear on when he was going to have me home with him, so that my one-on-one hours could be canceled then. This wasn’t doable for my husband or me, so finally it was agreed that my hours would be filled in regardless.

For most of 2021, we had day activities at the home due to the pandemic. Thankfully, by September, the day center opened and the clients were mostly back to their pre-pandemic groups. I, however, was not. Thanks to my one-on-one, I was provided day activities in the home and this continues to be the case so far. There has been talk of me starting in a small group, but this isn’t doable for me right now or within the foreseeable future.

For the first half of the year, I struggled a lot with the battle inside my head between wanting to live more independently and wanting even more support. This led to a climax in mid-June, when the manager told me that more support is really not possible. I was in a crisis for about two weeks. Then I started my new medication, topiramate, which calmed some of the inner conflict. It, of course, helped that I was reassured that, regardless of my attempts to push staff away, I was going to keep my allocated one-on-one support hours at least until the end of December. And of course now they have been approved until December 2023.

Over the summer, when my topiramate started to kick in, I was able to be more creative than I’d been in a long while. I started polymer clay once again and have been able to enjoy this hobby ever since. Like I mentioned when I wrote down my hopes for 2021, I didn’t intend on doing it all independently and that’s still not one of my hopes.

Looking back at my hopes, I did pretty well on them for this year. See, I think it helps that I don’t call them resolutions or goals, ha.

Overall, this year was a pretty good one for me personally. Even in terms of COVID, it’s been as good as possible, in that I haven’t contracted the virus and neither has anyone else in my home. One of my staff tested positive recently and originally we were supposed to all get tested today. After conferring with the care agency’s pandemic team, this got canceled though. I may still get a lateral flow test later today just to be sure. Let’s hope I won’t end the year with COVID.

How has your 2021 been?

Share Your World (December 27, 2021)

Posted on by Astrid

Oh my, can you believe we’ve officially started the last week of 2021? Not even the last full week? I seriously can’t believe how quickly time flies at the end of the year.

Today, I’m joining Share Your World or #SYW. I just discovered that Melanie ditched her domain, which was the reason I hadn’t seen her posts in over a month. Shame on me for not having found out before! This means I’m probably having to redo all my other links to her posts. However, now’s not the time to do this. Anyway, let’s get started. I don’t do #SYW that often, so for those who don’t know, it’s a meme where you get to ask four or five of Melanie’s weekly questions, plus share your gratitude. Here goes.

At 12 a.m. on December 31st/Jan 1st, what will you be doing? (use your own time zone please)
Probably sleep. I will be at the care facility for New Year’s and all celebrations here take place during the day or evening, including the (light) fireworks. There will not be any extra staff till 12AM. Of course, we do have two waking night staff, but it’s not like they’re going to party with me.

Is there a tradition you have for New Year’s Eve?
Usually we’ll eat “oliebollen”, which I was told last year are much like donuts but then the opposites, ie. the holes.

Do you have any hope or reason you find that next year will be better?
Yes. Like I said a couple of times before already, my one-on-one support got approved for the coming two years, so I won’t have to worry about losing my support for the entirety of 2022.

What’s the biggest personal lesson you learned during 2021?
To trust that, with God’s help, things will be okay in the end, I guess. I know COVID and many other of the world’s problems are likely here to stay for a while. I don’t want to dismiss other people’s problems by saying that for me, 2021 was a much better year than 2020. I however do trust that, ultimately, God will work things out for the better.

GRATITUDE SECTION

Describe in 1-3 words how you feel going into 2022
Hopeful, joyous, grateful.

Dear 2021…

Posted on by Astrid

Twenty-twenty won
That’s how you begun
For good or for bad
All that we had
Back then, you would continue
And you did

For most, it was probably a sad thing. COVID wasn’t over with. In fact, it’s likely here to stay.

For me, it was a good thing though. At the end of 2020, I was approved for the right level of one-on-one support for a year. I just found out last week that it got approved for another two years to come. I am so relieved! For me, I am more than happy that twenty-twenty won. At least in this respect.

