#WeekendCoffeeShare (July 12, 2025)

Posted on by Astrid

Hi everyone. It’s been a full week since I last wrote a blog post. I really would like to write more, but I’m struggling massively. Today, I’m once again joining #WeekendCoffeeShare. It’s 7:30PM, so no more coffee for me. I didn’t end up having the green tea I mentioned last week, but I might today. Let’s have a drink and let’s catch up.

If we were having coffee, first I’d talk about the weather. Honestly, I can’t remember what the weather was like early in the week, but the last few days, it’s been good: partly cloudy with some sunshine and daytime highs around 25°C.

If we were having coffee, next I’d tell you that I’m still going strong with my movement goal on my Apple Watch. I never ended up doing those fitness mat exercises I mentioned last week, because I had to cancel my movement therapy session this week. I’m hoping I can do some exercises next week.

If we were having coffee, then I’d share that I’ve been quite depressed lately. On Sunday, I was even talking ending my life and, on Monday, I had a meltdown in which I self-harmed.

The staff who witnessed me talk suicide and who was the only one able to comfort me after my meltdown, asked the behavior specialist and team manager to come and talk with me. This meeting took place on Wednesday morning, but another staff attended it with me. I was masking heavily during the meeting and constantly rationalizing my feelings away. The team manager at the end said that he was glad I was doing okay, because there’ll be a time when he won’t have time for a meeting. That plus something about things possibly getting worse. This caused my thoughts to spiral and this got me intensely desperate. I was able to tell the staff who’d attended the meeting with me, that this comment caused me distress and she would try to relay this to the team manager.

When, about an hour later, the staff who’d witnessed my meltdown etc. came on shift, I expressed my despair to her, By this time, I was inconsolable. I cried and cried and cried and was intensely hopeless.

Finally, the staff contacted the behavior specialist, who came again to talk with me and this staff. This was an okay meeting. I’m still skeptical things will improve, but not entirely hopeless.

If we were having coffee, I’d share that I’ve been reading some books about autism by autistic authors. One is The Autistic’s Guide to Self-Discovery. I’m unfortunately struggling quite a bit to concentrate on it, which in turn reinforces the belief that I’m too broken to benefit from it.

If we were having coffee, lastly I’d tell you that my best friend’s mother came by on Thursday. She brought the new nightstand that she and my best friend had bought at Ikea to replace the one that broke when I fell over it several weeks ago. She also brought me a birthday present: some colors of Sculpey Soufflé, which is a brand of polymer clay I don’t have yet.

We went to have lunch at Hema and then went to the supermarket to buy blueberries and candy bars for me and carrots for her. I also told her about my state of mind, since she’s currently my informal representative. I do want to make my best friend informal representative for me too, especially once we’re formally divorced. I still want my now mother-in-law on it too because she has the capacity to attend meetings with me. However, I mostly want to make sure that in no way are my parents or sister contacted to make decisions about me.

#WeekendCoffeeShare (July 5, 2025)

Posted on by Astrid

Hi everyone. I’m once again joining #WeekendCoffeeShare. I just had my last cup of coffee for the day and probably won’t finish this post before I have my evening soft drink, but I might be able to get my staff to prepare me a cup of green tea at around 9PM. Let’s have a drink and let’s catch up.

If we were having coffee, first I’d talk about the weather. Oh my, has it been hot! On Tuesday and Wednesday, we had daytime temps of 36°C. The weather has been more bearable later in the week and tomorrow, we’re finally supposed to get rain. We were supposed to get a few thunderstorms on Thursday too, but thankfully not.

If we were having coffee, then I’d tell you that I did manage to meet my movement goal on my Apple Watch each day this week. Not by walking on those hot days, of course. That is, on Wednesday evening I did go for a short walk. On Tuesday, I stayed indoors all day and got my exercise by dancing. I did walk on every other day.

If we were having coffee, I’d share that I talked about exercise with the movement therapist on Wednesday. Next week, she’s going to come up with some exercises that I can do on my fitness mat.

If we were having coffee, then I’d tell you that my best friend and I went out for dinner yesterday at the Thai restaurant we took my parents to for my birthday two years ago. I had chicken with black pepper, garlic and vegetables and of course rice that was enough to feed a family of four. I loved the food, but I did feel pretty overloaded afterwards.

