#WeekendCoffeeShare (December 13, 2025)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare again. I’m starting this post at 5:35PM as my iPhone is upgrading to iOS 26. I’ll probably finish this post after my evening coffee at 7PM. By the look of it, the iPhone update might not even have been completed by then, as my Internet is incredibly slow. Anyway, let’s have a drink and let’s catch up.

If we were having coffee, first I’d talk about the weather. Early in the week, the daytime highs were like 14°C and we had a little rain. No more rain today or yesterday and the temps have dropped to 10°C. That’s still warm for this time of year.

If we were having coffee, then I’d share that I’m still going strong meeting my movement goals on my Apple Watch and it’s now finally decided to actually add days to my streak. I broke my streak record a few days ago. The previous record was 309 days and it was set in June of 2023. However, of course I cheated with this one, as I paused my rings while sick last September.

If we were having coffee, then I’d tell you this week is a mixed bag. Early in the week, I found out that, as of next month, all self-employed temp workers will be let go. That’s understandable, as a self-employed person actually doing the same things as regular employees, is considered tax evasion on the part of the employer (in this case the care agency). The Tax Service had originally planned on handing out fines for this starting this year, but due to the problems in care and other sectors, it postponed this a year. I had known that this was going to happen for years, but due to the care agency’s careless attitude, hadn’t been sure that the care agency was actually going to follow through this time.

On Monday, one of the regular staff here, who is responsible for planning, said it’s indeed true and that this will likely lead to more staffing issues and possible cuts to our care. Other staff have been reassuring that my one-on-one hours have already been approved until late 2026 and I need not worry about cuts to my one-on-one. All this makes me quite worried regardless, as I’m just now learning to actually fill my one-on-one with enjoyable or meaningful activities.

If we were having coffee, then I’d talk about these meaningful activities. On Monday, I finished the Christmas decorations I crafted last week. No photo of the individual pieces, sorry, as my staff hung them on the branch that we use to decorate for the seasons before I remembered to snap a picture. I do, however, have a few pictures of the entire scene.


As a side note, my staff also borrowed some of my clay cutters for creating more decorations. These, I believe she is now finishing and will be putting up soon.

If we were having coffee, next I’d tell you that, yesterday, I visited the next town’s market again. I love going to this market, which is quiet enough that I don’t get overloaded yet there are enough stalls to buy all of the things I’d like to buy. I had fried shrimp at the fish stand. Well, one of two fish stands, actually. It turned out I usually go to the other one and like that one better, but I was with a staff who’d never been to this market. I also bought olives, mixed nuts and candy.

If we were having coffee, lastly I’d share that I finally got my mother-in-law’s access to my records at the care agency revoked. I had originally asked that she’d be given access because, for some stupid reason, the powers-that-be wouldn’t give me access. Their reasoning was that it’d lead to too much distress, something I now realize isn’t grounds enough for denying a patient access to their own records. However, due to this decision, for many years, nobody had access to my records, so the staff could basically write down whatever they liked. That’s why eventually I asked my mother-in-law be given access. Not that she ever reads my records or that I trust her to respond appropriately if she does. Now nobody has access again, but I’m soon going to persuade the behavior specialist and manager to give me access after all.

I Don’t Owe Anyone a Grateful Heart

Posted on by Astrid

Hi all. Today’s prompt for Reena’s Xploration Challenge is quite fitting. Reena asks us to ponder the paradox of gratitude and resistance.

Sometimes, by being grateful, we can bring about change. I am reminded of a story in one of the Chicken Soup for the Soul books in which nurses on one floor were irritated with another floor’s nurses for their constant negativity. Instead of fueling the conflict by becoming negative themselves, the nurses wrote a lengthy gratitude letter to their colleagues. I am not sure whether this was exactly what the story was about, but this was at least the message I took from it. The fact that the one group of nurses focused on the positive rather than giving in to the other group’s toxicity, turned the situation around for the better.

At other times though, particularly when there’s a power difference between two people or groups of people, gratitude becomes passive resignation. In this case, while it can be helpful in the short term to the oppressed person to keep a positive outlook, if the oppressor takes gratitude as acceptance, in the long run nothing will change.