This piece was written for Friday Writings, for which the optional prompt this week is “Dear 2021…”.

Mid-Year Reflections

Posted on by Astrid

Hi all. How can it be the middle of July already? It’s amazing how time flies. This week, one of Mama Kat’s Writer’s Workshop writing prompts is to look back at your new year’s resolutions for 2021. As I do each year, this year I called them hopes rather than resolutions as a way of lessening the pressure. As I look back though, I seem to be doing pretty well.

My first hope was to eat a somewhat healthier diet. Indeed, I am making sure to eat enough fruit and veg each day, unlike apparently during the last few months of 2020. I however still struggle to make healthier breakfast and lunch choices.

In the exercise department, I’ve not been as inventive as I’d hoped. I blame COVID, as, even though gyms reopened to the public a while back, I haven’t felt comfortable to go.

With respect to getting stable mentally, this is a work in progress. I’ve only actually noticed some seemingly significant improvement over the past month or so, after first falling deep into crisis in mid-June. I cannot say for sure the one-on-one support is helping me get mentally stable, but I do know for sure that I certainly don’t want to go back to the situation before the extra care hours were approved.

Faith-wise, I am still on my journey with God. I pray everyday, read the Bible everyday and am learning to put Jesus first. I am however still struggling. I really want to get baptized, but have no idea where to start, as I don’t currently even go to a physical church. More importantly though, I am still regularly tempted to think that, since God is in charge, I shouldn’t even bother with wanting to be saved.

On the leisurely side of things, I’m doing pretty amazing if I can say so myself. I have kept up a pretty good blogging routine and actually love jewelry-making and bath and body product making again. I am glad I didn’t resolve to be able to do these activities independently, as that’d be an unrealistic goal.

The only area I’m not that satisfied with myself about, is my reading. I did a separate post on bookish resolutions for 2021. I guess I should have called those hopes too, as to be honest, I haven’t really met a single of my goals as of yet.

How did you do on your new year’s resolutions so far?

Mama’s Losin’ It

My 2021 Word of the Year

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Okay, the first week of January is already over and people have come to say it’s weird to wish each other a happy new year even if this is their first time meeting in 2021. It may be a bit late for me to pick a word for the new year. Then again, it’s one of Mama Kat’s prompts for this week. Besides, last year I didn’t choose my word for the year until January 10. I had the flu to excuse it with then, but oh well.

Last year I picked “Wellbeing” as my word for the year. I was somehow convinced it’d be a bad omen though. It wasn’t, in the sense that I didn’t end up in a major health crisis in 2020. Then again, the world at large did.

This year, I’ve had a word in mind for several weeks now and yet I keep making up my mind about it. I want to deepen my faith this year, so shouldn’t something like “faith” be my word of the year. That’d be too easy though. Rather, I based my word for 2021 on Bobby Schuller’s book. It is: BELOVED.

I want to focus this year on the creed of the beloved as Schuller outlines it in his book You Are Beloved. It is:
I am not what I do.
I am not what I have.
I am not what others say about me.
I do not need to worry.
I do not need to hurry.
I can trust my friend Jesus.

I also want to focus this year on my relationship with God and with others. After all, “beloved” does not just apply to me, but to my husband and others around me too. The fact that I am a beloved child of God, also, implies that I need to accept God as my Heavenly Father.

Now of course my thoughts are going back to the idea that this word of the year would be tempting fate. I fear that, now that I chose “Beloved”, it will mean I’ll lose my husband or other important people in my life this year. Even if this happens, though, I can show my love for them. I can start to express love right now, after all.

What is your word for 2021?

Mama’s Losin’ It

My Bookish Resolutions for 2021

Posted on by Astrid

Hi my fellow book lovers! Today, I’m joining in with #SixForSunday. I don’t think I’ve ever participated in this meme, though I’ve known about it for maybe a year. This week’s topic is your bookish resolutions for 2021. Now like I said, I don’t really do resolutions in life in general. However, I think I can safely resolve some things regarding my bookish life. Here goes.