If we were having coffee, next I’d moan about my day schedule. It’s still frustratingly unclear. This got me to have an outburst on Wednesday, because of course it was too hot to go for a walk and the staff assigned to me couldn’t do dice games. It all boils down to the fact that I feel overwhelmed by all the activity options and then I end up doing nothing. I’m really unsure as to how to solve this issue and sometimes I feel like a nagger.

If we were having coffee, finally I’d tell you that, thankfully, I’m still able to appreciate the little things in life. Like the green tea I mentioned above. On Wednesday, I was talking to my best friend, who was having a cup of tea at the time, and this got me thinking that even though it was 9PM, no-one said I couldn’t at least ask for a cup of tea myself. I prefer plain green tea, so I went to the living room and asked the staff for a cup of green tea. She was okay with this, so the next day, when she worked again, I decided to ask her for green tea at 9PM again. I’m seeing this as a treat. Same with my extra cup of coffee this morning when I woke up. Of course, people living independently might take their tea or coffee at the time they wish for it for granted, but I don’t.

Romantic?

Posted on by Astrid
Daily writing prompt
What’s your definition of romantic?
View all responses

Well, this is an interesting question. One could define romantic as a form of attraction, ie. being in love or having a crush on someone. In that sense, I would say I rarely if ever experience it. I mean, I had childhood crushes, but the reason I called these crushes was more because that’s what everyone else called them. You know, when a girl and a boy hang out, they are almost automatically assumed to be in love. And even when I found out I liked girls more, I still said I was “in love” because everyone my age had a boyfriend or girlfriend.

When I met my now best friend, both of us probably had similar thoughts of what sharing our life was supposed to mean. We now realize we weren’t looking for a romantic partner but for a best friend. So that’s what we are. We are technically still married, but we aren’t in love. Honestly, never were.

Then, “romantic” can refer to an expression of thinking someone is special. In this sense, I am quite romantic. I am a sucker for hearts even though they make my best friend feel slightly uncomfortable now that we’ve clarified to each other that we aren’t in love. In this sense, the feeling of having a crush on someone, for me, is quite different from feeling that they’re special. I must admit I’m still figuring these things out though.

Flash Fiction: Pizza for Her Parents?

Posted on by Astrid

The last time ever that Amanda visited her parental home, she didn’t expect it to be the last time. She was merely coming home from college for a night. No-one knew that, when leaving the home the next morning to board the train to her college city, it’d be the last time she’d ever seen this home.

Fifteen years later, after a long journey through the province and the care system, Amanda moved back to the area. She sometimes wondered what had become of her parental home. Her parents had sold it many years ago and she’d herself handed in her key several years before that.

One day, she was talking to a virtual stranger, a temp worker coming to care for her in her new care home, probably just a handful of times. As Amanda told him about where she’d grown up and for a reason she didn’t even know herself mentioned her parental home address, the carer was amazed. “When I worked as a pizza delivery guy, I used to get orders for that house about once a week.” He started telling her stories about the time the residents had complained of a hair in their pizza, a blond hair, even though none of the workers at the pizza place were blond.

Even though Amanda knew that the house wouldn’t look the same at all if she went back, not least because most of the furniture had been either hand-crafted or hand-picked by her father and because the large birch tree in the front yard had been cut down before her parents sold the house, she delighted in hearing the staff’s anecdote. Her parents never ordered food delivery. The world can be a small place and yet a town can feel so big…

This piece was inspired by Fandango’s Story Starter #207. I couldn’t fit in the exact fragment. The piece is mostly autobiographical, including the tale about the temp worker who used to be a pizza delivery guy. I can’t remember whether his anecdote about the blond hair was actually about my parental home’s new residents.

Mid-Year 2025 Health and Wellness Update

Posted on by Astrid

Hi everyone. I forgot to share in my weekend coffee share on Saturday that I had my annual health check recently and got the results on Wednesday.

I am pleased to say that all my blood tests came back normal or close enough to normal for it not to be a concern. For example, my egfr (kidney function measure) was 86. The normal value is >90 and this used to get me worried a lot. However, a value of 60 or above isn’t a reason for medical intervention. And guess what? This value of 86 is higher than it was last year and then it was higher than the year before. In fact, I’ve never had as good a score on the egfr thingy since getting annual blood tests.