I will give an example from my own life. Regular readers of my blog know that I’ve been accused of having a negative attitude by many people in positions of power, such as my care staff and treatment providers in various care settings. An example is being told I ought to be happy that anybody wants to work here at all. Well, no. While it’d be easier for me in the short term if I could just accept the umpteenth random stranger for my one-on-one care, in the long run it’d mean I’d always get assigned the random temp worker because regular staff would rather support the others and chill out with other regular staff while they can. Besides, even if it’d cost me less effort to resign than it costs me to rebel, I don’t owe my staff a positive attitude. If there’s anyone for whose sake I should have a grateful attitude, it’s myself.

It doesn’t mean I don’t struggle with this whole idea. I feel intense guilt whenever a staff throws some variation of “be happy anyone wants to work here” at me. I am also constantly reminded in my head of my assigned staff at the intensive support home, who was disappointed in me for never having a perfect day even when they’d followed my day schedule completely and had always assigned me regular staff. Which, for the record, never happened.

I, for clarity’s sake, don’t think violent resistance is the answer. When I have a meltdown over some rule I disagree with, being aggressive will always end in me being restrained. However, there’s a whole world between aggression and passivity. And sometimes, unfortunately, the people in positions of power are so caught up in their reality of being the ones to decide, that they (either willfully or not) ignore my less obvious attempts at resistance.

For example, last week I was trying to resist the “one chance” rule about orienting new staff. I tried going along with what the staff wanted, but this only led to further abuses of the rule. I tried talking sense into the staff, but this didn’t work either. Finally, on Saturday, I had the most massive meltdown. I am not proud of my behavior at all. In fact, I really wish I could’ve solved the issue without being aggressive, if for no other reason, then because the staff are far stronger than me and I ended up being restrained. In the end, I thankfully finally got a meeting with the behavior specialist on Monday and the rule got ditched. Now all I can hope for is that my main message, that I have to consent to every individual rule or agreement affecting me unless the behavior specialist uses the Care and Force Act, got through to everyone.

Quality of Care

Posted on by Astrid

Hi everyone. Today, I filled out a survey by the Dutch disabled people’s lobby group Ieder(in) on the quality of my care and its impact on my quality of life. I filled out the same questionnaire in 2023, a month or so before moving to my current home. Back then, I rated my quality of care 2 out of 10 and ticked almost every box on incidents I’d been involved in (as a target).

Today, I could think of only one incident box to tick: incidents due to lack of oversight, such as elopement. I mean, I myself have been aggressive towards staff, but that’s not what was meant. I also rated my quality of care 5 out of 10. That’s still not good enough, but it’s a lot better than it was back at the intensive support home. As my wife jokingly said, maybe in two years I’ll rate it 8 out of 10.

That’s not even entirely impossible, because as I explained in the field for additional comments, the bureaucratic framework for better care exists. By this I mean that I have a budget for one-on-one care that’s sufficient and that on most days, the home isn’t too short-staffed to provide me most of the care I need. What still makes me judge my quality of care as insufficient, is the fact that the way my care is organized in practice, doesn’t work for me.

There was a question about whether you have familiar staff or not. Back in 2023, I think I answered that I almost always had unfamiliar staff. Now I can’t remember which box I checked, but I did put into the comment boxes that the team including so-called regular temp workers is so large and new staff are oriented so chaotically that I essentially deal with a lot of near-strangers.

Speaking of which, my support coordinator thankfully agreed to another chance at orienting the new staff I mentioned on Saturday. Today, she attended my evening activity and we just chatted in order to get to know one another. I still feel some discomfort around letting her be oriented to my morning routine tomorrow, but agreed to it anyway. The fact that the staff even gave me a choice, shows improvement.

I must say I’m less willing to accept awful care now than I was two years ago. After all, let’s face it, almost no-one in the outside world accepts a random stranger into their house who refuses to leave and demands to do personal care tasks for them. I was forced to do exactly that until a year ago (and on Thursday, but thankfully my support coordinator changed that). In that sense, I wish there were a question on the survey asking me how my care compares to two years ago. I mean, in early 2023 I wrote a pretty cynical post about a day with optimal care. I reread it just now, thinking I’d claimed my care was actually optimal back then. I fully intended to contrast my revised idea of what constitutes “optimal care” now with my screwed view back then. Thankfully, my perception wasn’t as screwed in 2023 as I thought it was. In fact, I said pretty much the exact same thing I said on the questionnaire today: the framework is okay, but the practical reality isn’t. I do feel my reality is better though than it was then.

