Gratitude List (June 30, 2024) #TToT

Posted on by Astrid

Hi everyone. Today, I’m doing a gratitude post. As usual, I’m linking it up with Ten Things of Thankful. I’m not in a good mood, but, as I usually say, that’s the best time to do gratitude posts, as it usually surprises me with how many things I can come up. Let’s go!

1. I am grateful for the weather. On Tuesday, Wednesday and Thursday, it was a little hot for my liking, but the temperatures setteld down eventually and today the daytime high was 23°C.

2. I am grateful I tolerate the heat pretty well. On those hotter days, when the daytime high was 30°C, everyone was complaining about being hot, but I handled it okay.

3. I am grateful the institution “townhouse” was finally opened last Tuesday. If I’m correct, construction finished over a year ago and I was half-joking that they’d built the thing without realizing budget cuts would mean there was no use for it. It will be used for leisure activities. I do wonder what will happen to the building these activities used to take place in, since that building too had extensive roof work done recently so I’m hoping they won’t just let that building rot.

4. I am grateful for cheesecake. I made it as a birthday treat for the entire home (both sides, so 20 clients plus staff) on Thursday. The staff I made it with, had never made a cake or pie before, but it was a definite success.

5. I am also grateful my order for buns at the local bakery went well. I was going to treat the entire home to hamburgers, but when I tried to order the buns online to be collected on Thursday, something on the payment website caused me to go paranoid and I canceled. My spouse calmed me down and I retried and was successful this time.

6. I am grateful the hamburgers were delicious! I had two of them.

7. Speaking of my birthday, I am grateful many of my fellow clients came by my room in the morning to wish me a happy birthday and to sing for me.

8. I am grateful for two cards from a former fellow client from the intensive support home. I by chance walked by there today and she called out to me and went inside to fetch the cards.

9. I am grateful for the gift voucher for one of my favorite clay stores I got from my sister. I am full of ideas of what to buy with it.

10. I am grateful for the music pillow I got from my spouse as a birthday present yesterday. It is connected to my iPhone via Bluetooth. After a bit of trial and error figuring out how it works, I slept like a log last night listening to one of my favorite calming music albums on Spotify.

What are you grateful for?

A Birthday Visit From My Sister and Her Family

Posted on by Astrid

Hi everyone. It’s really been forever since I last touched the blog. I won’t even promise I’ll try to make a habit out of posting more regularly, as I just don’t know when the motivation and inspiration strike again.

I originally wanted to link this post up to Leigha’s Sunny Sunday, then realized my post, though not overtly negative, wasn’t specifically positive either. I could say that yesterday was a literal sunny Sunday though, with lots of sunshine and daytime temps of 25°C. We’re supposed to get sunny weather at least up till this Thursday. I actually like it, but some people are already complaining that it’s too hot. Then last week they were complaining that we didn’t get a proper summer, as it was raining and the temperature usually didn’t get above 18°C.

Yesterday, my sister and her family (my brother-in-law and two nieces) came by for an early visit for my birthday. They arrived here shortly after 9AM, because they had wanted to visit the petting farm here on institution grounds and, according to the website, its opening hours were 9AM-10AM. When we arrived, we saw that it wouldn’t close till 11AM. Its size was a little disappointing to my sister and my nieces (particularly the older one) were tired so it was hard to keep their attention.

We also took a walk on grounds, during which my older niece went on the swings. I tried to push her, but just as my sister was about to take a picture, she jumped off. Both of my nieces also had a turn playing the outdoors xylophone. At one point, my youngest niece, who is two, played “Jingle Bells”. Couldn’t have been farther away from Christmas, but who cares?

The family gave me two unicorn-themed presents: a unicorn bag filled with shower products and a My Little Pony Unicorn which supposedly has candy-scented hair. I probably looked a bit disappointed when I opened the gifts and to be honest I was, but when I talked to my spouse later on I realized from my nieces’ perspectives these are really well thought out gifts. My sister also promised me a gift card for one of my favorite claying supplies stores, which will be really very much appreciated.