All my other bloodwork came back normal too. My fasting blood glucose level was 4.4. The normal range is 4-6.1. I know Americans and some other folks use a different measuring unit, but I am too lazy to look up what my value would be in that system. Now I hadn’t expected my glucose to be too high, since a while back I had it checked when I had eaten and it was 5.2 then. However, my maternal grandma suffered with type 2 diabetes at a relatively young age and I did use to be obese.

Speaking of weight, when I weighed myself last Tuesday, I weighed 60.5kg. This is about 2kg in the overweight range and it’s above the upper goal weight I’d agreed on with my dietitian. I am pretty sure that, when I weigh myself again tomorrow, I’ll have gained some more, since this was before last week’s BBQ and before all my birthday treats. I am struggling to care enough to actually change my eating habits and the good results on my blood tests are causing me to be more chill than I might otherwise have been. Let’s hope that I can actually kick myself in the behind.

And I don’t just mean with respect to physical activity. After all, I’m pretty sure I’m doing an okay job of that. I mean, yes, I should add strength training to my physical activity routine, but it’s not like I ever was more active than I am now. In fact, I’ve always been a couch potato and I can’t expect to drastically change that overnight. That’s why I’m pretty okay with the physical activity I do get. However, I do truly need to change my eating habits, because I know that I can. Just because I did far worse ten years or even five years ago, doesn’t mean I can allow myself to slide back.

I’m struggling some with increased pain in my right leg. It’s back to a manageable level since getting dry needling treatments a few times. However, it’s not completely gone.

With respect to sleep, I usually get enough sleep and I actually think its quality is decent too. I haven’t seen my oxygen levels drop below 95% according to my Apple Watch in forever. My breathing is faster than it should be according to my Apple Watch, which worries me a little. I don’t have the sleep apnea feature on my watch. That should be interesting once I get a new Apple Watch, since I’ve been concerned about that for many years.

I’m still a night owl, like I’ve always been. A few weeks ago, I read online that night owls experience faster cognitive decline than morning people. This scared me, but then again I can’t just change my circadian rhythm, right?

Overall, there are two competing voices in my mind telling me things about my health and what to do. One is telling me that I haven’t been healthier than I am now in years and this is a good thing, but it’s also rather lazy about making changes I do need to make. The other is saying that, even though I’m pretty healthy for me, it could and should be better. This voice is scaring me about turning 40 next year too. I think I need to find the middle ground.

#WeekendCoffeeShare (June 28, 2025)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare again. No more coffee for me, as it’s nearly 9PM. I however do still have some slices of cake with nuts and caramel left over from when my sister and her family came over this afternoon. I also have a bag of mini brownies in my cupboard. I didn’t even know I liked brownies, but yesterday we got one with our coffee when my best friend, my parents and I were eating out. They were great! When my father told the waiter that it was my birthday, he offered me a bag of brownies as a treat. So let’s munch on some sweetness while we have a drink and let’s catch up.

If we were having coffee, first I’d talk about the weather. No complaining from my sister or my nieces about the heat today, yay! It was 26°C this afternoon, but apparently that’s doable for them. The rest of the week was a mixed bag. Early in the week, we had quite windy weather that made it feel chillier than it was. I even wore a jacket on Tuesday.

If we were having coffee, then I’d share that, thank goodness, I survived my birthday! I’m now 39. That’s not what I mean though: I made it through both meeting my parents and the visit from my sister and her family.

Yesterday, my best friend and I drove to Groningen to meet my parents. We walked some time around a library / study hall thingy which had as its only positive for us that you could oversee the city from the roof. Most of the way up, we were able to use escalators, but we had to walk up a flight of stairs to get to the roof. This was a bit scary for me.

After a few hours, we went to a restaurant, the one with the brownies. I was dead set on ordering something I wouldn’t normally eat, so chose the rib eye. When I ordered, the waiter told me it was served with mashed potatoes and, by this time, I was a bit overloaded so didn’t ask for an alternative. Thankfully, my best friend did and I got fries.

The food was good, but seeing my parents was, well, awkward. Thankfully, no arguments and my parents engaged more with me and my best friend than last year. I, however, didn’t want to give them a reason to start making triggering comments so I only replied “Fine” when my mother asked how I was during dinner.

My sister and her family visited me at the institution today. This was actually quite a positive experience. My nieces, who are five and three, were also a lot more engaging with me than last year and a lot less cranky. I allowed both of them to create something with my Fimo Kids clay. I told them I’m going to cure their creations in the oven and could be mailing them their way. Then, my brother-in-law said they’d be in Apeldoorn in a few weeks and could pop over here to pick up their creations then. I actually think I like that.

