#WeekendCoffeeShare (July 13, 2024)

Posted on by Astrid

Hi everyone. I’ve once again not been blogging, but this time it’s not because I’m struggling. Well, I still don’t feel the greatest, but the main reason I haven’t blogged is that something else has caught my attention. I’ll talk about it in a minute. Want a coffee? I’m joining #WeekendCoffeeShare once again. It’s past 10PM, so no coffee for me, but since this is a virtual get-together, you can have whatever you like. Let’s have a drink and let’s catch up.

First, if we were having coffee, I’d share about the weather. It’s been all over the place. On Tuesday, it was hot and humid with a daytime high of 30°C. Then we got this giant thunderstorm. Wednesday and Thursday were still okay with daytime temperatures of around 22°C. Yesterday though, it was not just raining all day, but it was freakin’ frigid with a daytime high of 16°C. Today is slightly better.

If we were having coffee, I’d tell you that, despite having my new Apple Watch wristband, I didn’t meet my movement goals each day this week. I blame the weather. I thankfully no longer care as much as I used to and can sit back and relax every now and again rather than having to keep up with my activity rings. I did try to walk each day (except for yesterday) and went swimming on Thursday too.

If we were having coffee, next I’d tell you that, yesterday, I went to an Eye Association meeting for young people who are blind or visually impaired (and a few who have an eye condition but can still see quite well). I originally thought I’d be too old to qualify as a “young person”, but the target age group is 18-45. I had a good time, but towards the end got quite overloaded. I had a near-meltdown when the taxi driver called me but I couldn’t hear him over the noise in the cafe in which the meeting was held. I for a bit thought I upset the entire group and wouldn’t be welcome anymore, but thankfully it wasn’t this bad according to several people.

If we were having coffee, lastly I’d tell you all about my latest obsession. I originally wanted to write a separate post about it on Thursday, but got distracted by the actual thing. It’s learning Spanish on Duolingo. I’m currently still at the early A1 level of proficiency. My spouse and mother-in-law have both been learning Spanish on this app for several months. What got me into it though was a conversation in a Facebook group about language learning. Some people said Duolingo isn’t always correct, but I’m not sure whether they were referring to a specific language. I can see why though in a way, as for example early on in the Spanish course, you’re learning the word “elegante”, which Duolingo claims translates to “elegant”. Now I’ve never heard an English-speaking person use the word “elegant” in everyday conversation. I honestly couldn’t care less though, as if I ever get to a point where I can actually talk in Spanish outside of the app, I’ll teach myself the finer details of conversation.

The Wednesday Hodgepodge (January 3, 2024)

Posted on by Astrid

Hi everyone. It’s Wednesday, so I’m back joining the Wednesday Hodgepodge. I love this week’s questions, even though I’m pretty sure most came along during the first Hodgepodge of 2023 too. Here goes.

1. Every January 1st since 1976 Lake Superior University has published a list of words they’d like to see banished from the Queen’s English. Words may be banished due to misuse, overuse or just general uselessness. Here are the words/phrases they’d like to see banished in 2024-
hack, impact, at the end of the day, rizz, slay, iconic, cringe worthy, obsessed, side hustle, wait for it
Which of these words/phrases would you most like to see banished from everyday speech and why? Are any of these a regular part of your speech? Is there a word not on the list that you’d like to add?
I don’t care for the term “side hustle”. Other than that, I don’t really think any of these words/phrases are particularly cringe worthy (pun intended). I do use “at the end of the day”, but not any others out of this list. That doesn’t mean I don’t misuse or overuse words a lot. Think “particularly” above.

2. What do you wish you’d done more of last year? Less of?
More of: writing, both on my blog and in my journal.
Less of: worrying.

3. A place you’d like to visit in this new year? Do you think you will?
I really don’t know. I have no travel plans and actually don’t care for vacations.

4. What are three words to sum up or describe your 2023?
Emotional, stressful, hopeful.

5. What advice would you like to give yourself as we begin a new year?
Be open to the possibilities that come your way.

6. Insert your own random thought here.
I have been trying out the WordPress block editor, because I wanted to participate in #Bloganuary. So far, it’s still quite the learning curve and I’m happy the classic editor is still available. In fact, I doubt I’ll move over to the block editor full-time anytime unless I’m forced to. However, I’m glad the two posts I wrote using the block editor haven’t been ruined (yet) or disappeared altogether, like happened to some I did several years ago.

“Know-It-All”: Challenges of More Verbally Capable People With Intellectual and Developmental Disabilities #AtoZChallenge

Posted on by Astrid

Hi everyone and welcome to my letter K post. I really have no idea where this is headed. I seem to struggle with the letter K each year. Today, after some thought and looking through my various books on developmental disabilities, I decided on “know-it-all”. This was in an A-Z guide on autism, not intellectual disability.

Indeed, individuals with an intellectual disability don’t usually look like “know-it-alls”. This is more like the stereotypical description of an Asperger’s style autistic. However, what I want to talk about today is the risk of overestimating people with intellectual and developmental disabilities based on their verbal abilities.

