#WeekendCoffeeShare (July 9, 2021)

Posted on by Astrid

Hi everyone on this partly sunny and warm Friday evening. I’m joining #WeekendCoffeeShare. I’m afraid it isn’t time for our evening coffee for another hour yet, but I can offer you a glass of water or of course make you a Senseo coffee in my own coffee maker. Let’s have a drink and let’s catch up.

If we were having coffee, firstly I’d share about the topiramate. Yay, I finally started it and yay for no side effects! That being said, I’m not noticing any positive effects either as of yet and my nurse practitioner said it’ll be four to six weeks before we’ll increase my dosage. That disappointed me a bit, given that the max dosage for PTSD symptoms is six times what I take now, so it’ll take at least six months to get to that level and then if we decide this medication isn’t for me after all, six more months to get back off. Maybe I’m wrong here, since I’ve never had a medication not work on me at all before. I’ll discuss all this with my nurse practitioner when I next see him. Of course, here’s hoping the medication will start working in a few weeks.

Next, if we were having coffee, I’d share that I’ve experienced an increase in motivation lately. This has been going on for a few weeks already, but I’m noticing it might stick around longer now. Usually, it only lasts for a week or so and then diminishes again.

I have not been as crafty this past week as I was last week, but still I’ve not been disappointed with my level of activity.

If we were having coffee, I’d tell you that I talked with the care facility’s behavior specialist yesterday. We decided to let the moving care homes issue rest for a bit, but get back to it in about two months’ time. I really do hope we can work on making my life in my current care facility better, as she’s right that every place has its positive and negative sides.

If we were having coffee, I’d moan about the rapid increase in COVID cases here in the Netherlands. We’re due to get another press conference from the prime minister at 7PM. I’m not expecting any measures that will affect me directly, but still, it sucks.

If we were having coffee, I would share that I’ve been spending quite a bit of money on my hobbies lately. I ordered several new essential oils, including the Roman chamomile I mentioned on Wednesday, as well as a full liter bottle of sweet almond oil. I also ordered a kitchen scale. Not a talking one, as they’re too expensive for my liking. I’m hoping all my supplies will arrive either tomorrow or next Monday.

If we were having coffee, lastly I’d tell you I’m loving looking at sites for bath and body recipes. I already created a pink grapefruit and lemon massage oil. Since both essential oils are phototoxic, I took extra care to dilute them properly and so far, so good. I used the oil on my hands yesterday and am absolutely fine despite the sunshine now.

How have you been?

#WeekendCoffeeShare (May 15, 2021)

Posted on by Astrid

Hi everyone on this partly cloudy but thankfully not too rainy Saturday! Today I’m once again joining in with #WeekendCoffeeShare. I just had my afternoon coffee for today, but there’s probably still some left. Or you can grab a cup of tea or a soft drink. Let’s have a drink and let’s catch up.

If we were having coffee, I’d share that this week has been rather eventful. It started out with my psychiatrist’s appointment on Monday. Like I said, I was overcome with disbelief at how seriously the psychiatrist and my nurse practitioner took me.

Over the entire week, I’ve had a lot of emotional and visual flashbacks related to my trauma. I’ve also experienced some form of near-psychotic-like symptoms where I confused the past with the present. My inner life feels like a rollercoaster ride of dissociation, anxiety, paranoia and more. I really hope that I can start the topiramate soon and that it will help. I did try to take my PRN quetiapine a few times, but it hardly really helped.

If we were having coffee, I would tell you that my mother-in-law visited me on Tuesday. We went for an hour’s long walk and got fried fish at the marketplace near my neighborhood supermarket on the way back. Unfortunately, it started to rain just when we’d finished our fish, before we were back to the care facility. Thankfully, the rain wasn’t too heavy.

If we were having coffee, I would tell you that, despite not meeting my step goal of 10K for several days so far, I’m still on track for this week. The reason is the fact that, early in the week, I surpassed my goal. I even got in 17K steps on Wednesday.

