Gratitude List (August 16, 2019) #TToT

Yay, it’s Friday! I’ll have to get up relatively early tomorrow for an appointment at the bank in relation to the house-buying process. However, I’m still happy to have the week-end in front of me! Today, I’m joining in with Ten Things of Thankful (#TToT) for this week.

1. A long walk with my mother-in-law and her dog on Sunday. We walked for nearly an hour. Then we had another 25-minute walk yesterday.

2. A tidy closet. My husband helped me tidy up my closet last Sunday and it’s a lot more manageable now.

3. Hamburgers. Sunday night, I had been awakening my husband several times by talking in my sleep. Something about buttons I really, really had to press. Don’t ask me where I got that. Anyway, it led my husband to suffer lack of rest and he didn’t like to cook the next day, so he cooked up some hamburgers.

4. Ice cream. On Tuesday as the ParaTransit bus driver drove us home from day activities, we came across an ice cream truck that was handing out ice cream to all clients at the institution for people with intellectual disabilities where several of us had to get off. The staff said the driver could get himself and us remaining people on the bus an ice cream too. It was totally yummy!

5. Singing “Happy birthday”. As of last month, I attend day activities for the whole day on Wednesday rather than just the mornings. In the afternoon, we usually get music therapy, but the therapist had been on vacation until last week. I so far love love LOVE music therapy. Because this week, one of my fellow clients had a birthday, we sang birthday songs. I sang “Happy birthday” in English by myself for him.

6. No rain when my support coordinator and I went for our walk yesterday. It was supposed to rain all day, but thankfully it didn’t then.

7. Reaching my step goal yesterday. I’ve not had a great week as far as activity goes, but at least yesterday I did make it to 10,000 steps.

8. The staff taking me on a short walk today. This particular staff member had been on the receiving end of an aggressive outburst of mine (thankfully I wasn’t physically aggressive towards her) because I had been confused about being told I had to attend some boring health and fitness course rather than going for a walk on Wednesday. She somehow remembered having promised me a walk later in the day and then forgot. She hadn’t promised it, but this makes me all the more grateful that she did take me on a walk to make up for it today.

9. WordPress still being there. I got some scares recently about people abandoning WP en masse over the Tygpress thing and going to Facebook or whatever. I tried to create an FB page for my blog today, but seem to be failing miserably. I’m so glad for this reason that most bloggers are still on WP.

10. Lovely comments on my blog. I’ve had a lot of blog visitors and engagement with my blog posts this past week. It is awesome!

What have you been grateful for lately?

#WeekendCoffeeShare (August 4, 2019)

I didn’t participate in #WeekendCoffeeShare last week, but this week, I’m joining in. Not that I have a lot to share as far as I can think of off the top of my head, but oh well. I just had a drink of Crystal Clear.

If we were having coffee or any other drink of your choice, I’d share that the weather is a lot better than it was last week. The week before, it was hot but not tropical hot, but last week, temperatures rose to 40 degrees Celsius. Now they’re in the lower 20s.

It’s good weather to walk, and so I did on Monday and Thursday. Yesterday too. I walked my in-laws’ dog with my mother-in-law for over an hour. I loved it.

In fact, if we were having coffee, I’d also share that I’ve been more active in the exercise department lately. I went on the elliptical twice this week. Unfortunately, my Fitbit activity tracker didn’t track it as exercise.

If we were having coffee, I’d share that I’ve been watching but not paying attention to the talk about Siri and Google and all that eavesdropping on human conversations. I don’t really care. Same for the Tygpress thing. Yeah, I’m offended by the fact that some person probably took my content and is distributing it without my consent. However, the main thing I worry about is this thing killing the joy of WordPress for most people and my losing my audience. Or worse yet, that WordPress will somehow have to quit and I’m left without a blog. Ever since I moved my online diary to WordPress in 2007, even if I didn’t have an active blog all of the time, I spent most of my time trying to have one.

If we were having coffee, I’d confess that I did in fact eat all the candy that was left over from the candy cake we made on Tuesday in one sitting. That is, I left over two waffles for my husband. Then again, on Friday, when we went to the marketplace near day activities, we bought a ton of fruit.

