#WeekendCoffeeShare (February 13, 2021)

Hi and welcome to another #WeekendCoffeeShare post. I just had my soft drink of Dubbelfrisss and some Pringles for today. However, I can make you a cup of Senseo coffee if you’d like. I can also make you tea. A staff brought me some green tea without additional flavoring earlier this week, which I’m so grateful for. I love this kind of tea! Anyway, let’s have a drink and let’s catch up.

If we were having coffee, I’d tell you that it’s still pretty white outside here. The below picture was taken on Thursday, but not much of the snow has gone yet. That should change tomorrow, as temps are supposed to rise above zero.

A picture of me in the snow

If we were having coffee, I would tell you that I’m happy to report feeling much better than I was earlier in the week. Like I said yesterday, I had some worrying health symptoms on Monday and Tuesday that were probably attributable to constipation (and possibly some stress too). Like I mentioned, the doctor prescribed me magnesium tablets. I’m feeling much better now. Not yet completely normal, but almost so.

If we were having coffee, I’d tell you that I got a wonderful stuffed bear from my husband as an early Valentine’s Day present today. I gave him an airdry clay heart I’d made.

My husband paid me a quick visit at the care facility on his way back from buying a trailer for his car. The trailer is truly huge for one that’s behind a regular VW car!

If we were having coffee, I’d share that my support coordinator told me that I thankfully no longer need to tell the staff several days in advance when my husband is going to pick me up. The reason they so far required this, is my one-on-one support. However, my coordinator and the manager agreed that it’s possible for them to schedule the staffing regardless. This is a huge relief, as especially with COVID and all, it’s hard to plan ahead.

If we were having coffee, I would tell you that today, my one-on-one support staff took me to a farm with my care agency where we could see the horses, goats and rabbits. Unfortunately, they were eating, so they didn’t show me much attention. I didn’t take my phone with me, so no pictures. That will have to come next time.

If we were having coffee, lastly I would tell you I’ve done a lot of reading and book hoarding lately. I will have to do another reading wrap-up soon. Let me say for now that I’m totally inspired to read more SciFi. I totally love the escapism!

That being said, I’d also like to moan (probably for the third or fourth time) about the fact that Amazon doesn’t accept payment methods other than credit cards for their digital products. This is really annoying, as I don’t own a credit card. I really wish I could benefit from their Kindle deals, but apparently Amazon doesn’t want me buying anything there. Okay, I could still buy physical products, but what’s the point? We have Bol.com for that, and I want Kindle books! *Whines.* Okay, I can still get the free ones, but well.

What’s going on in your life?

Gratitude List (February 12, 2021) #TToT

Hi all! It’s freezing cold out here, with temperatures dropping to -18°C tonight or so the weather forecast said. I don’t like winter one bit. Even so, I have so much to be grateful for right now. Let me share. As usual, I’m linking up with Ten Things of Thankful (#TToT).

1. I am so very grateful to be alive. Last Monday night, I started to feel sick and, among other things, experienced chest pain which was unusually severe for me. I can get chest pains when having a panic attack, but this didn’t feel like it. I immediately worried about my heart, since even though I’m far too young especially for a wooman to experience a heart attack, I’m still obese. I felt too scared to press the call button though. Thankfully though, I was able to go to sleep and actually woke up the next morning!

2. I am grateful for my supportive staff, who helped me through my time of feeling out of sorts.

3. I am grateful for a very understanding GP. My staff scheduled a doctor’s appt on Tuesday afternoon because I still wasn’t feeling well. The GP was reassuring without being dismissive.

4. I am grateful for magnesium. The doctor thought, as had I when in my rational mind, that despite the Metamucil, I was still constipated. She switched me to magnesium tablets to be taken twice a day. They are chewable tablets, but thankfully my staff were able to grind them and give them to me in some custard. I’m not sure the magnesium is working yet, but it at least doesn’t make things worse.

5. I am grateful the roads and cycling routes are now snow-free. We had a lot of snow on Sunday and Monday, so there was no point in shoving it. Thankfully though, it stopped snowing by Monday evening.

6. I am grateful I was able to go for some walks today thanks to the snow-free cycling routes. The pavements were still largely covered in snow, but thankfully I live in a quiet neighborhood, so we could walk on the street too.

7. I am grateful for large stroopwafels. These are a kind of waffles filled with butterscotch cream or honey. We usually have the mini ones at the facility and I’m the only one who eats them, because they are a choking hazard to the other residents. Today, we had the large ones.

8. I am grateful for pajamas. A staff, the same one who often brings me stuff (I may’ve mentioned her before), brought me pajamas she no longer wore. I am so grateful, as with these deep freezing temperatures, I’d like to keep warm at night.

