#WeekendCoffeeShare (July 5, 2020)

Hello all and a happy Sunday evening! Today I’m joining in with #WeekendCoffeeShare. I honestly crave a cup of strong coffee right now, as I’ve only had one cup so far today and it’s past 6PM. Unfortunately, I think all I can get now is decaf. Anyway, how have you been? Grab a cup of decaf, tea or your favorite type of soda and let’s catch up.

If we were having coffee, I would rant about the meeting I had with my nurse practitioner and community psychiatric nurse last Friday. I was very worried about this meeting beforehand. It didn’t go as I expected at all, but that wasn’t a good thing.

The reason we had the meeting was to decide whether I can get trauma treatment, such as EMDR. I voiced my fear that, if I tried EMDR or the like, my parts would come forward and sabotage the therapy. Instead of reassuring me or even asking further questions, my nurse practitioner said he doesn’t believe I have alters because he’s to his knowledge always seen Astrid. He added that everyone has different sides to themself.

For whatever reason, the whole EMDR/trauma therapy thing went out the window too. He wants me to do acceptance and commitment therapy (ACT). He recently trained in this and it seems this is more of a reason for him to want a guinea pig than that he genuinely thinks it’d suit my symptoms. My husband joked that it’s almost like, if I go to the hospital with a broken leg and the orthopedic surgeon isn’t on call, they’d send an oncologist to give me chemo.

If we were having coffee, I would tell you that after the meeting, my staff and I went to get fries at a snackbar. We also drove by a store to get me a large bag of sweets. I had originally intended to get cold tea too. Oh, I forgot to offer you all some of that. It’s basically herbal tea that you put into cold water and then let sit for ten minutes. It’s good.

If we were having coffee, I would also tell you that I spent a night at my husband’s yesterday. It was good. We had roti delivered for dinner.

If we were having coffee, I would tell you that despite the not-so-great weather, I did go for a walk today once I got back to the care facility. There’s a new staff who’s being trained to work on my unit and she took me for a walk. Unfortunately, it seems as though my Fitbit battery won’t charge. Maybe it’s time for a new one.

How have you been?

What’s Up (June 2020)

Wow, can you believe it’s already the last Wednesday of the month? I truly can’t. Time flies! Today I’m joining in with What’s Up Wednesday.

What We’re Eating This Week

Well, like I said last month, I live in a care facility with food delivery, so I don’t get to meal plan. We’ve been having an insane amount of baked potatoes lately though.

What I’m Reminiscing About

Not really anything. I mean, occasionally memories pop up, but they’re usually neither pleasant nor significant to share about here.

What I’m Loving

Sunshine! The weather is truly beautiful out here. Tomorrow and Friday the temperature is supposed to rise to 30°C (86°F). That’s a bit hot for my liking, but oh well.

What We’ve Been Up To

Lots of walking! I loved taking several long’ish walks a day with my staff. Today it was a bit hot, but we managed two shorter walks anyway.

What I’m Dreading

My parents possibly being judgmental about my living situation. They will visit me for my birthday on Friday. As much as I try not to stigmatize my intellectually disabled fellow clients, I still fear they’ll feel shame.

What I’m Working On

I started working in the book DIY MFA yesterday and immediately was inspired to write a piece of short fiction. It’s not remotely good enough to go on the blog and it doesn’t have an actual ending yet, but I liked the writing process.

What I’m Excited About

My birthday! Tomorrow, the festivities will start with my mother-in-law visiting. On Friday, my parents will visit. That’s a little scary, but it’ll likely be okay. Then on Saturday, which is my actual birthday, my husband will be visiting. I invited him to get pizza delivered.

What I’m Watching/Reading

I’ve been watching Diagnosis on Netflix and reading the book by that same title, written by Lisa Sanders. I also finally started reading The Falling in Love Montage by Ciara Smyth. I’ve been excited about it ever since I first heard about it in like January. It was released earlier this month.

What I’m Listening To

I’m frequently listening to the Harp Music for Sleeping playlist on Spotify. It’s very relaxing. This afternoon, in fact, I fell into a deep sleep listening to it.

I’ve also been discovering podcasts. Early this month, I mostly listened to true crime podcasts. Now I’m occasionally listening to progressive Christian podcasts.

What I’m Wearing

A skirt and a black T-shirt. I have three skirts that are the exact same model yet a different color. As I am blind and haven’t labeled my clothes, I don’t know whether this is the blue, green or red one.