#WeekendCoffeeShare (November 1, 2025)

Posted on by Astrid

Hi everyone on this first day of November. I’m not struggling as badly with memories of my admission to the psych ward (November 2, 2007) as I was in previous years. However, I’m struggling nonetheless.

Today, I’m joining #WeekendCoffeeShare. It’s been a while. I just had my last cup of coffee for the day and will probably take a break from writing this post for my 8PM soft drink and meds. Let’s have a drink and let’s catch up.

If we were having coffee, first I’d talk about the weather. It’s been a mixed bag but mostly rainy with daytime highs around 13°C. I didn’t do a lot of walking, but still managed to meet my movement goal each day this week. Unfortunately, it seems that my Apple Watch doesn’t care that I paused my activity rings while sick with probable COVID during the second half of September, as my streak is now down to 33 days.

If we were having coffee, then I’d moan about the fact that the care home is chronically short-staffed. There is, fortunately, a new staff here who started orienting a few weeks ago. She started her orientation on my side of the home on Tuesday. That day, I tried to make smalltalk with her, knowing that she’d be oriented to my activity the next day, but she hardly said a word. The next day, indeed, she was oriented to my activity. This went okay’ish, in the sense that I accepted her for the whole two-hour time slot and together with the staff doing the orienting, explained several activities. However, once again my attempt at getting acquainted with her didn’t get a response. The staff complimented me on how well I’d done. I told her she’d probably use that against me. I was right.

In the evening, the staff said she’d be orienting the new one to my morning routine the next day. Having hardly spoken with the new staff, I wasn’t comfortable with being naked around her yet, but the staff didn’t accept this. She claimed I hadn’t accepted the new staff in the afternoon either and just don’t want to meet new people and screamed that soon there’d be no-one left. I tried to explain my point of view, with the help of another staff, but to no avail.

On Thursday indeed the staff tried to force me to accept the new one for her orientation. She yelled that I had one chance and if I refused the new one now, she’d be considered as having had her orientation to me. This, I consider horribly unfair, as with the other clients, new staff get multiple orientations. But it’s in my rules, the same rules about no completely unfamiliar staff. I was originally told that the reason for the rules is simply money, ie. the fact that regular temp workers are not given an orientation period so I’m lucky to get one chance with them. I understand this, but I don’t think it should apply to staff who do get an orientation period. And for what it’s worth, I never said I needed temp workers to be oriented to me, but staff need to know these workers are still strangers to me and aren’t as familiar as the staff who’ve been working here for years. No rules can explain this, it’s about empathy. And I’m pretty sure the staff telling me off about refusing the new one, doesn’t have much of that for us clients.

If we were having coffee, I’d also moan about the fact that I now have no assigned staff at all. Like I said a while ago, the student one left for the intensive support home a month ago. The next one doesn’t want to work with me for now due to me having hurt her feelings. And yesterday I found out that the third one is off sick. I E-mailed the support coordinator asking her that, if I need to have another assigned staff, it won’t be the staff who I mentioned above. Don’t get me wrong, she’s fun-loving and great with activities, but she doesn’t know me behind the rules.

If we were having coffee, I’d try to end on a positive note. Yesterday, like six weeks ago, I joined the dance party at the institution townhouse. This time, I decided that I could deal with there not being a staff member for me and to just ask a volunteer if I needed help. One of the reasons was the fact that there were only two staff who are authorized to give meds at the home during the dance and I didn’t feel like I could ask one of them to accompany me, yet the other staff haven’t been oriented to me yet. I considered asking that one of the temp workers accompany me, but, for reasons that you’ll understand if you’ve read this far, felt this would be used against me. The dance was fun.

Finally, one more slightly positive note: we had general elections here in the Netherlands on Wednesday and, thankfully, Democrats 66 (D66) won. This isn’t the party I voted for, but it’s much better than the far-right Party for Freedom, which came out second. D66 is the most progressive, queer-supportive party out there. The reason I didn’t vote for them is the fact that healthcare and social security matter even more to me and the fact that D66 would likely need an economically right-wing party on the government too. However, unless Rob Jetten (D66’s leader) is a total hypocrite and cooperating with the far-right JA21 in favor of the left-wing GroenLinks-PvdA, things will be okay’ish in this respect. In any case, I’m looking forward to the first openly gay prime minister.