If we were having coffee, I would tell you that my sister had her birthday on Thursday. I sent her a present (a book) already last week, but she wouldn’t open it till her actual birthday. My mother posted a picture on my sister’s FB of the card she’d sent announcing my sister’s birth. It showed me as a toddler and my sister as a newborn. My sister commented with a recent picture of my niece in which she looks just like me in the card, saying that toddler (leaving it to interpretation whether she meant me or my niece) is more beautiful.

If we were having coffee, I’d tell you that I’m seriously considering buying Apple Airpods Pro. I really want in-ear earplugs so that I can listen to soundscapes or soothing music when going to sleep. I also badly want them to have noise-canceling functionality.

Unfortunately though, I haven’t had the announcement from the benefits authority of my getting my annual vacation allowance, which should be in my bank account later this month. I had originally planned to buy the Airpods (and maybe an Apple Watch too) for that money. However, with the Braille display expense scare last week, I’m a little more careful now.

If we were having coffee, I’d share about the online magazine on cerebral palsy I found out about earlier this week. CP Netherlands created it and it’s lovely. I read in it, among other things, about a radio news reader who has CP.

If we were having coffee, lastly I’d tell you that my AFO broke sometime today. I have no idea how it happened, but my staff saw it when I wanted to put it on this afternoon. Ugh, I hate it when my adaptive equipment breaks down.

How have you been?

Gratitude List (January 17, 2021)

Posted on by Astrid

It’s nearly 2AM and I can’t sleep. I woke up about two hours ago after only an hour or two of sleep. I’m kind of worried. To calm my mind, I decided to do a gratitude list. I can’t find the Ten Things of Thankful link-up, but that doesn’t keep me from being grateful.

1. I am grateful for my one-on-one support. I’ve been a bit stressed lately and thankfully, they help me manage it.

2. I am grateful for a financial positive. I won’t believe it till the money is actually in my bank account, but if I’m correct, I won’t have to pay a higher long-term care copay this year. This means my net paycheck will be higher than it was last year.

3. I am grateful that I felt comfortable ordering some new soaping supplies. I ordered almond oil, coconut oil, cocoa butter, shea butter, beeswax, Dead Sea salt and some water-soluble colorants for my soap and other bath and body products. I am hoping, once they arrive, to be able to make bath melts with the oils, butters and beeswax and bath salt with the Dead Sea salt.

4. I am grateful for heart-shaped candies. Last Monday, my staff had a team meeting and one of them brought these, then put the leftover candies in a box with my name on it. The other clients, after all, can’t eat hard candy.

5. I am grateful for cookies. Like I said yesterday, my one-on-one helped me bake those. They were really good.

6. I am grateful for Mexican bean wraps. My day activities staff and I made those for lunch on Wednesday and they were good.

7. I am grateful my bath bomb turned out pretty good. I will have to check whether I placed the image correctly in my last post, but oh well. I didn’t end up taking a bath last evening, but I might today or sometime next week.

8. I am grateful for a lot of Christian self-help books. I’m still struggling with my faith, but they definitely help me realize that I can’t and don’t need to be alone.

9. I am grateful for a nice phone conversation with my father. I was a little stressed about it at first, as I hadn’t spoken to him in a few months. However, it went really well.

10. I am grateful that I have the right to vote. I am not yet sure whom I’ll vote for, but I’m so glad I live in a democracy.

What are you grateful for?

#WeekendCoffeeShare (January 3, 2021)

Posted on by Astrid

Hi everyone. It’s the middle of the night and I’m thinking of actually making myself a coffee. I’m too scared though that the night staff will hear me. I do have a Senseo coffee maker in my room, but still it might make a noise. Instead of making a coffee, I’m joining in with #WeekendCoffeeShare. This will be the last week of Alli’s hosting it. From next week on, Natalie will be taking over. I hope it will continue to be a success. Anyway, let’s have a virtual coffee and let’s catch up.

