The Future Is Not Clear #SoCS

SoCS Badge 2019-2020

Exactly a month ago, I made the decision to start the process of looking for another care facility to live in long-term. I felt, at the time, that it’d take at least two years before I would’ve found a place and I was fine with that. Now, though I am still fine with the fact that it might take years before I’ve found the near-perfect place, my forever home as it were (oh boy, that sounds like the afterlife to me, haha), the path inbetween not being clear, doesn’t sit right with me.

I like to have control. I don’t like to have made my wishes clear and then not hear from the care consultant for months until he’s heard from an agency or something and they want to meet me. I don’t like the fact that a lot might’ve been discussed by those agencies with my behavior specialist or the care consultant or whatever without me knowing anything about it. That feels too vague. Besides, it feels as though I have no influence over it. Which may or may not be true.

In this sense, the fact that I’m intelligent, works both for and against me. My fellow residents, who have severe to profound intellectual disability, don’t even know anything about such big decisions. Yesterday, the least intellectually disabled of them moved rooms and he seemed to have had little say in the matter. That sounds very scary to me. I want to have a say. Yet if I can’t, and things are made clear at my level of understanding, as they were with him, then maybe it’d be easier.

Now, I do intellectually understand a concept like two years or more, but emotionally, it’s very hard to grasp. I wish the future were more tangible in this sense.


This post was written for Stream of Consciousness Saturday (#SoCS), for which the prompt today is “clear”.

Locus of Control

Like I said on Tuesday, I am regularly reminded of the need to change my attitude rather than my external circumstances, such as my living situation, in order to improve my quality of life. There may be some truth to this, in that I will always take me with me wherever I go. In this sense, having an internal locus of control – a sense that I myself can change my outlook on life, irrespective of external circumstances – may be the more functional choice. But is it true?

Ultimately, whether I change my attitude or I change my circumstances, doesn’t really matter, in that I am the one doing the changing, and in this sense am the one at least apparently in control, when in reality, I’m not. I, being a Christian, believe that God is ultimately in control, but even if He isn’t, control seems to be a rather elusive thing.


This post was written for the Six Sentence Story link-up, for which the prompt word this week is “control”.

#WeekendCoffeeShare (January 10, 2021)

Hi lovely blog friends! I’m so excited to be joining in on this week’s #WeekendCoffeeShare. It is newly hosted by Natalie and I’m so glad to see so many people have joined in already. I really need to write my coffee share posts earlier in the future, but oh well. At least I haven’t had my last cup of coffee for the day yet.

If we were having coffee, I’d share that the weather is pretty good here. At least for winter. It does drizzle a bit every now and again and yesterday the pavements were a bit slippery from the ice. I thankfully could still go for a walk.

If we were having coffee, I would proudly tell you that I got in nearly twice as many steps over the past week as my sister. I also broke my active heartrate zone minutes record, which was at 405 for the week of November 9, 2020 and is now already at 426. I plan on going for another walk later this evening, so I’ll add more to it.

If we were having coffee, I’d say that I’m planning on keeping a food journal from tomorrow on. I for now don’t intend on sharing it here and I’m not intending on consciously changing anything about my eating as of yet. It’s just so that I can be completely honest about the foods I eat and how I feel about my choices. I have some type of overeater’s journal and it appeals to me.

If we were having coffee, I’d like to ask my fellow Christian bloggers to pray for me. I’m struggling a bit with my faith in relation to my bad habits, including overeating. Basically, I’m stuck on the rules of Overeaters Anonymous and the like, such as three meals a day and nothing in between. I feel resistance to admitting I’m not in control, even though I know I’m not. I may not be making as unhealthy choices in my life as I was a few months ago, but I really need to credit God for this and relinquish my control over to Him.

In a similar way, I’m struggling with admitting I’m a sinful human being. Remember when, a few months ago, I wrote about grief? I felt like I was intensely wicked on some deep level then. Then I learned about Bobby Schuller and his book You Are Beloved and I wanted so badly to believe it, but the enemy keeps telling me I don’t need Jesus for this. I am struggling to realize that, before I believed in Jesus, I was stuck on feeling wicked. Please, if you’re a Christian, pray for my continued spiritual formation.

What’s been going on in your life?

A Letter to My Younger Self #Write31Days

Welcome to day nine in my #Write31Days series on personal growth. Today, I chose yet another prompt from The Self-Exploration Journal. It asks what one piece of advice you would give your younger self if you could go back in time. Ths question couldn’t be more timely, as I’m facing a lot of regrets from the past right now as I face the decision to apply for long-term care. I am spinnning this questioon around a little and going to write a letter to my younger self. I don’t have an idea for the age of this younger self, but the piece of advice should be the same anyway.

Dear Younger Self,

This is your 32-year-old self writing. I want to reassure you that I see you. I see your struggles for autonomy, for self-determination. And yet, I see your struggles with your limitations. You have yet to come to terms with the fact that you’re multiply-disabled.

I see that peope try to control you. Your parents consider you worth parenting only so long as you prove that you’re going to give back by contributing to society. Your support staff try to please your parents, sending you out to live on your own despite knowing this isn’t in your best interest. Your psychologist in Nijmegen, no matter how helpful she is in some respects, still doesn’t provide you with the opportunity to go into the right type of care. She, like eveyrone before her, values your intelligence over your need for support. Your psychologist in Wolfheze blames you. She robs you off your last bit of self-determination by kicking you out of the institution without proper after care.

I want to reassure you. I see your needs. I’m fighting for them to be met. I don’t have enough support yet, but I have people around me who are fighting for it with me. I can’t promise you that you will ultimately get into long-term care, as that’s up to the funding agency to decide. I can however assure you that I’m fighting for you.

If there’s one piece of advice I could give you, it’s to fight for yourself. No-one can live your life but you. You don’t owe your parents anything. You’re past that point. Care staff do only their job. This isn’t to discount the good work my current care staff do, but it’s just that, work. They will eventually fade out of our life. Even your husband, the only person who will most likely stick by you for a long time to come, doesn’t have the right to control you. I know you want to please him, because you love him, but that is different. Pleasing your husband is founded on love, not authority, and it is mutual. Even so, your husband does not live your life. Ultimately, the only person who will live the entirety of your life with you, is you.

I don’t mean this to criticize you at all. I see how hard it is for you to stand up to controling people. But you’ll learn to do so in time.

With love,

Astrid

What one piece of advice would you give your younger self?