Am I a Monster?

Posted on by Astrid

Hi everyone. I’ve been struggling really badly once again. Nearly three weeks ago, I had an outburst that caused the second staff so far at this home to request to the team manager that she not be required to support me for a while. This staff used to be one of my three assigned staff. Another was a student and has since left this home to continue her education at the intensive support home I used to live at. The third one is still my assigned staff, but she only works a day or two a week.

With the staff who previously requested to not support me for a while, I’ve since talked things over, though she still refuses to be honest about the thing that got me to be angry with her, ie. her using literally every opportunity to assign me a temp worker. Because of this, I’ve felt like I had to apologize for my anger (which I see is necessary) but she wouldn’t have to apologize for or explain her behavior that upset me. With the current staff, I don’t have this issue, but I do mistrust her for having pretended to have talked it over then decided she couldn’t handle it anymore a few days later.

I realize part of the problem is my attachment anxiety. As a result of this, I mistrust people who try to come close and be there for me, because I know that if they truly knew me, they’d reject me. Which is, of course, true in theory at least: no-one in life is there for anyone else unconditionally. And, given that I sometimes don’t know who I truly am, I worry that I’ll be worse than even I can imagine if I let my guard down.

Of course, it’s also a self-fulfilling prophecy, as you can see from the fact that two staff in the past year have already rejected me. The current one even claimed she wouldn’t.

Even if I’m in the midst of severe self-doubt, I am (almost) certain that I won’t become physically violent if I let my guard down. The problem is that words hurt too, and I can unfortunately say quite nasty things even without meaning them. I mean, there’s been one instance, back at the intensive support home, when I hurt someone’s feelings with a literal personal attack: I said that it was her fault that she got hurt during a fellow client’s outburst. This staff never requested to not support me anymore. With the two who so far did here, my comments weren’t intended as they came across and, while they could literally be seen as hurtful, I didn’t mean them personally and had no bad intentions whatsoever.

I struggle intensely with this knowledge, that I don’t intend to hurt people but that I do it nonetheless. I also struggle to figure out a way to stop this. After all, they are not insults that caused these staff to reject me (though I called them both bad names too). If they were the insults, it’d be doable to erase these from my vocabulary, as I’ve mostly successfully done with certain other words. However, like I said, they were their interpretations of my comments about how they don’t know me that hurt their feelings. This is harder for me to process, as it means being aware of every possible interpretation of something I literally say. This is quite hard for me as an autistic person with virtually no cognitive empathy.

Besides, as I now realize, I probably have low emotional empathy too, as I wasn’t able to predict that the staff was just going through the motions when I thought we’d talked things over. She in fact supported me through an intense movement therapy session and I didn’t pick on her struggling at all. This makes me feel even worse than the fact that I didn’t realize at the time that my words were hurtful.

This low emotional empathy realization makes me feel like I’m a monster. Aren’t autistics supposed to have high emotional empathy? Aren’t psychopaths and narcissists the ones with low emotional empahty? I mentioned possibly being a narcissist to my wife and she denied I am. Then again, aren’t narcissists masters at making their loved ones believe they are the victim? Is all this my attachment anxiety talking, or is there some truth to the idea that I don’t deserve to be supported?

#WeekendCoffeeShare (August 9, 2025)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare again. It’s 7:30PM, so I just had my last cup (two cups, in fact) of coffee for the day. I’ll probably take a break from writing this blog post for my soft drink at 8PM. Please join me as we chat.

If we were having coffee, first as usual I’d talk about the weather. It’s truly beautiful! Today, the temperature rose to 25°C and it was quite sunny. Rain isn’t in the forecast until next Thursday I believe. I know, climate change and all, but I’m enjoying the summer while I can.

If we were having coffee, I’d share that I am still going strong with my physical activity goals. Yesterday, a staff mentioned the trampoline that’s on the campsite near the institution and we decided to check it out. Today, I went on the side-by-side bike with another staff. Because of this as well as having walked a lot today, I might break my active calories record according to my Apple Watch.

If we were having coffee, next I’d tell you that I unfortunately haven’t been crafting much lately. On Sunday, I created polymer clay earrings that are still waiting to go into the oven. Other than that, no crafty endeavors.

I did, however, create a dessert for myself and my fellow residents on Monday. It was good.

