#WeekendCoffeeShare (September 19, 2021)

Hi all on this late Sunday evening! Boy, am I late joining #WeekendCoffeeShare. I’ve had all my coffee for the day and even had my last soft drink. If you’d like one, I’m sure I can still pass you one through the Internet though. Let’s have a cup of coffee or another drink and let’s catch up.

If we were having coffee, I’d tell you that the weather is still pretty good for September here. Temperatures rose to roughly 20°C in the afternoon and it’s been mostly dry with some sunshine and some clouds. Today while in the car being taken back to the care facility from Lobith, my husband even said I had to wear sunglasses. Now sadly the sunlight wasn’t particularly bright to my (almost) totally blind eyes, but yesterday I’d gotten a headache from what might’ve been exposure to bright sunlight that I wasn’t consciously detecting.

If we were having coffee, I’d share that my husband and I had our tenth wedding anniversary today. We celebrated it yesterday with a large Domino’s pizza. We each had a milkshake too, but it was far too thick for my liking. I couldn’t finish drinking it, whether I tried the paper straw that came with it or my own silicone straw.

If we were having coffee, I would finally show you the picture of the present I gave my husband for our anniversary. It’s a polymer clay heart with the text “Assie houdt van je” stamped into it. Assie is my nickname (and no, in Dutch, there is no connotation to asses) and “houdt van je” is Dutch for “loves you”. There is magnetic tape at the back so that my husband could hang it on the fridge.

Polymer Clay Heart for My Husband

My husband really appreciated the gift.

If we were having coffee, I would tell you that the rest of my week was okay. I was a little sad and grieving the loss of my eyesight, as well as worrying about my upcoming care plan review. The review won’t be until September 30 and of course it doesn’t involve judgment and it isn’t a test.

However, I have been increasingly aware of my inner fight regarding my wish to stay here in Raalte and yet my feeling that I ought to be looking for another care facility or working towards living with my husband. In my paragraph about the bright sunshine, I almost wrote I was taken “home to the care facility” rather than “back”, as if our house in Lobith is less of a home to me than the care facility. My support staff would consider this progress, in that I’m beginning to feel safe here at the care facility. However, there’s an inner voice that tells me that this is betraying my husband. I know he supports me staying here for now, but I also know he struggles with the distance. Ugh, this is so hard.

If we were having coffee, lastly I’d share that I’m very curious about iOS 15, which will be out tomorrow. Like almost every year, there is one critic on the Dutch VoiceOver E-mail group who warns all of us to wait because it’ll be drama. This year though, the accessibility bugs seem not as serious as last year and especially the year before. Still, I’ll probably wait at least a couple of weeks until at least some of the other members of the group have actually installed the official release. I am really curious about live text in photos and improved VoiceOver image recognition though.

How have you been?

#WeekendCoffeeShare (April 18, 2021)

Hello everyone and welcome to my #WeekendCoffeeShare post for this week. I just had my afternoon coffee. I think there’s still some left, or you can have a tea, fizzy drink or water. We alsso have custard cupcakes if you want one. They’re delicious! Let’s have a drink and let’s catch up.

If we were having coffee, I’d ask you about your weather. Ours has been steadily improving over the past week. On Monday, we still had a bit of ice rain, but the rest of the week, it’s not rained much. Today, we have some sunshine and temperatures of about 16°C during the day. It’s still close to freezing at night though.

If we were having coffee, I would tell you that, on Wednesday, I had a good talk with my community psychiatric nurse. I was able to express some of my anxiety. Then again, Thursday night I ended up in a bit of a crisis again. I tried to reach my CPN on Friday. Unfortunately, by the time she called me at 5:30PM, there was little she could do for me.

Tomorrow, I’ll meet with my nurse practitioner again. I’m considering asking him about my medication, both my daily meds and my PRN tranquilizer. While the PRN med, the atypical antipsychotic quetiapine (Seroquel), works okay for reducing sensory overload, I’m experiencing increasing anxiety, particularly at night. I don’t blame the quetiapine, but I’d really like something to help with this.

If we were having coffee, I’d share that I had quite a scary experience yesterday. I was walking outside in the sunshine and suddenly completely blinded. Of course, it is only to be expected that I’ll eventually lose my light perception too, but it’s still scary. My staff interestingly did understand my panic about being blinded. Most people probably won’t, since to a sighted or even partially sighted person, I’m pretty much totally blind.

I also had a pretty nasty headache, so I’m wondering whether I might have experienced a spike in eye pressure. My staff is going to inquire about getting my eye pressure checked by an ophthalmologist. I’ve heard, after all, that glaucoma needs to be treated even in blind people.

This experience did motivate me to finally inquire about getting a pair of NoIR sunglasses again. I had them in the past, but cannot find them in my size at the most well-known low vision shop. My staff E-mailed the occupational therapist about it. For now, another staff gave me a pair of regular sunglasses.

If we were having coffee, I would tell you that I got a new roller tip for my white cane on Friday too. I now have a marshmallow tip, which I think works better than the large ball tip I used to have.

If we were having coffee, I’d share how happy I am with all the engagement on my blog. It’s truly heartwarming to see how many people are touched by my posts.

If we were having coffee, lastly I’d tell you that my husband and I went for a walk in the “wolf woods”, as he calls the woods between Raalte and the nearby theme park. A wolf was found in the theme park a few weeks ago. Thankfully, we didn’t spot it.

How have you been?