An example I once heard about was of a young woman assessed as having a moderate intellectual disability. When she met new people, she’d say: “Oh, I don’t know that person, let me go up to them and introduce myself.” This language is quite advanced. However, as it turned out, it was all script-based and she really had a severe intellectual disability. Due to her intellectual disability not being recognized enough, she was chronically overloaded, which led to challenging behavior.

Another example, I read about when researching communication issues for my letter C post. A person who could read a pharmaceutical handbook, refused a certain medication because it could cause nausea. When his doctor inquired whether the person knew what nausea felt like, it turned out he had no idea.

I, for one, am thought of as quite the know-it-all too. Indeed, though I do have an at least average verbal IQ, I get chronically overestimated due to the fact that I can talk up a storm.

Unfortunately, I for one do overestimate my own understanding too. This can be quite hard, because people often ask me to inquire rather than assume, but when I don’t know that I’m making assumptions, it’s hard to decide to inquire about them instead.

Communication Issues in People With an Intellectual Disability #AtoZChallenge

Posted on by Astrid

Hi everyone. I’m late today with my letter C post in the #AtoZChallenge. Today’s topic is communication issues facing individuals with an intellectual disability.

Intellectual disabilities can be described as mild, moderate, severe or profound depending on IQ or perceived level of functioning. As a result of this, but also due to other factors such as co-occurring autism, individuals with an intellectual disability vary in their ability to communicate in the same way non-disabled people do. Those with a mild intellectual disability are often able to speak and even read. In fact, I was surprised when I came here to my current care home to find out that several of my fellow clients can read quite well. Those with more severe intellectual disabilities, may use other methods of communication.

In general, communication methods can be divided into three categories: pre-symbolic, symbolic and verbal.

Pre-symbolic communication involves the type of communication that precedes symbols such as pictures or signs. It includes vocalizations, body language, and facial expressions. Individuals with profound intellectual disabilities often use this method of communication exclusively. It might be tempting to think that people who cannot use symbolic communication, cannot make their wants known. However, I remember at my first day center with my current care agency meeting a woman who was clearly at this level, but the staff knew what her favorite essential oil was.

Symbolic communication involves pictures and photos. Please note that some people may be able to use just a few familiar ones, while others’ abilities are broader. However, you will never know what a person is truly capable of until you get to know them.

Verbal communication involves speech and sign language. Most people with an intellectual disability have a mild impairment, so will be able to express themselves verbally. That being said, you still need to check whether they truly understand what you were saying. For example, some people with an intellectual disability will have very concrete, literal reasoning.

People with an intellectual disability often do not do well with closed questions, because they will answer what they think the other person wants to hear. As a side note, so do I! However, too open-ended questions are not useful either, as they require the person to retrieve a lot of information. This, again, goes for me too. Either/or questions may be helpful with some, although I’ve seen people with severe intellectual disability usually pick the last out of the options.

It is usually recommended to use short, simple sentences with everyday words (no jargon). People should be even more aware of the individual’s body language than when communicating with people who don’t have an intellectual disability. I want to say this goes for interactions with people with mild intellectual disabilities too. I mean, it is common sense to workers in care homes for individuals with profound intellectual or multiple disabilities to pay attention to minor changes in a person’s expression. However, here at my current care home staff often say that residents lash out for no reason at all. I doubt this is true.

Four Skills I Wish I Were Good At

Posted on by Astrid

Today, one of Mama Kat’s prompts is to write about something you wish you were good at. I can’t just name one thing, so instead, I’m going to make a list of skills I wish I possessed.

1. Creative writing. Like I said on Sunday, I don’t really have a vivid imagination at all and my works of creative writing aren’t all that original at all. Now of course Julia Cameron (from The Artist’s Way) and others say you really don’t have to have natural talent to be a creative. Maybe then, I wish I had the perseverance to actually sit down and write those tons of freewrites, raw drafts, etc. it takes to come up with a coherent story in the end.

2. Photography. Okay, I don’t really mean the ability to point the camera correctly, set the right filters, etc. That’s a skill I will never possess due to being blind. I rather mean the ability to find picture-worthy things in my environment and then direct my staff to take pictures.

3. Language learning. This is a broad skill. Again, it is not something I wish I were good at per se – I already think I’m a decent language learner if I set my mind to it. Of course, I wish I were better at phonics in general, so that I could more easily develop decent-sounding speech in the languages I know (which currently is singular language, honestly, as I only know English as a second language). However, as with creative writing, I wish I had the perseverance to actually devote myself to learning a language rather than wanting to be able to write a blog post in said language immediately.

4. Distress tolerance. Ha, let’s share a skill that isn’t just useful for the fun of it. I really wish I were good at tolerating frustration. In dialectical behavior therapy, this is considered a skill that can be learned indeed, but I honestly am highly skeptical about it in my case at least.