If we were having coffee, then I’d tell you that the rest of the week was quite hard. There’s this temp worker who is absolutely clueless about how to support me and yet he’s assigned to me almost everyday. Staff keep saying I should be giving him feedback more when he’s acting in an unsupportive way. First of all, well, no, that’s not my responsibility. They don’t ask the other clients to give feedback either, but when I point this out, they say it’s different for them because they can’t. I can, sometimes, a little bit and I tried this week in fact, but the temp worker didn’t learn a thing from it. Then I get told that the staff assign to me who they choose and it’s my responsibility to deal with it.

I also was told that, when the staff feel someone is trained well enough to support me, they will be assigned to me and I don’t have a say in it. All this comes across as if it’s me being deliberately difficult with certain staff based on arbitrary things, while in reality it’s the way that they act that makes certain staff more difficult for me to deal with than others. Besides, I’ve had staff assigned to me who themselves don’t even feel they’re capable enough just because these staff want to please and their colleagues pressure them. It may be easiest for staff to assign the most inexperienced temp worker to me because I try to be helpful and, when I am not, it is easy to blame me for allegedly playing favorites.

If we were having coffee, lastly I’d share that the Center for Consultation and Expertise found a suitable consultant for my case, but due to the summer holidays, the first contact won’t be until the end of August. This will unfortunately be a phone call with the behavior specialist. I’m not very trusting of the whole process at the moment, to be honest.

Flash Fiction: Pizza for Her Parents?

Posted on by Astrid

The last time ever that Amanda visited her parental home, she didn’t expect it to be the last time. She was merely coming home from college for a night. No-one knew that, when leaving the home the next morning to board the train to her college city, it’d be the last time she’d ever seen this home.

Fifteen years later, after a long journey through the province and the care system, Amanda moved back to the area. She sometimes wondered what had become of her parental home. Her parents had sold it many years ago and she’d herself handed in her key several years before that.

One day, she was talking to a virtual stranger, a temp worker coming to care for her in her new care home, probably just a handful of times. As Amanda told him about where she’d grown up and for a reason she didn’t even know herself mentioned her parental home address, the carer was amazed. “When I worked as a pizza delivery guy, I used to get orders for that house about once a week.” He started telling her stories about the time the residents had complained of a hair in their pizza, a blond hair, even though none of the workers at the pizza place were blond.

Even though Amanda knew that the house wouldn’t look the same at all if she went back, not least because most of the furniture had been either hand-crafted or hand-picked by her father and because the large birch tree in the front yard had been cut down before her parents sold the house, she delighted in hearing the staff’s anecdote. Her parents never ordered food delivery. The world can be a small place and yet a town can feel so big…

This piece was inspired by Fandango’s Story Starter #207. I couldn’t fit in the exact fragment. The piece is mostly autobiographical, including the tale about the temp worker who used to be a pizza delivery guy. I can’t remember whether his anecdote about the blond hair was actually about my parental home’s new residents.

#WeekendCoffeeShare (May 4, 2025)

Posted on by Astrid

Hi everyone. I’m once again joining #WeekendCoffeeShare on Sunday, as yesterday, I had a busy day and was too tired to write.

Today’s the day we commemorate Dutch people who died in World War II (and in every war, conflict and maybe they now count terrorist attacks too since). Only 5% of Dutch people currently were alive during our liberation on May 5, 1945. I never was all that much of a May 4 and 5 follower, but I have over the past few years learned to be more mindful of the freedom and rights I and those I love have, since they are more and more being threatened. For this reason, I think I’m going to do the two minutes of silence at 8PM this year. I hope I’ll have finished my post by then. I’ve just had dinner, so no coffee for me, but I’d love to offer you a drink.

If we were having coffee, first I’d talk about the weather. On Wednesday, we had our first day when, at the national weather institute in De Bilt, the temperature climbed to above 25°C. On Thursday, here it even got to 28°C. I read that the first day of temps above 25°C usually doesn’t happen until mid-May. I appreciated it though. Today, the daytime temp didn’t get above 13°C.

If we were having coffee, then I’d tell you I’ve done a lot of walking again, as well as riding the side-by-side bike. My May challenge on my Apple Watch is to double my movement goal twice. I already did it once so far, so that should be ridiculously easy.