What I’m Doing This Weekend

Having pizza with my husband on Saturday, like I said. I’ll probably have a lie-in on Sunday.

What I’m Looking Forward To Next Month

Probably visiting my husband for a weekend again. Like I mentioned a few times, the visiting rules at my care facility will be relaxed come this Friday. This means I’ll be allowed to go home to my husband for a weekend again. I don’t want to right away, but I’m hopeful in July I’ll be able to go a few times.

What Else Is New

My husband has two weeks off work this week and the next. He’s getting workmen over to replace the outer doors and some other big things that need doing.

What’s up with you?

Decisions

This week, V.J.’s weekly challenge is all about decisions. V.J. is facing a decision regarding an opportunity to buy a house.

My husband and I faced a similar decision last summer. I had been approved for long-term care funding on June 4. This would mean higher costs for my care, as the copay for long-term care is several hundreds of euros a month, while the copay for community care is at most €19. This made our search for a house to buy more urgent. After all, mortgages are usually cheaper than is rent on a similarly-priced house. We had inquired about buying the house we were renting at the time, but the housing corporation had refused.

My husband did most of the visits to possible houses by himself, including the one to the house we ended up buying. This house was about the only house within our budget that wasn’t falling apart or being rented out for an undefined time. The latter of which is illegal, but that didn’t help us.

So my husband ended up choosing our house in Lobith. I was hardly involved with the paperwork, except where I had to be because we’re married. I was pretty sure I wasn’t going to live in this house for long anyway.

Similarly, my husband left all decision-making regarding the care facility I was going into up to me. Of course, this is in a way different, in that I’m a legal owner of our house and he’s not legally anything regarding the care facility.

I ended up moving to the care facility in Raalte just two days before we were to sign the contract on our house.

It’s indeed somewhat interesting that my husband and I leave each other so much room for decision-making regarding our own lives. Other married couples probably do much more shared decision-making. I don’t know whether it’s a good thing or not the way we do it. People have encouraged me to get more involved with the financial and legal aspects of the house. I’ve also been told my husband could (should?) be more involved with my care. But as long as we’re both competent adults, it works okay.

I’ve been thinking of making my mother-in-law my official decision-maker should that ever change in my case. I know my nearest relative would be my husband, but I want in any case to prevent my parents or sister from becoming my guardians. After all, I’m not too sure they truly would have my best interest in mind, though obviously they’d think they do.

It’s Been Three Months

Today, it’s been three months since the day center closed due to the COVID-19 lockdown. A few days earlier, we’d already been advised not to get visitors at the care facility, but the no-visiting rule didn’t take effect till March 25. Over at Mama’s Losin’ It, Kat asks us in one of her writing prompts this week how we’re doing three months into lockdown.

Of course, the restrictions are slowly being lifted. As of May 21, we’re allowed two visitors, ideally from the same household. They still need to maintain distancing, can’t have physical contact with us and can’t enter the care homes.

I found out yesterday that more restrictions may be lifted as of June 26. I already arranged for my parents to come visit me on the 26th, as my staff said this was okay even though my mother-in-law will be visiting me on the 25th and my husband on the 27th. I guess they’re being less strict as it’s my birthday on the 27th.

The new rules, if they take effect on the 26th, would allow limited outside activities, such as visits with family. Then again, a lot is still uncertain and is left up to the specific homes’ staff and management. Regardless, the day center won’t fully reopen till October.

I’m doing pretty well amidst the lessening restrictions. I mean, I’m really excited but also a bit anxious about possibly being allowed to go home to Lobith again. It’d be cool if I could have a real birthday celebration even if it isn’t right on the 27th.

With respecct to the day center, I’m happy it won’t reopen fully till October. I feel a lot more comfortable getting day activities in my own home, where I can retreat into my room. I also think I get more support now. I really hope a way will be found for me to retain a similar level of support once we return to the day center.

It’s interesting that, with quarantine having lasted for three months and still a lot of restrictions remaining, I hardly ever think of COVID-19 or the lockdown. Last week, another writing prompt I came across was about quarantine and I couldn’t think of what to write for it. Several people I know were tested for coronavirus recently, but I readily assumed they would be negative (and they were).

Other than that, we don’t shake hands and keep our distance whenever possible. That will likely continue for a long time still. generally though, I’m going with the flow, as they say.