If we were having coffee, I’d share that the holidays were pretty good, but I’m also so grateful they are over. I spent new year’s in Lobith with my husband. My oldest sister-in-law also came by for a few hours. It was good.

If we were having coffee, I’d share that, as you can tell, I’m really hyper right now. I tried to go to sleep at around 9:45PM, but soon decided I didn’t want to sleep yet. I texted my husband about the wax melts I’d bought for him and then went back to bed. Still no luck. Let me just say it’s now nearly half past three at night and I’m still wide awake.

I have mostly been reading other blogs. I have a lot of inspiration for new blog posts now. Hope my energy doesn’t dry up soon, so that I can actually write those blog posts.

If we were having coffee, I’d tell you too about all the wax melts I bought. I used to have a Yankee Candle Scenterpiece wax melt burner, but I left it in Lobith because it’d be a bit of a hazard here. Not that it gets really hot or produces flames, but I still don’t want liquid wax all over my phone (it almost happened once when I still lived in our old home).

Anyway, now my husband apparently likes to burn wax melts, but he says I’m the scent expert. I am, a little, with respect to essential oils. I wouldn’t say I am a better judge of what are good wax melt scents or what my husband would like than he is though. Still, of course I’m honored.

I bought two Scenterpiece meltcups. These are €5.99 each, but the good thing is their cups can be reused for smaller wax melts. I got the sun-drenched apricot rose and the frosty gingerbread meltcups. The other ones I got are tarts, which are sold at €1.99 each. In total, shipping included, I spent about €27.

It feels good to be able to spend money again. Over the past few months, I’d hardly been spending money on fun things, because I’d worried about my long-term care copay. Like I said yesterday, it will likely increase by at least €70 a month, but my husband reassured me I can handle that.

That being said, it also feels very good to be able to find free stuff, like some books I got thanks to Bookbub. It doesn’t feel like I’ve been living a scroogey life at all.

What’s been going on with you?

Editing to add: I had just published this post when I realized it’s my 600th, woot woot! *Does a little happy dance.* Here’s to many more posts.

Gratitude List (January 2, 2021) #TToT

Posted on by Astrid

Yay, it’s Saturday and that means I’m going to write another gratitude list. I didn’t specifically resolve to be more grateful this year, but I already set a goal to do a weekly gratitude list in November. As usual, I’m joining in with Ten Things of Thankful (#TToT). Here goes.

1. I am grateful my extra one-on-one care got approved. The staff and manager will meet next week to discuss how to fill in the hours and whether extra staff will need to be hired for it. So far though, nothing will change for me, as I already had some one-on-one as of mid-November. I’m so glad it doesn’t stop though!

2. I am grateful for financial security. My long-term care copay is likely to increase by at least €70 a month this year, but it’s because my husband’s and my household income has increased. I’m pretty sure I can afford this increase without having to live extremely frugally.

3. Speaking of which, I am so grateful my husband bought a new-to-us car. We used to have a Suzuki Wagon R+, but that one wasn’t too comfortable on long drives. It also needed repairing anyway. Of course, buying another car rather than repairing your current one is rarely the economical choice (my husband calculated that it would be if we bought a very small car). He wanted some luxury though and so do I. We now have a Volkswagen Golf.

4. I am grateful for oliebollen and other new year’s snacks. I didn’t eat too many, but I did have some treats.

5. I am grateful for a relatively peaceful new year’s. My sister-in-law came by. My husband had made it clear beforehand that I could always retreat into the bedroom to go on my phone, so I did that a few times.

6. I am grateful for toast with sausages on it for lunch today. I’d never had this before, but it was good.

7. I am grateful for really good essential oil combinations in my diffuser. I even managed to make one that’s good even though there’s geranium in it. I normally hate that scent (don’t ask me why I bought it then), but combined with lavender, orange and cedarwood, it’s good.

8. I am grateful for a really nice nap this afternoon. I had the aforementioned combination of essential oils in my diffuser and slept like a log.