If we were having coffee, I’d share that I spent most of the week-end in my room reading. I’ve developed an interest in Rainbow Rowell. Not that I don’t read my usual memoirs anymore, but I want to read more fiction too.

If we were having coffee, I’d share that things on the house-buying front are moving smoothly. Did I share that we agreed on an offer for a house? We will hand in the signed buyer’s contract tomorrow.

If we were having coffee, lastly I’d share that my husband is a great cook. I had to have microwaved meals several times this week and eat at my in-laws once, but when my husband did cook, it was delicious.

What have you been up to lately?

Candy Cake

I want to write more often about the ordinary things I experience in daily life, particularly those I’m grateful for. I considered doing a daily gratitude post or the like, but I guess that would get boring. Today though, I have some really joyous experiences I want to write about.

I may or may not have shared that, when my husband and I got married in 2011, we got a homemade liquorice cake from the staff and patients at the psychiatric unit I resided at. The bottom was made out of a Dutch candy called foam blocks. These are really made entirely of pressed-together powdered sugar and they’re yuck. The top, however, was layered with my favorite sweet liquorice. I loved it!

When my support coordinator and I were in the process of appealing the authority’s decision to deny me long-term care funding, we agreed to make another liquorice cake if we succeeded. And we did! Today, we made the cake.

Candy Cake

As you can probably see, we didn’t choose foam blocks for the bottom layer. Instead, my support coordinator bought waffles, which are not only more tasty but also softer. This meant that my fellow clients at day activities who have swallowing difficulties, could at least eat some of the cake. After all, they can’t eat liquorice.

We then made a layer of marshmallow diamonds. Then we layered the top with an assortment of winegums, sugared candy and liquorice. Finally, my support coordinator sprinkled sugared pop rice over it. In the middle, we stuck a candle in the shape of the number four into one of the marshmallows. This symbolizes the fact that I got my funding approved on June 4.

My support coordinator took the picture above, so that I can show it to my husband and on this blog. Seeing AI, my image recognition software, did recognize the picture as being of a cake.

We ate some of the cake at our mid-afternoon coffee break at day activities. Though the other clients don’t understand the reason I made this cake, they definitely enjoyed it. And so did I!

Share Your World (July 29, 2019)

Today, I’m joining in with Share Your World. I loved today’s questions. Here are they and my answers.

1. Is it wrong to sell store-bought pastries at a bake sale?
No. It’s a little unauthentic, but it’s not morally wrong. In fact, with the licensing that’s required to sell food (or cosmetics), it may be wiser. I know this from the time I made handmade soaps for my staff and fellow patients in the psych hospital. They wanted to give me a small amount of money for it and I didn’t object, but I did make it clear that I didn’t have a license. When my staff sold a traditional new year’s treat in large quantities at my ward, the manager did make sure he had a license.

2. Have you ever interacted with the police?
Lots of times, mostly for my own safety when I was in a mental crisis. I have however also been in contact with the police for the mere crime of being (or appearing) lost. I will soon write a post on this topic.

3. What will you remember most about this past year?
So far, the most memorable moment of 2019 was my being approved for long-term care.

4. Is it better to have fungus on your toes, your tongue, or your pizza?
LOL. Since a pizza with mushrooms on it is called fungi at least here, I prefer that. Not that I like this pizza, but it’s much better than having a toe fungus at least. I am so happy my toe fungus was finally (mostly) eradicated after many years of suffering when I got oral medication for it last year. I have no experience with a tongue fungus and I’d like to keep it that way.

5. What is one slang word that makes your skin crawl?
I don’t know much about slang, but ableist slurs definitely make me angry. I’ll go with “lame” for now.

Working On Us Prompt: If Disordered Eating Isn’t About Food or Weight

Today, I am once again joining in with the Working On Us Prompt. I hope the link works, as it once again gave me an error 404 when I tried to visit it. There are really two question prompts for this week’s Working On Us. I may post a separate post about the second question. The first asks what if eating disorders aren’t about food or weight? What are they about?

As a person with disordered eating tendencies, I can totally empathize with this question. I mean, yes, I am obese, but that in itself doesn’t qualify you for help with disordered eating other than a monthly kick in the ass from a dietitian. Well, that just isn’t enough for me.