9. Speaking of the cold, I’m grateful for central heating that actually works. We had a power outage on Tuesday and this meant the heating was off for the rest of the day and most of Wednesday. I’m so glad it’s back on!

10. I am grateful my husband got through the hectic week at work. He’s a truck driver, so his job was very hard during the snowstorm. I’m so glad I was able to support him and am so grateful he made it home safe each evening.

Really, I could probably go on. I am grateful for cellular Internet (because our WiFi was out during the power outage too). I am grateful for sleep. I am grateful for food. I am grateful today in the European way of writing the date, it’s a palindrome (just had to say that). I am grateful for Day One, my journaling app. I am grateful for the YouVersion Bible app. I am grateful for Jesus. All these could make it onto my gratitude list. Really, I am truly blessed!

What are you grateful for?

#WeekendCoffeeShare (February 6, 2021)

Hi everyone on this windy Saturday! Welcome to my contribution to the #WeekendCoffeeShare. It’s past 8:30PM, so I’ve long had my last cup of coffee for the day. However, I still have cold water in the fridge, as well as several flavors of soft drinks. Let’s have a drink and let’s catch up.

If we were having coffee, I’d share that this week went by relatively smoothly. I did struggle a bit early in the week because I felt guilty that the one-on-one support I’ve been getting lately isn’t helping me as much as I’d like. The staff reassured me that things have just settled down and I shouldn’t expect an instant great improvement. Besides, in a way, I am doing better than I was.

If we were having coffee, I’d tell you that I got some wonderful new essential oils. I got lavandin (which is like lavender but milder), lemongrass, ginger, clary sage and white fir. I am so happy about being able to make some new diffuser blends. I’d totally expected to sleep like a log because of the clary sage, but I didn’t. That’s okay though.

If we were having coffee, I’d share that I also finally purchased a talking scale. That way, I can weigh myself each week at the same time rather than relying on when I remember to ask a staff to weigh me. The scale wasn’t too kind to me when I first stepped onto it.

If we were having coffee, I’d announce that I got my first shot of the COVID vaccine on Thursday. It hurt a little more than the flu shot had, but the pain was over within the hour.

If we were having coffee, I’d tell you that my husband didn’t visit me today. We already established on Thursday that I wouldn’t be going to Lobith this week, because of the heavy snow and wind that’s been forecasted for tonight. We’re supposed to get up to 30cm of snow with a possibility of snow dunes. I originally thought snow dunes were the ones that would be 30cm high, but my husband said they might be up to a meter or even two. I can’t really imagine we’ll get this much snow, but I know how quickly it can come down indeed. Looking back, my husband could’ve come by for a quick visit this afternoon.

If we were having coffee, lastly I’d share that I made banana bread with my one-on-one staff this evening. We used just eggs, bananas and oatmeal for the batter and then added nuts, cranberries, dates and raisins. The other staff didn’t like the nuts in it, but I loved it.

Banana Bread

What’s been going on in your life lately?

Five Years Ago #Write28Days

Welcome to day four in #Write28Days. Today, I am not going with the word prompt. It is “Make” and maybe I can make the prompt fit into my post somehow (pun intended). Not sure though. Instead, I picked one of Mama Kat’s Writer’s Workshop prompts. It asks us what, if we could give ourself a snapshot five years ago of what our life would be like now, it would look like and how we would’ve felt.

Five years ago, I still resided in the psychiatric hospital with the intention of leaving for my and my husband’s then home by my 30th birthday on June 27, 2016. I still trusted my mental health professionals to a degree and had at least some trust in my ability to live with my husband. The whole saga of my changing diagnosis, or diagnonsense as I called it, hadn’t happened yet.

I just checked my old blog for what I’d written in February of 2016. I admitted, in some posts, that I still struggled with the reality that I hadn’t fulfilled most of my childhood dreams and yet wasn’t a total failure, in that I’d be living with my husband. I didn’t use the word “failure”, but my writing certainly connotes that I should feel like a failure if I need residential care for the rest of my life. Which possiblity I held open to an extent, and which indeed came true.

I mean, I got kicked out of the psych hospital not by the summer of 2016, but by May of 2017. Then lived with my husband for nearly 2 1/2 years, until I was accepted into the care facility.

If I could give myself a snapshot of my life right now, it’d likely be of my room here at the care facility with my one-on-one staff in it. I might give myself an additional snapshot of my and my husband’s house in Lobith to convey that we’re still together.