If we were having coffee, then I’d share that one of the sick staff whom I’d made the polymer clay frog for last week, let me know via her colleague that she was really happy with it. I had originally asked another staff to pass the frog for the other sick staff on to her. Then, on Tuesday, that staff said it may be nice for the two of us to pop by the sick staff’s house on Wednesday so that I could personally give the frog to her. I did ask the staff whose idea this was to text her colleague to ask her permission for us to stop by, since some care workers with good reason don’t want clients to know where they live. Now I for one never even look up my staff online and would certainly not violate their living space. The sick staff gave her permission so one of the side-by-side bike rides was to there. The staff’s kids were home too and one of them asked me where I live. I, being awkward with young kids that I am, originally mentioned the institution town and then said I lived at [staff’s name]’s work, only to realize that [staff’s name] is “Mommy” to the kid.

If we were having coffee, I’d share that the other side-by-side bike ride was to a market once again. I resisted the urge to buy something, as I’d already been to the supermarket on Monday and I reasoned even just strolling the market is a nice experience. Besides, we did have lunch at a fish diner.

If we were having coffee, then I’d share I’m still struggling with the temp worker situation and how much energy goes into explaining everything to them. Sometimes, I think staff get me, while at other times, it seems as though they’re absolutely clueless.

If we were having coffee, lastly I’d tell you that, yesterday, I went to Nijmegen for a cerebral palsy meeting again. It wasn’t the nationwide CP day. That had been in early April but was held in a city that’s a two-hour journey from here, so I hadn’t gone there. Nijmegen is about a 45-minute drive in good traffic. This meeting lasted three hours total and there was no theme. Rather, we gathered in a restaurant and had lunch and some drinks and just chatted. I have met many of the participants a few times before, but there were a few newcomers too. With one of them, I chatted almost the entire time, because we had so much in common. She recommended a few resources to me too.

After the meeting, I had decided to go to my best friend’s parents’ house (ack, “in-laws” is a lot shorter 😉). My best friend picked me up in Nijmegen and drove us there. My best friend’s sister was there for a bit too with her one-year-old son. I really don’t do well with kids, although this one is a lot less loud than my nieces.

I didn’t get back to the institution until 8PM yesterday and went to bed shortly after 10PM. I’m honestly still quite tired.

Xennials, Boomers, Gen Z, Etc.: Does Your Generation Determine Your Personality #AtoZChallenge

Posted on by Astrid

Hi everyone. Wow, we’ve arrived at the dreaded letter X! Now let me tell you X, by recommendation of one of the founders of the #AtoZChallenge (I don’t remember who) several years ago, was the first letter I decided on a topic for. This topic isn’t necessarily related to personal growth or even psychology, more to sociology. However, it’s fun nonetheless.

My topic for today’s post is generations. The idea that people of one generation have similar traits that differ from those of another generation, is tempting. Like, we all grew up at different times in history, so doesn’t it make sense that the technology available to us, the major world events of our teen years, etc. affect our personality?

The short answer to this though is “No”. Yes, young people (Gen Z currently, those born between 1995 and 2010) have a different attitude to life than older people like Gen X (birth years 1965-1980) or Boomers (1945-1965). They, for example, tend to have a more laid-back work ethic (also known as them being lazy) and a more relaxed view towards the future.

I see this myself in all the temp workers who are self-employed, most of them in their early to mid twenties. They clearly are in there for the quick money (self-employed temp workers get nearly twice as much as regular employees) and have a rather short-sighted attitude, such as not having disability/sick leave insurance.

If you read this, you may wonder why I said generations don’t have different characteristics. The reason I said so is it’s not their generation, but their age. When other generations were in their early twenties, they had a similarly laid-back attitude towards work or school. As an example, I’ll give my father (Boomer): he was in college for ten years free-wheeling through different majors and never finished anything. As he got older though, he did develop a more serious work ethic.

So what generation am I? I was born in 1986 so am none of the generations mentioned in the title. Xennials, after all, are on the cusp between Gen X and Millennials, roughly birth years 1977-1983. Instead, I’m a core Millennial. And it’s definitely the best generation to be in. After all, in our teens, we got a world-shattering terrorist attack to adapt to, in our twenties, we survived the Great Recession, and in our thirties, we survived COVID. If that doesn’t make us resilient, I don’t know what does. Just joking.