Then again, I was told by my psychiatrist that I do not have an eating disorder, because the amount of food I eat during a “binge” isn’t big enough. Well, I understand. That doesn’t mean I don’t struggle with my relationship with food or weight.

Because that is really what disordered eating is all about: the relationship we have to food and our bodies. It isn’t about how much you eat, how much you weigh, or how often you exercise. It’s about the thoughts that go on in your mind.

For clarity’s sake: at the time that I was told I do not have an eating disorder, I was in the early stages of recovery from purging, which in itself does warrant an eating disorder not otherwise specified diagnosis. I was never fully bulimic, but I was coming close. That’s not my point though.

I struggle a lot with disordered thoughts about food and my weight. In fact, I think about food the majority of the time and those thoughts are not usually healthy.

Once, when I read a book about someone with an eating disorder, her psychiatrist suspected she was an alcoholic too. She administered a simple screening tool, which asked whether the girl had tried to cut back on alcohol, was getting annoyed or angry when people commented on her drinking, ever had alcohol first thing in the morning, and then there was another question. She answered “Yes” to three out of four questions. Well, I can answer yes to the three I remembered here when substituting alcohol with food. I occasionally overeat first thing in the morning, have very regularly and unsuccessfully tried to control my food intake, and I do get angry like all the freakin’ time when someone makes a comment about my food-related habits.

Yes, I knnow that to the outside observer, I appear like just an unmotivated, overindulgent fatass. What they don’t see are the inner battles I fight each and every day to deal with my disordered eating tendencies.

Currently (July 2019)

I have known about the Currently link-up for years, but rarely joined in and never did on this blog yet. Since the start of the linky coincides with the Insecure Writer’s Support Group day, I have until now found it hard to find time to join in. But now here I am.

Reading

Blog posts, mostly. I haven’t really been reading a book in months, but I really want to.

I did get a few free Kindle books on Amazon and did renew my Bookshare membership last month, so really I should have plenty to read.

Enjoying

Firstly, cooler weather. It was really hot here last week, but this week, it’s about 20 to 25 degrees Celsius, which is nice. I even managed to exercise on the elliptical again yesterday, despite my room being the hottest in the house.

Secondly, I enjoyed my birthday gifts. Last week was my 33rd birthday and I got some lovely presents.

Finding

Myself a living facility soon, hopefully. I will be finding out more about the living facility with my current care agency next week, as I will be visiting there then for an orientation meeting.

Saving

Money. Or at least, trying to. I found out last week that, now that I fall under long-term care rather than community support, my copay for the exact same care will be 140 euros a month rather than nothing. It will be 330 euros once I go into a living facility. Ugh. Since my husband and I may be buying a house too (for him to live in full-time and me on week-ends), this may help us reduce the monthly cost for living there. Mortgages are usually cheaper than rent, after all. Still, it doesn’t hurt to save some money.

Tasting

Lentils. And I actually liked them. My husband made a rice dish with them in it on Saturday. I don’t usually (think I) like lentils, but in this meal, they were good.

What have you been up to lately?

#WeekendCoffeeShare (June 23, 2019)

A lot has been floating through my mind today, but until I decided to participate in #WeekendCoffeeShare again, I had no idea how I was going to convey my thoughts into a blog post.

Like last week, I’m having a cup of green tea as we catch up. I love green tea, more so than coffee. I must say though that I’ma bit addicted to coffee. I drink it more to get energized or out of habit than because I truly like it.

If we were having coffee (or green tea), I’d share how I’ve been doing with respect to finding a living facility. On Tuesday, I had an appt with the care consultant for a facility with my current care agency. Because he isn’t in a position to decide whether I’m a good fit, I’ll have to wait for him to discuss my case with the behavioral specialist and manager. He said he’d call my support coordinator next Tuesday, but wasn’t sure whether he’d have any news by then yet.

Because I wanted to remain active, my support coordinator has been contacting some other agencies. We started with the two national blindness agencies. Bartiméus has living facilities about an hour’s drive from my current home. Visio’s living facilities are all at least 90 minutes away. Visio was the first to return my support coordinator’s call and I have a meeting with them next week.