Honestly, I have no idea how I’d have felt about these snapshots back then. I mean, four years ago is easier. Then I’d certainly have been elated at knowing I’d eventually end up in long-term care despite all the attempts my psych hospital staff took to prevent me getting the care I need. But in early 2016, I may not have seen this need.

Probably, the most likely emotion I’d have felt is mistrust. I mean, how could I possibly ever get the level of care I never even openly admitted I needed? I mean, I never asked for one-on-one, but got it anyway. How is it possible that people truly saw this? I can hardly believe it now, let alone five years ago.

Looking back at my life five years ago, however, makes me so intensely appreciative of the life I have now! I thank the Lord for sending my former support coordinator, the Center for Consultation and Expertise consultant and my current staff into my life, as well as the funding authority people in charge. Without these people, I honestly don’t know where I’d be right now.

Mama’s Losin’ It

#IWSG: Bloggy Friendships

IWSG

Hi everyone again. It’s the first Wednesday of the month and this means it’s time again for the Insecure Writer’s Support Group (#IWSG) to meet. I must say I did pretty well with respect to my writing over the month of January. I wrote a blog post almost everyday. Of course, at the beginning of the month, I planned to do even better. That’s usual for me. I hope with #Write28Days in February, it doesn’t go in the same direction.

For those visiting from the IWSG who don’t know what #Write28Days is, it’s a kind of restart of the original #Write31Days October challenge, in which you pick a topic and write about it for the entire month. Thankfully, randomness is a topic too and we aren’t currently required to even have a topic. The idea is just to write everyday. Hence, this post really counts for #Write28Days too. I may or may not write another one this evening.

In addition to writing pretty consistently over the past month, I also took some steps outside of my comfort zone. I wrote two pieces of flash fiction. Both were extremely short, under 100 words each. I’m not sure they count as actual pieces and not just exerpts. In that case, there is no broader story as of yet.

Now on to this month’s optional question. Today, the IWSG crowd talk friendships and relationships developed because of blogging. I don’t honestly think I have any though. That is, I consider carol anne from Therapy Bits and Emilia from My Inner MishMash my friends, but I can’t remember whether I first “met” them through blogging or through E-mail lists.

Maybe though, I can count my husband. After all, though we met via a message board, one of the reasons he contacted me to meet up was that he’d read my blog. This blog, I’ve since made private because of the spammy visitors.

Other than this, I don’t think I’ve developed any bloggy friendships. I also must admit I’m horrible with reciprocating visits. I just realized, in fact, that, in general, I’m not that good at keeping in touch with friends, be it through my blog, the rest of the Internet or in real life. I really need to improve on that.

Gratitude List (January 29, 2021) #TToT

Hi everyone on this rainy Friday. I didn’t write anything yesterday or on Wednesday, because on Wednesday I was feeling uninspired and yesterday I was in bed all day feeling like crap. Today, I want to write again and I’m joining Ten Things of Thankful (#TToT) for a gratitude list.

1. I am grateful for a beautiful sunset on Monday. I’m also grateful for still having the residual sight to actually enjoy it. By the time I got my camera to take a picture, the sun had already set a little more than it had when I first saw it. Therefore, the actual thing was even more beautiful than the picture.

Sunset

2. I am grateful my husband is feeling better. This week-end, I get to go to our house.

3. I am grateful for still no COVID among my family or close relatives. My mother-in-law had to get tested last week, but thankfully, she was negative.

4. I am grateful I’m feeling slightly better today than I was yesterday. I have been horribly constipated for about a week now and yesterday evening, was nauseated from it. That has thankfully gone.

I am hoping to get a new medication for the constipation later today. I currently take Macrogol, which gives me horrible gas and cramping. The staff called my GP this morning and she’s going to send in some different kind of medication. I forgot to ask what she’s prescribed exactly, but I’ll find out.

5. I am grateful for rest. I was able to sleep pretty well last night despite having been in bed all afternoon yesterday and having gone back to sleep at 8PM. Thankfully, I feel rested now.

6. I am grateful for my sensory cat soft toy. It can be heated in the microwave and then gives off heat and a lavender scent. I had it in bed with me last night.

7. I am grateful for my new AFO or foot brace or whatever it’s called. The original one came on Monday, but it was painful to wear in a way that the physical therapist thought wouldn’t go away with practice. Thankfully, I now have another one. It’s still painful to walk on uneven ground wearing it, but that’s supposed to go away when I get used to the thing.

8. I am grateful for delicious Turkish pizza. A staff brought me some today and I ate it with salad and mayonaise. It was awesome!

9. I am grateful for some DIY inspiration. Today, the staff (same one who brought the pizza) helped me create some air-dry clay figures which I will later hang onto something for decorating my room.