1. Read more. According to Goodreads, I only read like thirteen books in 2020. I may not have set the finish date for some books accurately, so they may’ve been more books. I just set my reading goal on Storygraph to be 20 books in 2021. I think that should be easily attainable.

2. Read a greater variety of books. When I saw some reading challenges come by, it surprised me what types of books people were challenging themselves to reading. I mostly read memoirs, young adult and middle grade fiction. Though I do generally try to get some diversity in my reading, I really need to step outside of my comfort zone.

For instance, though I read some books by BIPOC authors or featuring BIPOC characters, my white privilege still shines through heavily in my book choices. I want to change that. I also want to read more books featuring disability, LGBTQ+ issues, etc.

I also want to step outside of my comfort zone where it comes to genre reading. For example, in 2020 I read my very first SciFi book. I’d like to continue to broaden my horizons.

3. Interact more with fellow book lovers online. I mean mostly in the book blogosphere. I’d really like to write more bookish posts and also engage with other bookish bloggers, though I don’t intend on becoming primarily a book blogger.

4. Do more on Goodreads. Okay, I know some of the book pros are switching to Storygraph now and I got that one too, but it doesn’t seem to have the group discussions etc. that GR has. I just signed up to Storygraph today and so far, I much prefer GR anyway for keeping track of my reading, as Storygraph predictably isn’t as accessible with my screen reader. Storygraph may be able to offer me better recommendations though. Anyway, I’d really like to be active in the book groups I’m in on GR. I’d also like to share some reviews on there rather than just on my blog.

5. Join at least one readathon. I have been wanting to do this ever since I first heard of them in 2019, but apart from a failed attempt at joining Bout of Books last year, haven’t actually gotten down to it.

6. Continue to enjoy reading. Okay, this one is a no-brainer, but I couldn’t come up with anything else.

What are your bookish goals for 2021?

My Hopes for 2021

Posted on by Astrid

Hi everyone and a happy new year! Last year was, well, quite eventful for most of us. I really hope this year brings some peace and quiet to all of you. Most of all though, I hope you all stay as healthy as can be.

Like I’ve done for a couple of years now, I’m going to share what I hope to achieve in the new year. I hate the word “resolution” and don’t really want to call them goals either, because that’d be pressuring myself too much. I’ve actually noticed that if I call them hopes, I somehow achieve more of the things I want to achieve. Here are my hopes for 2021.

1. Eat a somewhat healthier diet. I don’t really want to be eating just lettuce and carrots so to speak, but I do really want to make healthier food choices. Like, I want to eat 2-3 servings of fruit each day, like I did in the fall of 2020 too. I also want to choose healthir snacks and maybe I can really get into the habit of eating bread rather than cereal some days. Lastly, I really need to make sure I get in at least two liters of fluid each day. Ideally, these actions combined will lead to some weight loss. I’d like to lose about 5kg, but any weight loss is good.

2. Find other ways of exercising besides walking. COVID permitting, I’d still like to join a gym or go swimming again. I don’t need to get moving more, as I already get in my recommended 10K steps at least half of the time and I don’t think it’s realistic to want to reach the goal more often.

3. Keep up my blogging routine. I did really well over 2020 in writing regularly and really want to keep it this way for 2021.

4. Get stable mentally. In 2020, I experienced crises a lot due to a combination of factors related to my mental health and adjusting to living in a facility. Like I said on Wednesday, the extra care hours got approved for a year. Hopefully by the end of this year, we’ll be able to conclude that they’ve helped me become significantly more stable.

5. Find more enjoyable hobbies and activities. I don’t need to be able to do them independently. Like, I’d really like to explore crafting and beauty product making more, but I know I’ll need help with those. I guess my hope is that I’ll find joy in more activities even if I can’t do them all by myself.

6. Deepen my faith. I didn’t even mention having become a Christian in 2020 when I reviewed the year on Wednesday. I however really hope to strengthen my relationship with Jesus and my faith in God.

What do you hope to achieve this year?