Of course, I’m happy I can see my husband and family again. I’m also still very happy that this thing didn’t happen last year, because then I’d have to stay at home alone for so many months. Remember, the day center won’t reopen till October. Now this feels comforting. Last year, this definitely wouldn’t have been the case.

Mama’s Losin’ It

I Am My Top Priority?

Today I decided to buy The Goddess Journaling Workbook by Beatrix Minevera Linden. This book of journaling prompts focuses on the Greek goddesses to explore yourself and keep a manifestation mindset all through the year. The first goddess to be explored is Persephone. She was led into the Underworld by Hades and ate a pomegranate there. This fruit was the fruit of the dead, so Hades could really keep her in the Underworld forever. Eventually, Hades and Persephone’s mother Demeter reached an agreement to keep Persephone in the Underworld half the year and in the upper realm the rest of the year.

Persephone’s story is used as a metaphor for our darker side and our mistakes that follow us throughout life (like Persephone’s eating the pomegranate did). The first prompt in Persephone’s chapter is titled “You are your top priority”. It asks us when we didn’t put ourself first.

Well, my first thought is: am I really supposed to be my own top priority? My husband often says he values me more than himself. I tend to reply that I value him more than myself too. Whenever I doubt that I value him more than myself, I feel guilty. But really, I currently choose myself over my husband whether that’s supposed to be so or not.

It wasn’t always this way. Until I made the decision to try to go into supported housing on September 20, 2018, I always put others first. Not just my husband, but literally almost everyone seemed more important than me.

I was diagnosed with dependent personality disorder in 2016. Though the diagnosis was made for all the wrong reasons, there is some truth to it. I remember my psychologist used my lack of resistance to her opinions against me and she was right. Until I decided to ask for a second opinion in November of that year, I never openly fought her list of ongoing misdiagnoses and mistreatments. It’s interesting that, later, she said I am very assertive but maintained that I have DPD nonetheless.

What also comes to mind, is that as a child and even as a teen, I always did what others wanted and put them before myself. I remember at one point using the Persephone myth to describe how I felt about my relationship to my classmates in high school. (Remember, I went to grammar school, so the classics were taught a lot.)

Still, I was thought of as self-centered or selfish even by my parents. This is probably because, in a materialistic way, I did put myself first. I was often jealous when my sister got gifts. Indeed, she did get more than I did, but I got more attention, albeit most negative.

Now I do generally put myyself first. I decided to go into long-term care despite no doubt disappointing my husband a bit. I mean, of course I struggled greatly living semi-independently, but it wasn’t like I was dying. Or maybe sometimes it was, because I did take two overdoses that could’ve killed me. Then again, wasn’t I selfish for doing this?

Linking up with Life This Week.

Gratitude List (May 30, 2020) #TToT

Okay guys, I’m still feeling meh. I don’t know why, but it doesn’t really matter. I’m not inspired to write much of anything either, so what better thing to do than to write a gratitude list? I don’t promise I’ll be able to mention many things, but I’ll try my best.

1. Ice cream. Last week Thursday, another home that’s part of the care facility called for an ice cream truck to come by the facility. The ice cream truck owners had owned some type of merry-go-round or another fairground attraction before COVID-19 hit. Then they transferred to the ice cream business as away of making money. They advertise themselves on Facebook for being on-call if you have enough customers in a street. I love this idea and obviously the care facility has some 70+ clients plus staff as potential customers.

What’s extra cool is that the other home called the truck people again on Tuesday. Now if I don’t have an ice cream tummy, I don’t know.

2. Reaching my step goal. I reached 10K steps three days this past week and so far got over 55K steps this week. Tomorrow I’ll probably have a lie-in.

3. An extra staff. Due to day activities now being provided at the home, the home staff were able to cut their hours a bit, because there was a lot of overlap with the day activities staff. As a result, they’re now able to have an extra staff for a few hours on Saturday. This morning, the extra staff took me for a 25-minute walk.

4. Bathing. This is one from last week, but on Sunday I took a bath. It was good and very relaxing.

5. Gutenberg. You know, the project that aims to digitalize no-longer-copyrighted materials and make them available to the public. I discovered yesterday that my reader app, Voice Dream Reader, connects to it too. I was able to download Anne of Green Gables by L.M. Montgomery off there. I think I prefer reading eBooks to audiobooks anyway.

6. Buying a new iPhone. I have been wanting to buy the new iPhone SE 2020 forever. That is, I’ve been looking at the possibility of it being released for at least half a year before it was released. My current iPhone, the old SE model, still works, but its battery is empty really quickly. Today I ordered the new one.