If we were having coffee, then I’d tell you I got a fitness mat for my birthday from my sister and her family. I really want to work on my strength, but boy is this hard. I tried planking and couldn’t even hold it for ten seconds. When I did a few squats too then checked my heart rate on my Apple Watch, it was 179. It quickly dropped when I was just standing, but this is a good reminder I will want the physical therapist’s advice on starting a strength training routine.

If we were having coffee, next I’d share that we had the institution summer festival on Tuesday and Wednesday. I didn’t participate much, but I did take part in a climbing activity. This was so scary!

If we were having coffee, lastly I’d tell you my assigned staff, behavior specialist, physician and some others had their meeting with the Center for Consultation and Expertise (CCE) on Wednesday. The CCE are going to ask for a consultant to come to my care home and observe me and the staff and on that basis they’re hoping to provide suggestions for better support. I was initially quite pessimistic, but am now cautiously optimistic that things might improve.

Being a Snob

Posted on by Astrid

Hi everyone. Today, Sadje’s Sunday Poser is all about snobbery. I’ve always thought of being a snob as something negative, but being proud of your culture or an aspect of it can be a good thing too. So am I a snob?

In the positive sense, no, not at all. I don’t have a fine taste in art or food whatsoever. I actually love going to all-you-can-eat restaurants and hardly notice that the food isn’t good quality.

With respect to art or literature, my bestie and I have this inside joke about people not having read “Multituli”. We got the joke after a semi-famous Dutch writer having said that people outside of Amsterdam never read “Multituli” and are as such quite backwards. The actual pen name of the author is “Multatuli” and I actually did read his work, Max Havelaar back in high school, but other than a few random quotes, I hardly remember the story.

This brings me to my attitude and, yes, I can be a bit snobbish about my intelligence. I remember at one point talking to my assigned staff, the one who is still a student. She told me she was learning about attachment theory in school and, even though my comment wasn’t meant as bragging at all, it did come across as such to her. I told her I probably knew more about this topic than her. I probably do and this isn’t an advantage at all, hence my not having meant it as bragging. In fact, the fact that I know more about emotional development, attachment styles etc. than most of my staff, is quite a problem for me, as I cannot apply it to my actual life.

As a teen, I was quite a horrible snob, taking pride in my intelligence and my education. Now I realize I’m truthfully quite average. In other words, mediocre. This realization does often lead me to making self-deprecating comments. Yesterday, when my bestie and I were discussing Meta AI, I said that of course I’d objected to my data being used. My bestie commented that it makes sense that I don’t want AI to steal my pictures of my polymer clay. I immediately thought this was sarcasm and explained that, while most of my works are indeed based on tutorials and not all that good, that doesn’t mean I want AI to use them. It was only later that I realized my bestie may’ve been sincere.

#WeekendCoffeeShare (June 21, 2025)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare this evening. It’s 5:40PM as I type this. I’d advise you to drink lots of water today, as it’s hot outside, but if you’d like a coffee, I’ll gladly serve you one. I also just heard that one of the staff ordered a dozen bottles of diet coke (and I mean the 1.5l bottles, not single-serving bottles), so if you’d like a coke, that’s okay too. Let’s have a drink and let’s catch up.

If we were having coffee, I’d start by sharing about the weather. Did I say it’s hot? Yes, I did. The daytime high today was 30°C. That plus lots of sunshine and poor air quality means I may go outside for a bit at 9PM or so, but not now. The rest of the week, the daytime temps have been lower, but I’ve been able to wear short sleeves each day.

Tomorrow is supposed to be another hot day here in the eastern part of the country, but after that, we’re getting some rain and lower temps (though still above 20°C). I’m already looking at the weather forecast for next Saturday, as then my sister and her family will be visiting me for my birthday. Let’s hope it won’t be too hot, as then my sister and her kids will most likely be cranky.

If we were having coffee, next I’d share that I did meet my movement goal on my Apple Watch each day this week again. That is, each day except for today so far, but I’m pretty sure I’ll meet it today too despite only one walk.

If we were having coffee, then I’d tell you that a staff handed me some shorts, shirts and a few other clothing items that she no longer wears. We did have to throw a few things away that I suspected would be worn out soon or damaged in the washing machine. Overall though, I’m very happy with everything she gave me.