We had lunch in my room and backyard. I had ordered poppy seed and sesame seed buns, as well as muesli rolls, from the local bakery. These were delicious!

The family left at around 1PM. It was a good visit overall, although looking back I’m glad I didn’t have my spouse over as well, as that would’ve been too tiring.

Stabilize With Medicine

Posted on by Astrid

I talked to the support coordinator, the one who’s officially the other part of the home’s support coordinator but attends my meetings with the behavior specialist because I don’t get along with my support coordinator (my former male assigned staff). She had talked to the intellectual disability physician and I won’t have a meeting with her on tapering my medication until late September. The reason is the fact that there’s lots of temp workers at the care home during the summer months and they want me stable for now. Well guess what? If you want to wait for there to be few temp workers, you’d better wait for 2034, as I usually say. For those not aware, 2034 is my code word for never. It’s inspired by the book called 2034, which is about World War III.

I’m pretty angry about this whole thing, because well I already have mildly decreased kidney function as is. That is, I had mildly decreased kidney function a year ago at my last bloodwork, so who knows if it’s gotten worse now? And, as you might know, kidney disease doesn’t usually cause symptoms until it’s pretty advanced.

I don’t even mind waiting till September, except that this means seven months on my current med combo rather than the originally planned six weeks. And except that who knows what will get in the way in September? For all I know, the support coordinator might’ve gotten pregnant or sick or have left like the last one.

I honestly feel like they want to stabilize me with medicine rather than with the right support. And, for what it’s worth, I’m not very stable as is. Never was. Not with five different medications, many of which on high doses.

This post was written for John Holton’s Writer’s Workshop, for which one of the prompts is to pick a line from a song you like and use it as the title of your post. I picked the line “Stabilize with medicine”, which I’m not sure is a full line, from the song Serotonin by Girl in red. This song is rather explicit, so I hope John doesn’t mind me sharing it in his challenge.

My Current Night-Time Routine

Posted on by Astrid

Hi everyone. I totally forgot about Writer’s Workshop this week, even though there are several prompts that appeal to me. I might just write another post tomorrow about another prompt, but tonight, I’m talking about my bedtime routine. Oh wait, I wrote a post about that already in 2022. Reading it makes me miss Raalte so much… even my night-time routine was better. Oh well, here’s my current night-time routine.

My night-time routine starts at 8PM with my getting into my nightwear. Even though this is early, I’m the last of my care home to get dressed into my nightwear. I also get my last round of meds at 8PM, which thankfully doesn’t include sleeping pills. The one time I took a sleeping pill while here, I had to take it at 9PM, which is still very early for me.

At 8:45PM, I usually get a small snack or a bit of fruit, because like I said I go to bed late and I’d feel hungry if my last food of the day (except for a biscuit at evening coffee time) was dinner at 5PM. Then at 9:30PM I brush my teeth, my staff lock my door that leads to the backyard and turn off my lights. Since I’m blind, I can function without light and, if the staff don’t turn off the light for me, I might forget or be bothered by the light if it’s set really bright, and I don’t know how the switch works.

Once I’m ready for bed, I turn off my computer and check the battery status of my iPhone. I sometimes forget to charge my Apple Watch before bedtime and then I put it on the charger for a few minutes to at least get a bit of power to last it through the night. Depending on the battery status of my iPhone and my mood, I might turn on relaxing music either for an hour or throughout the night.

I take off my slippers and usually my socks (except in the freezing depth of winter, then I leave my socks on). I have a weighted blanket that I lie under year-round. And no, it isn’t exceptionally hot in summer. I also fetch two specific stuffed animals: the lemur will have its tail across my stomach and the dolphin I will hold in my arms. I have about five more soft toys in my bed, but these usually just lie around my pillow.