What do you wish you were good at?

Mama’s Losin’ It

My Perfect Lover

Posted on by Astrid

I think my husband is perfect. He is the ever-most-beautifullest, ever-most-lovablest
person in the world. That’s why I chose him as my lover.

My husband and I can finish each other’s sentences and it doesn’t get annoying. Or sometimes it does. Then we say “banana spider” and the other knows we’ve bored them out of their mind.

We joke that, when we get old and suffer with dementia, only the two of us will still understand each other, since we have so many special phrases and words between the two of us. At least I hope we’ll have something to laugh at ourselves about then.

Honestly, it’s too bad that my blog is in English and my husband and I communicate primarily in Dutch. After all, our expressions sound even better (or should I say even weirder?) when written or spoken in our native language.

Written for Twiglet #257: “Even Better” and FOWC: “Lover”.

#IWSG: Drawing the Line

Posted on by Astrid

IWSG

It’s the first Wednesday of the month and this means the Insecure Writer’s Support Group (#IWSG) is meeting. It doesn’t matter that it’s Blogtober and the 31-day writing challenge is running. It’s already past 8PM as I write this, so I probably won’t have time for a separate post for these challenges. Maybe I’ll catch up with the word prompts from the latter challenge tomorrow. Maybe not.

For those visiting from #Blogtober21 or the 31-day writing challenge anyway, the Insecure Writer’s Support Group gathers each first Wednesday of the month to discuss our writing insecurities, fears, successes and setbacks. There is also an optional question each month.

First, let me share that I did quite well in the writing department over the past month. I published 22 blog posts in September, one more than in August. I also think I did an okay job of broadening my writing horizons. I (re)discovered the diary app Diarium and did an okay job keeping a journal in there for part of the month. Not so much in October so far.

For October, my goal is just to write a blog post everyday in keeping with the challenges I’m participating in. I may or may not go with the 31-day writing challenge word prompts. I don’t really intend to write much in the way of fiction or poetry, but who knows where my muse will lead me?

Now on to this month’s optional question: where do you draw the line with respect to topics or language?

First, I have a clear line relating to language: I don’t swear in my writing. Even when one of my angry alters was writing on here and tried to drop an F-bomb, I censored it out. I do occasionally use bad language on social media. I don’t use profanity though and haven’t for a long time, even before I became a Christian. I in fact find unnecessary use of foul language (which is most use of foul language) quite offputting in my reading too.

With respect to topics, well, since I write mostly autobiographical musings on here, I draw the line where I invade other people’s privacy. For example, when I mention my husband, I make sure it’s in a lighthearted way. I won’t write about our arguments, about our intimate life, etc. I do need to say though that I had to learn to shut up about such topics the hard way. In fact, my husband still likes to jokingly remind me of a post I published on an old, now-private blog in 2008 in which I described my expectations should he and I become a couple officially. In particular, he likes to tease me about calling him a “kid”.

For clarity’s sake, I am not and never was one to describe violence, sex etc. in detail. Even when I still did describe my fights with my parents or my intimate life with my husband, I didn’t use explicit language. Similarly, when I write fiction or poetry, I must say, I generally keep my language quite non-explicit too. I do write about dark topics, but usually by trying to convey the emotions rather than going into detail about the actual facts.

I Am Autistic #SoCS

Posted on by Astrid

I am autistic. Or I have autism, as politiically correct parents of autistic children would say. I prefer “autistic”. After all, autism is an essential part of my identity. It’s not like labels don’t define me and are just there for insurance coding purposes. Yeah, well, diagnoses do not define me. I am, after all, also multiple even though I don’t have a diagnosis of dissociative identity disorder anymore. Others do not define me. But my characeristics, including being autistic, do.

Saying “I am autistic” rathr than “I have autism” is preferred by the majority of autistic people. We also refer to ourselves as “autistic people” or even “autistics” rather tha “people with autism”. This is called idetity-first language, whereas “people with autism” is called person-first language and is politically correctly preferred by people wanting to erase the impact of autism.

I know, there are some situations in which a person may prefer person-first language regarding their own disability or identity. I don’t think this is wrong at all. However, people without said disability or belonging to said group should not dictate how we identify.

Identity-first language does not mean we can be called whatever the heck someone wants to call us. For example, a person with an intellectual disability should never be called “retarded”. That’s a slur. Even if said person has reclaimed that word – the R-word has not been reclaimed yet that often, but it might get to this point -, you cannot assume as a non-disabled person that you can just go about calling them the R-word. If in doubt, ask what a person wants to be referred to in regards to their disability or identity.

And of course, I want to be referred to by name most of the time. Unless another part or alter has taken over, but then some of them will be rather in your face about their name.

Don’t assume that political correctness is always preferred, but don’t assume anything really. We are all humans, all different and that’s valid. We should be loved and respected for who we are.

Linking up with Stream of Consciousness Saturday (yeah I’m late). The theme for this week is “-ic” or “-ical”.