Originally, I had wanted my husband to install it. Then when I was skyping with my sister and mother, my brother-in-law chimed in and said it’s really easy to migrate from one iPhone to another. Now I may want to install the phone myself as soon as I get it and there’s someone sighted to oversee it.

7. Hearing my niece on Skype. Like I said above, this afternoon I Skyped with my mother and sister. It was fun. I hadn’t even had Skype on my computer till then, but I like it. I heard my niece on the other end of the screen. She did get a little whiny eventually, probably because she was hungry.

8. Seeing my husband! I saved this one for last, as it’s the best. Last week, the no-visitors policy was lifted at my care facility, so I was able to see my husband. He visited me again today. Like I said before, we can’t really be physically close, but it’s okay. I love you, hubby!

That’s it for now. As always, I’m joining in with Ten Things of Thankful (#TToT).

What have you been grateful for lately?

What’s Up (May 2020)

Today, I discovered What’s Up Wednesday and thought I’d join in. What’s Up Wednesday is a monthly linky in which bloggers recap their past month. Here goes.

What I Ate

I don’t meal plan, as here at the care facility, we get meals delivered. I didn’t have the greatest meals this past week. Last week Wednesday, I had a fish curry that had fish bones in it. I ate part of it nonetheless, but eventually got annoyed and left the rest. My husband told me that this was unacceptable indeed. My staff sent out a complaint.

Then on Friday, I had vegetable rice only. Vegetable rice is just rice with a tiny bit of veg in it. I had no meat or meat substitute in my meal at all.

Thankfully though, over the past few days, the food was okay.

Then yesterday, my day activities staff and I put hamburgers on some type of grill for lunch. It was delicious!

What I’m Reminiscing About

I haven’t had the best month with respect to my mood. For this reason, a lot of memories have come up. I have been discussing some in my sessions with my community psychiatric nurse and also writing about them on here.

What I’m Loving

Being able to see my husband again! Due to the coronavirus lockdown, my care facility had a no-visitors policy for the past two months. Thankfully though, the policy was lifted last week. My husband and I still can’t have physical contact or even be within a five-feet distance, but it’s okay. I’m just so glad to meet my husband in real life again.

What I’ve Been Up To

I’ve been doing a lot of walking over this past month. The weather is really good. We had one rainy day, last Sunday, but overall it’s been really sunny and warm outside.

I’ve also been blogging a lot over the past month. I’m so glad to keep up the productive spirit!

What I’m Dreading

Nothing really. I did have a rough few weeks and was dreading a crisis happening again. Today is a pretty good day though. The tech guys installed the door sensor that will alert the night staff if I elope again today.

What I’m Excited About

Seeing my husband again this Saturday!

I’m also excited about getting Italian takeaway this Sunday. I’m probably going to get a tuna pizza.

What We’re Doing This Weekend

It’s a holiday weekend here in the Netherlands because of Pentecost. For this reason, we’re getting lots of extra treats at the care facility. Other than that and seeing my husband, I don’t have much planned.

What I’m Watching

Nothing to be honest. I’ve been thinking about getting a Netflix subscription again, but haven’t gotten down to it.

What I’m Reading

Nothing at the moment, but I did finish two books this past month: Wonder by R.J. Palacio and Wink by Rob Harrell. I reviewed that last one earlier this month.

What I’m Listening To

I’m mostly listening to the Pop Warm-UP 130 BPM playlist on Spotify. I actually love the upbeat, fast-paced tunes to “dance” to.

I also got myself a ScribD subscription, though I unsubscribed again after a few weeks. I listened to Anne of Green Gables as an audiobook on there. I must say I don’t think I see the benefit of audiobooks.

What I’m Working On

My birthday wishlist! I asked my husband to help me install a new iPhone that I’m goign to buy. I haven’t bought it yet, but am looking forward to doing so in a few weeks.

I’ve been looking at a sensory supplies store again for birthday gifts to ask my in-laws, parents and sister. I think I want a Jinglin’ ball. This is a soft ball that makes a sound when rolled. The adaptive supplies store for the blind also sells ringing balls, but these are too hard for safe playing with my fellow clients.

What I’m Wearing

Orange Dress

I have had this orange dress for a few years already, but hardly ever wore it before going into the care facility, because I can’t fasten the ribbon. I am loving it though. I also asked my staff to do my hair for this picture.