9. I am grateful the festivities are over with for now for a while. They were good, but I’d like to have some normal weeks now.

10. I am so grateful for still no COVID at my care home! I could post that one every week, because of course each week without COVID is a blessing, but well.

What are you grateful for?

Things I Want to Buy Someday #Blogtober20

Posted on by Astrid

Hi all on this late Thursday evening! I’m very late to write my blog post for today, but better late than never. Today’s prompt for #Blogtober20 is “All That She Wants”. For this topic, I’m going to list some products I’ve been oohing and aahing at but haven’t bought (yet).

1. An Apple Watch. Okay, I just ordered a Fitbit Inspire 2, so I cannot say I need the Apple Watch for the fitness tracking capabilities anymore. However, before I finally decided to order the Fitbit, I had been gazing at the Apple Watch. What kept me from buying it, is the fact that it’s incredibly expensive. I also was held back by the fact that the watch’s wristband contains a small amount of nickel. In fact, that’s what kept me from buying any fitness tracker until now. I know, the Fitbit wristbands contain nickel too, but I’ve decided to just take the risk and maybe nail polish the wristband clasp. The Fitbit costs €99,95, whereas the Apple Watch is over €400.

2. Airpods Pro. Yeah, I’m an Apple product fan. I already have bluetooth headphones with noise canceling, but mine don’t work with Siri and I can never be sure whether I have noise canceling on or off. Airpods, being in-ear, are also much easier to wear while lying down. I may purchase those next month or maybe I’ll wait till I’ve saved some money at the end of the year.

3. The advent calendar from The Body Shop. This is a less expensive product – the ultimate one costs €130 and the regular one is €50. However, I still think it’s a bit of an unnecessary purchase, so I’d rather just look without buying.

4. A writing course. I did at one point look at Writer’s Digest and Writers Write. Both have pretty cool courses, but they’re priced at like €300 each. Similarly, I’ve always looked with delight at the International Association of Journal Writers (IAJW) coaching programs, but even if you’re a member (which I was for a while), they’re still pretty expensive.

What things are on your wishlist for when you have more money to spend?

#Blogtober20

Five Things I Enjoyed During Lockdown #5Things

Posted on by Astrid

Today I’m joining in with the Five Things Challenge, for which the topic this week is things we enjoyed during lockdown.

Now I must say we had an “intelligent” lockddown here. Most businesses were closed, as were schools and restaurants. Many people still weren’t taking it seriously. After a week of school and business closures, on March 23, the prime minister announced stricter enforcement of the stay-at-home order. That’s when he invented the term “intelligent lockdown”. The care facility implemented a no-visitors policy after this. Still, there were no curfews or rigid restrictions on where or when you could be outside. As such, my list may be a little different from that of those who experienced a complete lockdown. Here goes.

1. Walking. Like I said, we didn’t have a curfew. Still, according to Fitbit, in the Netherlands too steps taken dropped significantly during lockdown. I, however, was able to increase my steps a lot.

2. Blogging. It’s great that the #AtoZChallenge was in April, in the midst of lockdown. I truly enjoyed blogging almost everyday during the strictest stay-at-home orders.

3. Reading. Similarly, suddenly I had time to read. Not only did I not go visit my husband or need to fulfill other obligations, but the day center was (and still is) closed. At the day center, I occasionally tried to read, but the noise was just too much. As a result, I had much more time to read. I don’t think I finished any of the books on my lockdown TBR list, but that’s probably because I’m a mood reader.

4. Saving money. Okay, that’s not something I did, but it did happen. I didn’t go out to dinner or have to buy transportation tickets to go to my husband. I didn’t get my hair done, which was really okay as I hate getting it done. In the end, I ended up saving some money. Then I bought my iPhone, of course.

5. Snacking. In the early weeks of lockdown, I was using the added stressor as an excuse to snack on candy and cookies and basically anything. Magically, I more or less maintained my weight throughout the lockdown. I’m due to get weighed in tomorrow again.