My husband was a little sad, as he thought I want to live in Visio’s facility that’s nearly a two-hour drive away. Of course, I want to be as close to my husband as possible, but I didn’t know how to go about finding a suitable living facility. My support coordinator is going to contact other agencies closer to my current home next week. These are not for the blind, but oh well.

If we were having coffee, I’d also share about our house-hunting experience. The visit to the house on Tuesday was okay, but after reading some reports on it, we decided not to go for it after all.

If we were having coffee, I’d share that my husband and I had lunch at a pancake restaurant today. I had a pancake with blueberries, while my husband had one with raisins and bacon as always.

If we were having coffee, I’d also share that the screen reader company finally called to let me know I could get a new version of JAWS, my screen reader for Windows, covered by health insurance. It is also about time for a new Braille display, he said, and they could let health insurance pay for both in one go. This means that after an eighteen-months-long wait, I may finally be able to get a PC with Windows 10 and the screen reader I love. Of course, I already have a Mac and hence I told the company rep I had to think of it.

My husband was critical at first. He asked which I’d get rid of if I had to choose one: my Mac or a PC with Windows 10 and JAWS. I said I’d get rid of my Mac. I mean, I’ve had it for nearly half a year and still struggle to use it. Other blind people say that’s normal, but I really don’t want to spend that long getting used to a computer. I mean, that’s how long it took me to get used to my very first PC! So my husband offered to get me a laptop with Windows 10 and all if he can have my Mac.

I have been thinking it over and the only thing I can do with my Mac that was a pain on PC was using a good feed reader. Then again, I can’t get used to the way Safari works on Mac, so if I want to actually interact with feeds, I’ll still prefer my iPhone. I no longer use my PC, because it has two broken keys and its Windows 8.1 won’t properly update.

Anyway, I’m going to call the company rep to let him know I’ll go for getting the Braille package as it’s called tomorrow.

If we were having coffee, I’d also share that it’s incredibly hot outside. In the coming week, it’s forecasted to get to 35 degrees Celsius or more. That’s no fun, as we don’t have air conditioning at home or at day activities.

The coming week should be exciting. Tomorrow, the day activities staff are taking some fellow clients and me to a local park and having lunch at a restaurant there.

Next Thursday is my birthday. I love it each year. We are going to eat at an Irish pub with my parents then. My sister and her husband are coming over for a visit on Saturday.

How have you been?

Gratitude List (June 22, 2019) #TToT

I am feeling okay. Not bad, not good. I am however rather uninspired as to what to write. For this reason, and to hopefully lift up my mood just a little, I’m going to participate in Ten Things of Thankful (#TToT). Here is my gratitude list for the past week. Man, it’s been forever since I did those.

1. Eating rice. My husband bought a rice cooker last week. I love rice, but my husband doesn’t like it when he cooks it the regular way. He does like it when cooked in the rice cooker though. We had rice or risotto several times this past week.

2. Lunch out with my husband. On Tuesday, my husband and I went for a visit at a house we might want to buy. It didn’t work out in the end, but the lunch beforehand was good.

3. My husband preparing my breakfast a few times. My husband is off work this week and next week, which means he’s still in the house when I get up at 7:20AM. Normally he leaves the house at between 5:00 and 6:00AM. He prepared my breakfast a few times this week, making me a cup of coffee. I’m normally too lazy and in a rush to make coffee for myself on week days, so this was extra lovely.

4. Nice weather. It’s been pretty good all week. For next week, the temperature is supposed to rise to 35 degrees Celsius, which isn’t what I like. But I’m thankful to be able to wear summer clothes.

5. Being productive in finding me a living facility. We had a meeting with the care consultant for a facility with my current care agency on Tuesday. The outcome was vague, as this person wasn’t in a position to decide whether I’d be a good fit. However, my support coordinator has been trying to contact several other care agencies.

6. Some nice walks with my support coordinator. On Wednesday and Thursday, when we finished the work we were doing for finding me a living facility, we went for a walk. It was fun.

7. Getting free candy. At the marketplace near my day activities, there is a candy, nuts and dried fruits vendor I regularly buy candy at when we visit the marketplace each Friday. This past Friday, he gave the staff some free candy to give us during coffee breaks.