What I’m Looking Forward To Next Month

My birthday, obviously! It isn’t till the 27th of June, so we’ll have another What’s Up Wednesday before that, but oh well.

What Else Is Up

I think that about covered it.

Choosing Love #SoCS

Choosing love is important. Choosing that one person you would want to be with. Or choosing more than one if that’s your thing. Many lovers value their partner above themself. I’m not sure I do and that often makes me feel bad about myself.

I mean, I always say that Jeroen is the most cherished, best, loveliest person in the world. Then he replies that it’s me. Sometimes we go on to joke that it’s our cat Barry.

Yet, whenever I say I love Jeroen more than myself, I think: “So why did I choose to go into the care facility?”

I was fully expecting my husband to say the same when he visited me for the first time in over two months, since visiting had been prohibited until now due to coronavirus lockdown. I fully expected him to come and tell me he didn’t want to be my husband anymore. And yet he didn’t! I’m so happy that, even though I chose my own happiness over his, he chose love!

Written for this week’s Stream of Consciousness or #SoCS, for which the prompt today is “ch”. Also writing this using the new block editor.

Looking Forward To…

Today’s Five Minute Friday prompt is “forward”. Let me share what I look forward to.

I look forward to seeing my husband tomorrow. The visiting rules for nursing homes were relaxed in prime minister Rutte’s latest speech on Tuesday. The new regulations wouldn’t take effect till next Monday, but my care facility decided to allow visitors from this Thursday, the day of Christ’s ascension and hence a bank holiday, on.

There are still strict guidelines. Visitors cannot touch clients or even be within five feet distance. We’re not allowed to travel in the car with our visitors or go to public places such as shops or snack vendors.

My husband was a little disappointed at the strict guidelines, and I wholeheartedly agree. Of course, I want to hug him too. After all, we haven’t seen each other in real life in over two months. Too bad we can’t at this point. However, it’s better than nothing.

I look forward to hopefully spending some good time with him. Hopefully, of course, the rules will be relaxed even more soon. That’s still unknown though. As far as I know, our care facility is already less strict than what Rutte said, as he said only one person per client can visit. Our facility allows two at a time. Not that I need that, as my parents or in-laws are a long way from visiting me, but oh well.

Wow, I actually finished writing this in five minutes flat. Thanks so much for reading.

Coffee and Tea: My Favorite Hot Beverages

I’ve had a post by this title in my Drafts folder for over a month. I originally started to write it for my letter C post in the #AtoZChallenge, because I didn’t feel like writing a self-care themed post. I ultimately did anyway and this post sat in Drafts forever. I didn’t actually end up writing about coffee or tea in the draft. The post was, or so I believe, inspired by a fellow blogger’s question of the day or something. Anyway, today let’s discuss hot beverages.

I should really ask my parents whether they still have this photograph of me drinking one of my first cups of coffee and, if so, whether they can digitally send it to me. You see, I was about six when I first started drinking coffee and I hated the taste. I truly had a disgusted look on my face!

I at the time drank coffee with lots of milk and sugar in it. The milk was supposedly to lessen the impact of caffeine. I always left the sugar sitting at the bottom of the mug and spooned it up after finishing my coffee. I hardly ever drank tea as a child. When I drank it, I had milk and sugar in it as well.

When I was around fourteen, I had a weird nightmare about someone having switched the sugar with some type of poison. After that, I acutely decided to leave the sugar out of my coffee. Then some years later I left out the milk. Now I drink the pure stuff, but I still get the same disgusted look on my face that I got as a six-year-old. Guess I’m addicted.

With respect to tea, it took me a long time to figure out what I liked. When I was around nineteen, I somehow convinced myself that I liked strong, black tea. Well, I don’t. Then followed rooibos, which my fellow patients and I at the psych hospital referred to as stress tea for its supposed calming effect. I went through a phase of particularly liking rooibos with strawberry-whipped cream flavor.

Then followed Earl Grey tea, because my now husband was into it. I tried a lot of different tea flavors with him when he visited me at the psych hospital.

I don’t even remember when or how I got into the green tea phase. In any case, I now drink pure green tea only. Some years ago, I tried green tea with pink pepper and pineapple flavor because my mother-in-law had bought a package, but I really didn’t like it. I, by the way, drink my tea without sugar too.

Are you a coffee or a tea person? How do you like your coffee or tea?