10. I am grateful for books and Netflix shows. I was able to read again on Wednesday and really enjoyed it. I also got a Netflix subscription again last week. Though I’m not sure for how long I’ll keep it, I did enjoy watching some shows.

What are you grateful for?

#WeekendCoffeeShare (January 23, 2021)

Happy Saturday all! I’m so thrilled you’re joining me for another edition of #WeekendCoffeeShare. I haven’t had that much coffee yet, as my afternoon coffee was too strong for my liking, so I took only a few sips. I’m hoping my evening coffee is better.

If we were having coffee, I would proudly announce that, despite my less than ideal step count for the week, I’m still ahead of my sister. Last Tuesday was a real low, as it rained all day and I didn’t feel very well, so didn’t go on the elliptical. As a result, I got in only about 2000 steps.

If we were having coffee, I’d share that the AFO (ankle foot orthosis) guy was here on Monday. He took a look at my drop foot and at my shoes. He’ll return soon with some AFOs to try.

I am certainly hoping the AFO will help. Yesterday, after I walked for about half an hour, my foot began to horribly drag and this caused me some discomfort. I can’t exactly say it hurt, but it did feel really off. I was angry with my body afterwards. My staff tried to put things into perspective by saying I shouldn’t ignore the fact that I have a physical disability. Thing is, I’m not 100% sure I do.

If we were having coffee, I’d share that the weather has been okay for the rest of the week. We had some rain, a lot of clouds, but at times a little sunshine too. It hasn’t been cold, with temps rising to about 10°C on Wednesday I think. Today is a bit more wintery though.

If we were having coffee, I’d tell you that I’m having a quiet week-end at the care facility. My husband was feeling a little poorly earlier in the week, so just to be on the safe side we decided not to meet.

I was originally planning on having pizza this evening, but decided against it eventually. I wanted to get it because one of the new pizzas at Domino’s is called Extreme Spicy Roulette and I wanted to try it before it went out of sale again. However, then I found out that the roulette bit is real, in that one slice is even spicier than the rest. I am not one for surprises, so no pizza for me today.

To make up for it though, kind of, this morning a staff took me for a walk in a nearby forest and McDonald’s afterwards. I must say the chicken nuggets were great!

If we were having coffee, I would share that my soaping supplies arrived yesterday. I haven’t used them yet though.

If we were having coffee, lastly I would share about IMMERSION Bible Studies, a series of Bible study books I discovered on Bookshare today. I immediately downloaded the one on Genesis, as I really need to apply the Bible, and particularly the Old Testament, more. I mean, I’m still reading Genesis as if it’s a collection of legends, not something that makes sense to my life. This book certainly helps me.

What’s been going on in your life?

My 2021 Word of the Year

Okay, the first week of January is already over and people have come to say it’s weird to wish each other a happy new year even if this is their first time meeting in 2021. It may be a bit late for me to pick a word for the new year. Then again, it’s one of Mama Kat’s prompts for this week. Besides, last year I didn’t choose my word for the year until January 10. I had the flu to excuse it with then, but oh well.

Last year I picked “Wellbeing” as my word for the year. I was somehow convinced it’d be a bad omen though. It wasn’t, in the sense that I didn’t end up in a major health crisis in 2020. Then again, the world at large did.

This year, I’ve had a word in mind for several weeks now and yet I keep making up my mind about it. I want to deepen my faith this year, so shouldn’t something like “faith” be my word of the year. That’d be too easy though. Rather, I based my word for 2021 on Bobby Schuller’s book. It is: BELOVED.

I want to focus this year on the creed of the beloved as Schuller outlines it in his book You Are Beloved. It is:
I am not what I do.
I am not what I have.
I am not what others say about me.
I do not need to worry.
I do not need to hurry.
I can trust my friend Jesus.

I also want to focus this year on my relationship with God and with others. After all, “beloved” does not just apply to me, but to my husband and others around me too. The fact that I am a beloved child of God, also, implies that I need to accept God as my Heavenly Father.

Now of course my thoughts are going back to the idea that this word of the year would be tempting fate. I fear that, now that I chose “Beloved”, it will mean I’ll lose my husband or other important people in my life this year. Even if this happens, though, I can show my love for them. I can start to express love right now, after all.

What is your word for 2021?