8. Trying out some new workouts. I’m currently trying squats and such, which are incredibly hard. I also reached my five-day exercise goal, but cheated a little, as walks of 15 minutes or more do count and I didn’t go on the elliptical.

9. Curly fries again, yay! I hadn’t had them in a really long time, but my husband ordered them for me yesterday.

10. Leftovers from a fellow client’s celebrating 25 years working at my day activities. I didn’t attend the celebration itself, as it was on Tuesday afternoon, when we were visiting the house on sale. However, we had lots of leftovers on Wednesday.

Oh my, I’m really obsessing about food as I write this list. Can you tell I love eating? Well yeah, I do. Now going to try to exercise some.

#WeekendCoffeeShare (June 16, 2019)

I have a ton I want to write about, but I’m not sure I can dedicate a full post to any one of these things. For this reason, I’m joining in with #WeekendCoffeeShare. I should really make this a regular habit, but for whatever reason, I cannot seem to make anything a regular habit where it comes to my blog. Anyway, grab a cup of coffee, while I grab a cup of green tea. Let’s catch up.

If we were having coffee, I’d like to share that this week has been pretty exciting. Not that anything much has happened, but we have a ton of plans layed out for the coming while.

For example, my husband decided he wants to go have a look at a house that’s for sale. It’s in his work city, which would mean a lot of time and money saved on commute. It’s a really old house, but my father said modernizing it should be relatively easy. My husband and I are going to have a formal visit on Tuesday.

My husband did ask whether, if I move there with him, I’ll retain my care. I said yes. The last time I participated in the weekend coffee share linky, I was awaiting news about my long-term care appeal. Well, I won! On June 4, I got approved for long-term care.

This also means I can start looking for a living facility. However, if my husband and I decide to buy the house and move before I’ve found a suitable facility, I will retain my current home support and day activities even though that city isn’t in our local authority. That’s as much as my parents know about long-term care. I haven’t told them I’m probably moving into a care facility.

Speaking of living facilities, I’ll meet with the care consultant for a living facility next Tuesday. This facility is about an hour’s drive from my current home, but it is with my current care agency and seems more suitable than the facility I toured in January. I cannot be sure of that, of course, as I have yet to be fully informed. So on Tuesday morning, I’ll meet with the care consultant and then in the afternoon, I’ll accompany my husband to the house visit.

If we were having coffee, I’d also share that my husband bought a rice cooker. He doesn’t like rice the way he usually cooks it, so was trying whether a rice cooker would help. I liked it. I really love the smell of rice!

#WeekendCoffeeShare (May 25, 2019)

And yet again, I did not write for almost an entire week. Fortunately, this time it isn’t because my depression is worse. It’s still there, mind you, but it’s not worse than it was a week ago. I don’t really know why I couldn’t find the mojo to write again. To get back into the swing of things, I’m joining in with #WeekendCoffeeShare. So grab a cup of coffee and let’s catch up. That is, I’d rather have a glass of ice-cold water right now, but if you’d like a coffee, that’s fine with me too.

This week has been a bit boring but also exciting. This week was when I was supposed to get news regarding my care situation. I still can’t disclose details. That will hopefully change soon, as I did get some news and may know for sure where I’m at this coming Tuesday. For those who don’t know, I’m in the process of applying for long-term care. Please all pray and send positive vibes my way.

On Wednesday, I normally struggle at day activities, because it’s the busiest day and we have a cooking activity then. I tend to want to be in control then and struggle trying not to be bossy. This Wednesday though, I did pretty well. I was even able to help with the cooking itself.

I’ve been fairly active as far as exercise is concerned. I went swimming with my day activities group on Tuesday. I nailed my step goal (10,000 steps) on Wednesday and nearly on Thursday too. I also finally got back into the swing of going on the elliptical regularly. As such, I got over four hours of exercise this past week.

My husbband invited me out for dinner at a chicken restaurant this evening. I love love love chicken and this place didn’t disappoint. It was an hour’s drive from our home, but my husband doesn’t mind driving.

Tomorrow, I’m probably going to have a relaxing day. We might visit my in-laws, as we usually do on Saturday but didn’t today. Other than that, I’m just hoping my day will go by okay.