What were the positives of the lockdown for you?

Carol and Jane

Posted on by Astrid

This week’s Reena’s Exploration Challenge is all about describing the interactions between (your) thinking brain and feeling brain as if they’re characters, perspectives or mindsets. In the theory of dissociative identity disorder, alters are divided into two categories: apparently normal parts (ANPs) and emotional parts (EPs). Some theorists refer to them as Daily Living and Trauma Fixated parts instead. Additionally, I have experience with dialectical behavior therapy, which has the concepts of rational and emotional mind and Wise Mind as the goal to integrate the two.

I don’t believe in the rigid ANP/EP divide and the alters I’m going to describe in the piece below, would most likely both be seen as EPs, even though they’re on opposite ends of a spectrum. You see, one of the main triggers for identity confusion for me is the inability to integrate my low functioning level with regards to my social and emotional development with my at least somewhat above-average verbal IQ. In this sense, Carol and Jane do represent thinking brain and feeling brain.

Yesterday I struggled. I got an official reminder from local taxes from when my husband and I still lived together in the tiny village. An official reminder means they’d previously sent out another type of reminder that doesn’t come with extra costs. This one did come with extra costs and the next step, if I don’t pay, would be a debt collector’s visit. I don’t know why the reminder was only sent to my My Government inbox and not to my husband’s and I didn’t understand the reminder. I texted my husband to ask him for help. By this time, Carol, the alter who is very emotionally immature and vulnerable, was already getting upset. Why don’t I just go under financial management and never bother with money again?

My husband was a little annoyed that I shoved this task onto his plate. For this reason, Jane, who wants to be the intelligent, successful, self-reliant one, said: “Okay, I’ll solve it.” Carol was still prominently present in my mind and she has difficulty thinking clearly. In the end, I paid off the tax debt, but put the wrong identification number in the Comments field. This means the tax agency won’t be able to identify me as the debtor, so it may mean I lost the money. It was €160.

From there on, Carol took full control of my mind. I cried my eyes out and really wished I could crawl under the covers, get a guardian, be supported in the care facility and never worry about difficult decisions again. I didn’t even feel like seeing my husband, as Carol feels too inadequate for marriage.

Ultimately, the situation got sorted (hopefully). My husband sent out an E-mail to the tax agency asking them to either process my payment with the wrong number or return it to me so I can submit it again. Still, this whole situation has us (as in, me with all my parts) truly triggered. It’s a sad reality that each time, I am confronted with the disconnect between my good intellectual functioning and my poor emotional functioning.

#WeekendCoffeeShare (August 18, 2019)

Posted on by Astrid

It’s Sunday. This usually means I’m joining in with #WeekendCoffeeShare. I didn’t last week, because I couldn’t find the time amidst reading and writing other posts. Today though, I’m joining in again.

I am full from all the French fries and snacks I had this evening. I don’t think I can manage to drink a cup of coffee or even green tea right now, but if you’d like one, grab a cup and let’s catch up.

If we were having coffee, I’d ask you how your week has been. Mine has been a truly mixed bag. I felt rather stressed out at day activities a lot of the time, particularly on Tuesday and Wednesday. On Tuesday, a staff who would’ve been in charge of one group by herself was off sick. For this reason, the clients of that group had to be divided between the other groups. Besides, the staff who was sick, ran the kitchen group, so we had to do our own dishwashing and all. This was all a bit chaotic and I felt very off most of the day.

Then on Wednesday, we had an argument with one of the staff. She was trying to make me go to a rather useless fitness course. I had been dreading going to the course for weeks. I don’t think it’s a bad idea to have a fitness course at day activities, but it involved meditation and information about nutrition and health. No problem, but all my fellow clients are severely intellectually disabled. I don’t think that they have no right to benefit from this class if they feel it’s worth it, but I felt it didn’t fit me.

Thankfully Friday was better and we had a lot of fun.