Mama’s Losin’ It

#WeekendCoffeeShare (January 3, 2021)

Hi everyone. It’s the middle of the night and I’m thinking of actually making myself a coffee. I’m too scared though that the night staff will hear me. I do have a Senseo coffee maker in my room, but still it might make a noise. Instead of making a coffee, I’m joining in with #WeekendCoffeeShare. This will be the last week of Alli’s hosting it. From next week on, Natalie will be taking over. I hope it will continue to be a success. Anyway, let’s have a virtual coffee and let’s catch up.

If we were having coffee, I’d share that the holidays were pretty good, but I’m also so grateful they are over. I spent new year’s in Lobith with my husband. My oldest sister-in-law also came by for a few hours. It was good.

If we were having coffee, I’d share that, as you can tell, I’m really hyper right now. I tried to go to sleep at around 9:45PM, but soon decided I didn’t want to sleep yet. I texted my husband about the wax melts I’d bought for him and then went back to bed. Still no luck. Let me just say it’s now nearly half past three at night and I’m still wide awake.

I have mostly been reading other blogs. I have a lot of inspiration for new blog posts now. Hope my energy doesn’t dry up soon, so that I can actually write those blog posts.

If we were having coffee, I’d tell you too about all the wax melts I bought. I used to have a Yankee Candle Scenterpiece wax melt burner, but I left it in Lobith because it’d be a bit of a hazard here. Not that it gets really hot or produces flames, but I still don’t want liquid wax all over my phone (it almost happened once when I still lived in our old home).

Anyway, now my husband apparently likes to burn wax melts, but he says I’m the scent expert. I am, a little, with respect to essential oils. I wouldn’t say I am a better judge of what are good wax melt scents or what my husband would like than he is though. Still, of course I’m honored.

I bought two Scenterpiece meltcups. These are €5.99 each, but the good thing is their cups can be reused for smaller wax melts. I got the sun-drenched apricot rose and the frosty gingerbread meltcups. The other ones I got are tarts, which are sold at €1.99 each. In total, shipping included, I spent about €27.

It feels good to be able to spend money again. Over the past few months, I’d hardly been spending money on fun things, because I’d worried about my long-term care copay. Like I said yesterday, it will likely increase by at least €70 a month, but my husband reassured me I can handle that.

That being said, it also feels very good to be able to find free stuff, like some books I got thanks to Bookbub. It doesn’t feel like I’ve been living a scroogey life at all.

What’s been going on with you?

Editing to add: I had just published this post when I realized it’s my 600th, woot woot! *Does a little happy dance.* Here’s to many more posts.

2020: The Year in Review

So 2020 is almost over with, thank goodness! Not that it was a totally bad year for me personally, but I really hope 2021 is better for the world at large.

I started the year hoping to settle in at the care facility. I did, but it did take some more accommodating from the staff than I’d expected they would be willing to. In July, for this reason, I was granted the highest care profile for blind people (I had the second-highest until then). I felt very mixed emotions about it. I mean, even though I had originally asked my support coordinator to look at that care profile when applying for my long-term care funding, I do remember her saying I would definitely not qualify. It turned out that I did.

Then in November, after I’d been in some major crises, the staff suggested I sign an official request for extra care hours. I just heard this morning that it got approved. Next week, the staff and manager are going to discuss how to use the extra care and whether new staff will need to be hired.

I hoped to settle in at the day center. That didn’t work out, as the center closed down due to COVID in mid-March. It has since reopened to some of the homes, where clients can utilize a specific room for their home. However, many clients in my home fare better now that we get day activities from the home.

COVID also had its consequences for my marriage. I had just been trying to learn to use public transportation, like I’d hoped I could, when COVID hit the Netherlands and care facilities were closed to visitors. Even though we’re in a second lockdown now, my facility does allow visitors this time around. However, my husband and I agreed it wouldn’t be sensible for me to use public transportation as of now.

As a result of the first lockdown, I didn’t see my husband at all for March, April and most of May. Thankfully, our marriage survived.

Looking back at my hopes for 2020, I see I did pretty well considering the circumstances. I mean, I didn’t settle in at the day center or learn to use public transportation, but like I said above, that’s to blame on COVID.

Health-wise, I didn’t lose weight, but I am much more active now than I was in 2019 and I do eat okay too. I could certainly do better, like I tried for some weeks in late October and early November. I’ll need to activate my water reminder app again too.

With respect to my mental health, I certainly took good care of that. I had had it as a secret wish to lower my Abilify dose, but I never did. However, that’s okay considering I wasn’t doing as great mentally as I expected to be. I hope I did finally find a PRN medication that helps me though.

I also blogged much more regularly in 2020 than in 2019. I didn’t do any other writing projects, mostly because I feel too inadequate.

Lastly, that self-care excuse of a goal I definitely did attain. I love love love essential oils.

How was your 2020?