I can sleep in all kinds of positions depending on my mood, the temperature in my room, etc. I usually have the headboard of my bed turned up pretty high. When I can’t sleep, I also turn the other end up. Yes, I know, it sounds weird. I am so grateful for my adjustable bed though. It isn’t a given, since just after I’d gotten this one in like 2021, the higher-ups in my care agency decided that people who weren’t severely physically disabled, didn’t qualify for adjustable beds. They didn’t take away mine though, thank goodness.

Polymer Clay Makes Me Smile #WeeklySmile

Posted on by Astrid

Hi everyone. I’m still struggling with attachment issues and, to make matters worse, my assigned staff went on sick leave just after I told her how intensely I was struggling. I can’t shake the thought that it’s my fault, no matter how many times the other staff say that it isn’t. I do try to focus on the positive and stay as active as I can be though. Today, I’m participating in Trent’s #WeeklySmile. I’m also joining in, a day late, with Sunny Sunday. That way, I’m spreading the word about these two positive prompts while sharing things that made me smile.

Well, most of the things that made me smile over the weekend have to do with polymer clay. First, on Saturday, I started on a bunch of earrings that I am not 100% sure with what to do with them yet. Currently, they’re mostly just green cutter earrings (or really earrings-to-be, as I haven’t added the findings yet) with no design or whatever, but it was fun working with my cutters anyway.

One thing I did discover today while trying to finish one pair of earings, is that you can actually sand the top of earrings, that is, the side that will be visible when wearing them. I actually achieved great results sanding a pair of earrings with finer sandpaper (starting at 400 grit then 600 then 800 then 1000). Until now, I always thought that the side with the design on was pretty much as is, because you’d sand off the design. Granted, my trial pair were just green with no design, but my next pair will have a design on them.

The next thing that made me smile is discovering yet another great shop for clay cutters, texture rollers, silkscreens, etc. Another thing that made me smile was reading up on some simple earring projects on one shop’s website. I honestly think I’d love to try these out. It’s my birthday in a little over three weeks, so I really hope I’ll get some new things from one of those sites.

I really should get some display materials soon, as I don’t feel comfortable showing my earrings while wearing them myself and some of them are gifts too.

This new hyperfixation really makes me so excited. It’s part of polymer clay in general, of course, which I’m into already. This means I feel less like a failure if this thing doesn’t work out. At least it means only part of a hobby isn’t suitable for me. But I hope it is.

Reading a Recipe (With the Help of AI) #SoCS

Posted on by Astrid

Hi everyone. I’m so excited to read this week’s Stream of Consciousness Saturday prompt, which is “recipe”. I could of course talk about my efforts in finding the perfect mug cake recipe. I did, after several attempts, have some luck with the ones from the book Best Mug Cakes Ever. That’s exciting enough. What’s even more exciting, is polymer clay, of course.

I have finally been claying a bit over the past few days again. Not with custom-mixed colors yet, but oh well, that’s my next step. I, after all, once again went on a shopping spree and bought several collections of color recipes off Etsy. Then, unfortunately, I found out that the first collection had all the recipe cards as .png files and the second was an image PDF. You can imagine how disappointed I was. Nearly €100 down the drain, or so I thought.

Then I decided to run the files through an app called Envision. This app has an OCR function, which lets me read the image PDF. The quality of the OCR’d text wasn’t great, but I saw a button called “Ask Envision”. That let me ask the app to search the scanned document and find answers for me and, for some reason, these were much clearer than when I read the document myself. It’s still a bit of a hassle, but it’s honestly quite cool what AI is capable of.

I also was able to run the .png image files through Envision, which also has an image description function. The image description was cool, but even cooler were the very clear recipes I got. Now I only need to buy the needed colors of clay, since all of these recipes use Premo, which I only have a few colors of and not most of the ones used for these recipes. However, I’m pretty sure that the same goes for polymer clay color recipes that goes for journaling prompts: that half the fun is in the collecting.