#WeekendCoffeeShare (April 19, 2025)

Posted on by Astrid

Hi everyone. I’m joining #WeekendCoffeeShare tonight. It’s almost 11PM here, so definitely no more coffee for me. If you’d like to grab a drink, feel free to and let’s chat.

If we were having coffee, first I’d talk about the weather. We finally got rain. Not as much as was originally thought and not nearly enough, but we got rain. The temperatures have also been lower, usually around 15°C. This is still warmer than normal, but I still yearn for 20°C.

If we were having coffee, then I’d tell you that, as a result of the rainy weather, I haven’t walked as much as I did in previous weeks. I still kept my perfect streak with respect to my movement goal on my Apple Watch, but didn’t meet my exercise goal everyday.

If we were having coffee, I’d share that I’ve finally been crafting again. I created a polymer clay bear holding a heart for my support coordinator, who is on maternity leave. Unfortunately, one of its ears fell off during baking, but thankfully I noticed it in time and was able to add a new ear.

I also made another attempt at creating a polymer clay trinket dish today, but failed once again.

If we were having coffee, I’d report that I had a meeting with the intellectual disability physician, who prescribes my psych meds, on Wednesday. The good news is that I’m allowed to further taper my antipsychotic. The bad news is no answers regarding my tremors. She thinks they may be related to my spastic cerebral palsy and this means that they can get worse when I’m stressed.

If we were having coffee, I’d tell you that I had a dietitian’s appt on Wednesday too. This went well. I’m staying in a sort of acceptable weight range and not having binge eating episodes or purging. My next appt will be in three months.

If we were having coffee, I’d moan about the temp worker situation once again. On Wednesday, when like I said I had two appointments, the staff wanted to orient a new “regular” temp worker to me. As soon as they told me, I told them that this wasn’t going to work out that day, but they kept telling me to see what’d come out of my doctor’s appt first and then we’d discuss it again. Well, no-one ever allowed for any discussion after the appt and, when the time came for the worker to be oriented, the staff doing the orienting kept pushing me in overt and covert ways to accept him. Like, the temp worker was constantly sneakily, without talking, being in my presence. This gave me a horribly unsafe feeling, because I, being blind, couldn’t be sure whether he was there or not.

The staff doing the orienting at one point seemed to show some understanding and told me she was going to talk it over with the other staff. She came back to tell me that it’d been agreed between my assigned staff, the support coordinator, behavior specialist and the team manager that, if I refused him now, I’d had my chance. She never told me who’d told her that when she was “talking it over”, so I assumed it was my assigned staff. I still refused the temp worker and to this day feel horrible about the whole situation. I mean, this whole agreement among the powers-that-be is showing that they believe I refuse staff for their one orientation moment just because I feel like it. Honestly, I still disagree with that whole thing about just one orientation moment and then they’re as regular as the regular staff who’ve worked here for years.

At one point, I went into the communal room and another staff, one of my “favorites”, was there. She asked me what was up and I explained that I had two appts that originally the staff didn’t think I could handle in one day and now they added this orientation thing to it too. The temp worker was present too and I told him it wasn’t that I didn’t like him, but he hadn’t even spoken a word to me during his previous shifts here and now he was creeping up on me. He apparently had been instructed to do so. The other staff understood and I actually talked a little to the temp worker.

Unfortunately, when I read my daily log notes for the past week today, I saw there wasn’t a single word about how I’d talked to him eventually. Neither was there anything about how I’d accepted the other temp worker (who’d had her orientation moment with me last week) for my activity on Tuesday, nor that I showed the new student staff my clay yesterday on his first shift here. This is relevant because it signifies that they’re still only reporting my challenging behavior and not the things I do accomplish in spite of the stress it gives me.

If we were having coffee, I would once again end on a positive note by sharing some small pleasures of the week. First was the BBQ on Thursday. It was good. Next up is a visit to the next town’s market yesterday. My spouse was a little surprised that I didn’t buy olives, as I usually buy those when going to the market. I did buy candy. I also went to the supermarket to buy some ingredients for my smoothies. We also went to that town’s coffee shop run by disabled people and had the most delicious caramel latte.

Speaking of which, I’d tell you that I’ve been having a new interest lately: coffee brewing. I’d really like to be able to create my own coffees. Still need to look into all the necessary supplies, but it should be fun.