If we were having coffee, I’d share that yesterday, my husband drove all the way to Schiphol airport to find a bank that was open on Saturday past 2PM, so that we could make the final arrangements for our mortgage on the house we settled on. This merely involved showing our IDs so the bank knew we were who we said we are. Then only the people at Schiphol were too busy to help us. It’s understandable that banks need you to physically show up with your ID before they serve you, but then it sucks that this can only happen during office hours. Officially we’d even have to show up together, but my husband found a way around that. Now my husband is going to try to drive by the bank in one of the cities he has to go to with his truck tomorrow and I’m going to the nearest bank with my mother-in-law on Wednesday.

If we were having coffee, I’d share that we had fries each day of the week-end. We always get ourselves fries on Friday. Then yesterday on the way back from Schiphol, we found ourselves a nice restaurant to eat at. I had a huge burger there. Then today, my father-in-law is visiting us (he’s watching TV with my husband right now) and he brought fries too.

If we were having coffee, lastly I’d share that I’m not as inspired or creative anymore as I was last week. Then I spent all the time actually doing sort-of-useful activities, including reading, blogging and such. Now I’m still not totally passive, but I”m feeling a slightly lower mood coming on.

How have you been?

Gratitude List (July 27, 2019) #TToT

Posted on by Astrid

I haven’t participated in #TToT in forever. Today, I’m wanting to join in once again. I recently joined their Facebook group too and I promised to be active then. So here are the things I’ve been grateful for lately.

1. A lovely walk on Monday. We got a heatwave here, so for most of the week, it’s been impossible to exercise or go outside much at all. It’s summer break, so the intern who normally takes me on the weekly walk, isn’t there. Thankfully, the staff decided they can have me join in the walk anyway.

2. My computer behaving as it’s supposed to. I got a new PC a few weeks ago and sold my Mac and overall, I’m so happy I did. It took a little getting used to trying to figure out E-mail, feed readers and such, during which time I spent $36 on a feed reader that wasn’t ideal. Then I finally decided that if I just accept that I’ll need to use both Google Chrome and Firefox regularly, I’ll do fine with my old friend (no pun intended) The Old Reader. It after all works fine in Google Chrome, but Facebook doesn’t. Now I’m just so delighted I have a Windows PC again.

3. Having been able to save more money than I expected. I will probably soon get a bill for €140 a month or more in copay for my long-term care. My husband offered to contribute more to our monthly bills so that I do not have to be responsible for cutting the full amount of money, but I’ll still need to save some. As such, I’m so delighted that I saved over €100 more than I’d expected during the month of July.

4. My husband and I probably buying a house soon. We placed an offer on it last week and, after some negotiation, reached an agreement on the price. We’ll soon sign the draft agreement and hopefully be house owners by late September or early October.

5. Having gotten through the worst of the heatwave. It was boring at day activities, because I couldn’t go outside. Then again, I made it through and did okay. I made sure to drink enough water. As a side note, my autistic perseveration side does love the weather records that were broken.

6. Peaches. I bought some with my support worker on Thursday. I love summer fruits, but blueberries are too expensive for my budget now.

7. One-on-one time with a support staff at day activities on Friday. She had to return a walker to another day center that they’d been trying out for another client. She offered to take me, so we drove to the other day center, then to a hotel to have a drink at its restaurant. She told me to have something to eat too, so I chose tiramisu. My husband’s tiramisu is better, but still it was a great treat.

8. The weather being slightly cooler now. Like I said, all heat records were broken on Wednesday and Thursday and, though it’s still pretty hot, I’m enjoying the slightly less extreme temperatures now. Mind you, it’s still supposed to have gotten to 30 degrees Celsius today, but it feels almost cold now that my husband just opened my window. (I can’t open or close my window because I can’t reach that far.) Phew!

As you can see, I didn’t get to ten things to be thankful for. I blame this on the heat and my brain melting away. I hope you’ve all been grateful lately.