If we were having coffee, I’d also tell you that I fell last Sunday. I had just finished a polymer clay project and was walking out of the bathroom after having washed my hands when I stumbled over an open drawer of my nightstand and fell. I apparently fell backwards, hitting my head quite hard on the floor. The staff said I was responsive right away, though I have a small memory gap. After a while, I got a major headache and my neck also started hurting.

My father broke his neck when he was young and didn’t find out until several days later. This thought crept up on me constantly and, not knowing that if I had broken or seriously damaged my neck, I would’ve felt severe pain right away not a while later, I felt quite anxious. My staff wasn’t able to reassure me either. Thankfully, my GP’s nurse practitioner, who came by on Friday to check on me, was. I now am to take paracetamol four times daily for the next few days to lessen the pain, in hopes that I’ll move my neck more and it won’t stay stiff. I’m glad my anxiety is also less, because that too was keeping me from moving my head.

If we were having coffee, lastly I’d share that, though I have a zillion ideas for what to do in the crafting, physical activity and writing departments, none of these seem to materialize. This frustrates me to no end. I really hope there’s a way for me to get some more structure in my activities without it becoming too compulsive.

Today’s Accomplishments (June 20, 2025)

Posted on by Astrid

Hi everyone. I’m struggling with having a zillion vague ideas of what to write in my mind but not being able to get started on actually typing any of them down. This makes me feel like a failure as a writer. To counter this feeling (and to actually write something, anything…), I’m doing a list of things I did accomplish today. Here goes.

1. Did my morning ADLs. I actually needed to shower today, but had showered and washed my hair yesterday so I did a quick wash this morning. After all, I was still pretty tired when waking up. I’m content with this.

2. Went to physical therapy. I had what I might hope was my last dry needling session on my right leg. It hurt when I was being treated, but the pain has been manageable for most of the day. I probably have to thank paracetamol for that, as I now have to take that four times daily for an unrelated ache.

3. Went on two 1.8km walks. After the dry needling treatment, I’m not supposed to walk long distances for the first 24 hours, but this felt okay.

4. Experimented with seed bead stringing. I had ordered seed beads in four colors last week (the parcel I moaned about not having been delivered last week). I had also ordered a beading needle, which I expected to be sharp so I was saying that I probably needed to protect my fingers. Then again, if I do so, I can no longer feel where the needle is going. Turns out the beading needle isn’t sharp at all. And guess what? I actually succeeded at stringing the seed beads onto the wire. Granted, I haven’t tried even the most basic beading stitch yet, as I couldn’t follow the step-by-step instructions I found online and didn’t have the time to watch a video with my staff. I’ll give it a try soon though.

5. Brushed my teeth. This isn’t such a big achievement to most, but for a long while when in the psych hospital, I struggled with this. For this reason, I’m mentioning it anyway.

…Not Life Experience Deductible

Posted on by Astrid

Hi all. As I shared before, my birthday is next week. I’ll be 39. This means that next week will mark the start of my 40th year on this planet. It isn’t necessarily something I take too seriously, except that my best friend, who is “only” 36, loves to remind me that I’m the older one of us. Then again, life starts at 40, right?

We were joking about age again this afternoon when my best friend came up with a new mantra for me. I’d have to explain here that, for years when I was in the psych hospital, I had a profile signature at the forum my best friend and I know each other from (and at many other autism and mental health forums). It was: “Time spent in psychiatric institutions is not life experience deductible.” With this mantra, I meant to counter the professionals who told me that proper help and treatment, a long-time place to reside, etc. could wait because I was still young. Yes, seriously.

Now the mantra my friend came up with was: “The first 40 years aren’t life experience deductible.” This is actually the polar opposite of “Life starts at 40”.

While I believe that, indeed, the first (nearly) 40 years of my life matter as much as however long I have left here on Earth, I do believe that it’s never too late to create a brighter future. And that doesn’t have to include huge leaps forward. It can include small sparks of joy. In this sense, nothing I go through or accomplish each day is life experience deductible. Yes, it’s incredibly frustrating that things in the care system progress at such a slow pace, but that doesn’t disqualify the meaning of everyday pleasures.

Written for Fandango’s One Word Challenge for today, which is “mantra”. I love doing these little freewrites.