Hello Monday (July 24, 2023)

Hi everyone. I’m joining Hello Monday for a weekend recap. The weekend was a true mixed bag, but those who know how much I’ve been struggling please do read on till the end for some exciting news.

Saturday was a truly crappy day. I got a total stranger as my one-on-one for the morning. This is not unusual, but the crappiness started as soon as I voiced my discomfort with her being a total stranger. Rather than try to comfort me, she was like: “What about if I leave you alone till coffee time?” Coffee time is at 11AM and it was just past 10AM. I said no, because despite what the staff here seem to think my one-on-one isn’t a mere suggestion. Fifteen minutes later, she was like: “I haven’t had breakfast yet. I need to grab some food, see you at coffee time, okay?” I went to the communal room, where my assigned staff happened to be, who set this straight with my would-be one-on-one. After that, we played some card games, had coffee and then she quickly decided to swap places with another staff. He’s not a stranger. Not someone I get along with, but at least I know what to expect of him (which is very little, to be honest).

In the evening, there was a staff shortage until 6PM and of course I was asked to come to the communal room to unburden the staff (his literal words). Then I got a staff I barely knew once again and only could play card games once again.

Sunday was better. I did get an unfamiliar one-on-one in the morning, but at least my spouse came by for a visit. We once again drove to Apeldoorn for lunch at Backwerk and hopped into Holland and Barrett for some essential oils. My spouse got a discount card even though we rarely shop there.

In the evening, my new support coordinator – did I share my old one left the agency a few weeks ago? – was my one-on-one for an hour. We went for a walk and discussed some aspects of my care, both unaware of the E-mail landing in my inbox at 7PM. My mother-in-law had forwarded it to me. It was originally sent to her at 11AM that morning. The subject line read something like: Painting Astrid’s new room.

The E-mail started with something like: “I am [name], support coordinator for Astrid’s new care home, [home].” The person writing the E-mail then went on to tell my mother-in-law that, when moving, a client can have one wall in their room painted in a desired color, and which color would I like?

I had heard my assigned staff mention this home among the possible homes considered for me, but I had absolutely no idea I had been accepted into it. I don’t know anything about the home other than what the care agency’s website says, which isn’t to be trusted due to the fact that they make things look better than they are. However, it isn’t really like I care. Any small improvement over the care I receive here is greatly appreciated.

Today, I confirmed with my support coordinator that I am indeed moving to this home. When the move will be, is not yet known for sure, but I’ll find out about two weeks in advance and be able to take a look around a few days before the actual move.

And for those who are wondering, I chose lilac as the color for my wall.

10 thoughts on “Hello Monday (July 24, 2023)

    1. Thanks so much. I’m happy about it too. By the way, the wall will likely be painted pink, as lilac wasn’t available. I did ask about another shade of purple, but haven’t heard back yet.

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    1. I just found out they’ll likely paint my wall pink, as lilac wasn’t available. I asked whether another color purple was. Otherwise pink is fine by me too. I can’t see it anyway.

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  1. Some of the staff people you have to deal with sound horrific. Whoever uses the word “unburden” while working in the care field must have really missed their true vocation or something. And it’s so awful having to deal with new people almost all the time so as I think I might’ve already said I really feel for you in that respect.

    But the new care home sounds like a great news! I don’t know, maybe it’s not as big of a thing as it seems to me, but if I were to draw some conclusions based just on what you’ve said in this post I’d think this must be quite a decent home, if they care about personalising people’s rooms and want to know what your favourite colour is even though you’re blind. I guess a lot of people would have just conveniently assumed that if you’re blind, it doesn’t even matter and they’d be happy to skip the room painting part, not even caring whether you may have/have had some colour vision. So it seems like a really good sign. 🙂 Wishing you best of luck with this.

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    1. Thank you so much for your thoughtful comment. I hadn’t thought of it like this, but indeed, it is a positive sign that the staff consider my personal preferences without me even asking. Back when I got here, the staff, a temp worker actually even though he works here regularly, only answered my questions in a very disinterested manner. By the way, I eventually chose pink out of the colors that are available.

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    1. Thank you so much. I really hope that the fact that I wasn’t given any info about the home other than what I looked up myself, doesn’t mean they’re going to treat me exactly like they do here and just magically expect different results just because I’m at a different home.

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